Non-Hodgkin lymphoma , Patient Stories, Adult
Giving Thanks: Stem Cell Transplant Recipient Visits Donor’s Home in Germany

Charles “Chuck” Vanada has been looking forward to Thanksgiving with his family this year, but the non-Hodgkin lymphoma survivor has already experienced feelings of gratitude in 2017 more powerful – and in places more unexpected – than anything he could have imagined. In April, Vanada and his wife, Debbie, traveled […]

November 22, 2017
0
Stem cell/Bone marrow transplant
What’s the Process Involved in a Stem Cell Transplant?

A stem cell transplant is an infusion of healthy stem cells. Stem cells are located within the bone marrow and are the cells from which all other blood cells and the immune system are created. Introducing healthy stem cells into the blood enables the production of all of the different […]

November 2, 2017
2
Blood Cancer , Chronic myelogenous - CML
Stem Cell Transplant Recipient Celebrates 20 Years of Life with Caregivers

Twenty years to the day after undergoing the stem cell transplant that saved him, Todd Ellison reunited with the Dana-Farber caregivers who changed his life – in more ways than one. Ellison, who was diagnosed with chronic myelogenous leukemia (CML) in his early 20s, shared handshakes and “thank you” cake […]

October 3, 2017
0
CAR T-cell therapy , Stem cell/Bone marrow transplant
Stem Cell Transplants and Cellular Therapies: What’s the Difference?

Donor stem cell transplants and other cellular therapies are treatment approaches that harness the immune system to fight cancer using cells from the patient or from healthy donors. Stem cell transplants are used to treat blood-related cancers such as leukemia, lymphoma, and multiple myeloma, as well as certain non-cancerous blood […]

September 7, 2017
0
Blood Cancer , Leukemias , Lymphomas , Multiple Myeloma , Stem cell/Bone marrow transplant
What Care Do I Need After a Stem Cell Transplant?

A stem cell transplant can be a lifesaving treatment for patients with leukemia, lymphoma, multiple myeloma, or certain blood-related disorders. In many cases, however, transplants increase patients’ risk for an array of long-term health problems, often caused by the high doses of chemotherapy and/or radiation therapy used prior to the transplant. […]

July 28, 2017
0
Acute myeloid - AML , General interest
A ‘Lost Boy of Sudan’ Shares History – With Help From Stem Cell Transplantee

After walking 1,000 miles in his bare feet to escape war, and then flying 7,000 more to a new life, it was a few, short steps into a hospital room that helped Panther Ajak Mayen complete his journey. One of the “Lost Boys of Sudan” who escaped a civil war […]

July 25, 2017
0
General interest , Stem cell/Bone marrow transplant , Treatments and Procedures
Autologous vs. Allogenic Stem Cell Transplants: What’s the Difference?

A stem cell transplant is a procedure during which doctors either replace diseased or ineffective stem cells with healthy new stem cells or allow high-dose treatment for lymphoma, some testicular cancers, and other diseases. It is often lifesaving for patients with blood cancer and serious blood disorders. A person may […]

March 6, 2017
0
General interest , Research , Stem cell/Bone marrow transplant
What is Haploidentical Stem Cell Transplantation?

A treatment for patients with blood-related cancers and certain blood disorders, stem cell transplantation involves replacing a patient’s unhealthy blood-forming cells with healthy ones. Patients are first treated with chemotherapy, and sometimes radiation therapy, to wipe out or diminish the bone marrow and lymph nodes where cancers such as leukemia […]

January 9, 2017
0
Care for adults , Stem cell/Bone marrow transplant
Tips for Celebrating the Holidays after a Stem Cell Transplant

The holidays can be a happy time of family gatherings and traditions, but the combination of extended family and friends and cold and flu season can be dangerous for patients who are immunocomprised following recent stem cell transplants to treat blood cancers including multiple myeloma, leukemia, lymphoma, and related disorders. […]

December 21, 2016
0
Care for adults , Stem cell/Bone marrow transplant , Treatments and Procedures
What Is a Reduced-Intensity Stem Cell Transplant?

A reduced-intensity stem cell transplant, also known as a ‘mini’ transplant, is a modified form of a procedure that replaces a patient’s blood-forming stem cells with those of a compatible donor. Mini-transplant patients receive lower doses of chemotherapy than are used in a full-intensity, or myeloablative, transplant, and, in general, […]

November 3, 2016
0
Care for adults , Stem cell/Bone marrow transplant
Stem Cell Transplants Rise Among Older Patients

  Stem cell transplantation following chemotherapy can extend survival and potentially cure certain advanced cancers. Although these demanding procedures were once considered too risky for older patients, advances in transplant methods are challenging that assumption. “In transplants involving donor cells, there was concern that older patients wouldn’t be able to […]

October 17, 2016
0
Cancer research , Care for adults , Stem cell/Bone marrow transplant
FDA Approval of Defibrotide Brightens Outlook for Stem Cell Transplant Patients

Patients and Dana-Farber researchers alike welcomed this week’s Food and Drug Administration (FDA) approval of a new drug for a potentially fatal side effect of stem cell transplants. The approval means patients can receive the drug, defibrotide, as standard therapy for hepatic veno-occlusive disease (VOD) of the liver, a dangerous […]

March 31, 2016
0
Care for children , Patient Stories, Pediatric , Stem cell/Bone marrow transplant
Despite Difficult Stem Cell Transplant, Teen Remains Active

Drew D’Auteuil is a 17-year-old animal-loving, skiing, rowing, volleyball- playing, honor roll student with braces and a shock of red hair. Although he may seem like a typical teen, D’Auteuil has survived rare, life-threatening complications of a stem cell transplant for severe aplastic anemia. “It’s eye-opening to realize how fragile […]

November 30, 2015
2
Care for adults , General interest , Patient Stories, Adult , Stem cell/Bone marrow transplant
How a Stem Cell Transplant Changed My Outlook — and My Career

By Todd Ellison, MSW, LICSW I often tell people that the experiences I’ve had, however challenging, were necessary to make me who I am today. I am pretty happy with the person I turned out to be, and I think cancer had a lot to do with that. Back in […]

November 2, 2015
2
Care for adults , Caregiving , Stem cell/Bone marrow transplant
How to Prepare Your Home for a Stem Cell Transplant Patient

Leaving the hospital is an important milestone for stem cell transplant patients, because it marks the first return home after what can often be an extended recovery. But this homecoming also requires a bit of advance preparation. That’s because stem cell transplants destroy and rebuild the immune system, leaving patients […]

October 9, 2015
0
General interest , Patient Stories, Adult , Stem cell/Bone marrow transplant
Stem Cell Transplant Donor, Recipient Meet for First Time at Fenway Park

After trying chemotherapy to fight acute myeloid leukemia, an aggressive blood cancer, Donnie Lewis, a 56-year-old husband and father of two from Canton, Mass., learned that his best chance to return to health would be through a stem cell transplant. Because Donnie didn’t have any siblings who were a match […]

August 19, 2015
0
Care for adults , Care for children , Stem cell/Bone marrow transplant
Answers to Common Questions About Stem Cell Transplants

Stem cell transplantation can be a life-saving treatment option for patients with blood cancers or disorders. The procedure, sometimes called bone marrow transplantation, replaces bone marrow that doesn’t work correctly or has been damaged by disease. We spoke with Joseph Antin, MD, chief of the Stem Cell Transplantation Program at […]

March 27, 2015
6
Care for adults , Patient Stories, Adult , Stem cell/Bone marrow transplant
One Year After My Stem Cell Transplant — What I’ve Learned

by Martha Laperle When my son Ryan ran the Boston Marathon this year, I watched him with a special level of pride. Not only had he completed his first-ever marathon in four hours, but he was running, in large part, because of me. Just over a year earlier, at the […]

September 20, 2013
14
Care for adults , Health Topics , Stem cell/Bone marrow transplant
Seven Tips for Life After Stem Cell Transplant

By Maria Pearson As a technology teacher who had a long career with IBM before going into education, I have encountered all sorts of opportunities to teach – and to learn. The biggest such opportunity of my life occurred at the intersection of cancer, technology, and Dana-Farber. In August 2010, […]

February 20, 2013
21
Care for adults , Care for children , Stem cell/Bone marrow transplant
Stem Cell Transplant vs. Bone Marrow Transplant: What’s the Difference?

A stem cell transplant can be referred to as a bone marrow transplant (BMT) or peripheral blood stem cell transplant (PBSCT) or umbilical cord blood transplantation (UCBT), depending on the source of the cells that are transplanted. In other words, the only real distinction between a bone marrow transplant and a stem […]

November 8, 2012
15
Care for adults , Patient Stories, Adult , Stem cell/Bone marrow transplant
‘Blood brothers’ celebrate stem cell transplant

Their last names are practically identical. They are both fathers, and their oldest sons, now 6’3, were born on the same day – just two hours apart. “Blood brothers” Craig Johnson and Henrik Janssen had much to celebrate recently.

August 10, 2012
0
Care for adults , Patient Stories, Adult , Stem cell/Bone marrow transplant
Daughter Donates Stem Cells to Honor Dad’s Successful Transplant

Lauren Marsden joined DKMS/Delete Blood Cancer Registry during freshman orientation at St. Anselm’s College for the same reason she majored in nursing: She wanted to help others. What she couldn’t foresee then was how this decision would intersect with her own family’s experience. Two months after Lauren’s graduation in May […]

August 11, 2016
1
CAR T-cell therapy , Leukemias , Lymphomas , Multiple Myeloma
CAR T-Cell Therapy: Is It Right For You?

CAR T-cell therapy is a cancer treatment in which a patient’s immune system T cells are genetically modified to mount a more effective attack on cancer. To date, the therapy has been approved by the U.S. Food and Drug Administration (FDA) as standard therapy for just two groups of patients. […]

November 7, 2017
0
CAR T-cell therapy , Lymphomas
CAR T-Cell Therapy for Lymphoma: What You Need to Know

CAR T-cell therapy, like all forms of cancer immunotherapy, seeks to sharpen and strengthen the immune system’s inherent cancer-fighting powers. It involves treating patients with modified versions of their own immune system T cells ­– white blood cells that help protect the body from disease. The groundbreaking therapy recently became […]

October 30, 2017
0
CAR T-cell therapy , Patient Stories, Adult , Research
CAR T-Cell Therapy Gives Cancer Patients New Hope

Judy Wilkins tried four different chemotherapy regiments over 18 grueling months to try to put her lymphoma into remission. Her team never could. But thanks to CAR T-cell therapy, an emerging immunotherapy treatment that is showing great promise in clinical trials nationwide, Wilkins is cancer-free. CAR (Chimeric Antigen Receptor) T-cell therapy […]

September 19, 2017
1
Patient Stories, Adult , Stem cell/Bone marrow transplant
Stem Cell Donor Celebrates Life of Man He Helped Save

He doesn’t start medical school until August, but Matthew Churitch has already helped save a patient – and gained valuable insight into the role that hope and kindness can play in recovery. Churitch visited Dana-Farber last month with Peter Karalekas, to whom he donated stem cells two years ago. Karalekas, […]

September 6, 2017
0
Cancer research , CAR T-cell therapy , Immunotherapy , Research
Catch Me if You Can: Finding Cancer Cells that Hide in Plain Sight

In the high-stakes contest of hide-and-seek between cancer cells and the human immune system, the advantage doesn’t always lie with the body’s defenders. A new approach to treatment, known as CAR T-cell therapy, may shift that balance of power. Cancer cells conceal themselves from the immune system not by barricading […]

June 21, 2017
0
Care for adults , General interest , Patient Stories, Adult , Stem cell/Bone marrow transplant
Stem Cell Donor, Recipient Meet Up – Seven Years after Their Cells

Sometimes the best things are worth waiting for. Charles “Chuck” Vanada and Tobias Gillmann, connected across 3,700 miles and one life-altering procedure, can attest to that. In September 2009, Vanada – then a 48-year-old non-Hodgkin lymphoma patient – received a stem cell transplant at Dana-Farber/Brigham and Women’s Cancer Center (DF/BWCC), thanks […]

February 23, 2017
0
Care for children , Myelodysplastic/Myeloproliferative diseases , Patient Stories, Pediatric , Stem cell/Bone marrow transplant
Putting College – and Field Hockey – on Hold for a Bone Marrow Transplant

By Dana Mendes Like many high school students, I was eager to start a new chapter of my life after graduating in 2015. I had committed to play field hockey at Assumption College in Worcester, Massachusetts, that fall, and spent the summer working out alongside my new teammates – determined […]

December 23, 2016
1
Care for children , Health and Wellness , Stem cell/Bone marrow transplant
Pediatric Transplant Patients Fight Cancer as Karate Kids

Jessica Madsen wasn’t sure if her daughter, Addy, was ready for karate, until the 4-year-old got the chance to take free lessons in the most surprising place: Her hospital room. Addy and other stem cell transplant recipients at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center are offered free martial arts […]

June 22, 2016
1
Care for children , Leukemias, childhood , Stem cell/Bone marrow transplant
Brother Donates Stem Cells to Sister Battling Leukemia

On September 24, 2015, in a sixth floor room at Boston Children’s Hospital, 5-year-old Logan Lesselroth pressed the button that started the transfer of his newly harvested blood stem cells to his 3-year-old sister, Gianna. “This,” Gianna told him, “is a gift from your body.” The path to that moment […]

April 25, 2016
1
Care for adults , General interest , Patient Stories, Adult , Stem cell/Bone marrow transplant
Dana-Farber Staffer Marks Five Years Post-Transplant with Run of a Lifetime

Mary Taber’s marathon training requires a singular focus. It is demanding, solitary, life-affirming – not unlike her treatment five years ago for aplastic anemia and paroxysmal nocturnal hemoglobinuria (PNH). Taber, intranet editor at Dana-Farber, will mark five years from her March 2011 bone marrow transplant by taking to the storied […]

April 15, 2016
1
Care for children , Patient Stories, Pediatric , Stem cell/Bone marrow transplant
For College Athlete-Turned Transplant Patient, Life’s Still a Ball

The first time a stem cell transplant recipient leaves his or her quarantined hospital room marks a significant milestone. In the case of Dana Mendes, this move toward independence included an additional step: chasing a ball through the hallways with a stick. For Mendes, 18, it was a return to […]

February 12, 2016
1
General interest , Stem cell/Bone marrow transplant
Why Do Stem Cells Have a Strong Odor?

The blood-forming stem cells used in transplants carry hope, promise, and, as many patients report, a strong odor. What gives the cells this distinct smell, which has been compared to that of creamed corn? It comes from the protective solution in which the cells are frozen and stored, rather than […]

January 13, 2016
0
Care for adults , Stem cell/Bone marrow transplant , Uncategorized
Dentist Brings a Smile to Transplant Patients

Like many family members of cancer patients, Stephen Matarazzo, DMD, wanted a meaningful way to thank the Dana-Farber caregivers who saved his son Michael’s life. What he came up with involved offering his own professional expertise to protect the smiles of others. A dentist based in Quincy, Mass., Matarazzo provides […]

September 5, 2014
1
Blood disorders, childhood , Care for children , Patient Stories, Pediatric , Stem cell/Bone marrow transplant
Months After Transplant, Teen Hits the Soccer Field

Some 100 days after receiving a stem cell transplant to cure his severe aplastic anemia, 13-year-old Behaylu Barry still couldn’t invite friends into his home. He can’t return to school until January, when his immune system will finally be strong enough to fight the pathogens present in indoor spaces. Yet  […]

August 29, 2014
0
Care for adults , Care for children , General interest , Stem cell/Bone marrow transplant
What’s the Difference Between Donating Bone Marrow and Donating Stem Cells?

Stem cell transplantation (sometimes called bone marrow transplants) is a treatment for certain forms of cancer, such as leukemia, lymphoma, and multiple myeloma, as well as other diseases. But before a patient can receive a transplant, stem cells must be collected from a donor (an allogeneic donation) or from the […]

November 22, 2013
1
Care for adults , Stem cell/Bone marrow transplant
Siblings Are Thankful for Bone Marrow Transplant

On Thanksgiving Day every year, Marc Kutzer and his sister, Roberta Klein, have much to be thankful for. In 2001, Kutzer went to his primary care physician for a routine physical. What his doctor discovered led Kutzer, 52, to Dana-Farber — and to a procedure he credits for saving not […]

November 13, 2012
0
Cancer genetics, childhood , Care for children , Research
Gene Therapy Halts Progression of Cerebral Adrenoleukodystrophy in Clinical Trial

This originally appeared on Vector, Boston Children’s Hospital’s blog. Adrenoleukodystrophy — depicted in the 1992 movie “Lorenzo’s Oil” — is a genetic disease that most severely affects boys. Caused by a defective gene on the X chromosome, it triggers a build-up of fatty acids that damage the protective myelin sheaths of the […]

December 7, 2017
0
General Adult and Pedi , Patient Stories, Adult
The Importance of Taking Care of Your Cancer Caregiver

By Allan Obsorne Although most caregivers are related to us, cancer patients like myself often receive care and support from non-family members, such as friends and colleagues. It’s important for us to reflect on the important role our caregivers play in our overall treatment. In my opinion, our caregivers have […]

November 20, 2017
0
Health and Wellness
Cancer Treatment and Oral Health: What You Need to Know

When thinking of side effects of cancer treatments, nausea, fatigue and hair loss often come to mind – but what about oral health complications? Therapies that target cancer cells can also affect normal, healthy cells in the mouth and throat, and consequently, oral complications are common for cancer patients. What […]

October 19, 2017
0
Leukemias, childhood , Patient Stories, Pediatric
Pediatric Patient and Social Worker Forge Bond From Clinic to College

Like many of Dana-Farber’s youngest patients, 3-year-old Hannah Packman brought a favorite plaything to each of her Jimmy Fund Clinic visits. Lulu the doll, however, was unique because of the extra attention she received from pediatric social worker Deborah Berk, LICSW. When Hannah had a blood draw, Berk arranged for […]

October 16, 2017
0
Blood disorders
POEMS Syndrome Patient Goes from Immobility to Recovery

The vow Chukwuma Anyanwu made to himself shortly after the birth of his third child in June 2015 speaks volumes, not only about the dire state of his health at the time but also about the mettle with which he is made. “My goal was to be able to walk […]

October 11, 2017
0
Blood disorders, childhood , Childhood , Patient Stories, Pediatric
Gene Therapy Helps Treat Boy’s Rare Immune Disorder

In their Brookline home-far-away-from-home, 2-year-old Duy Anh “Harry” Le plays with blocks and pop-up toys on the floor with his mother, Thao Nguyen. He is lively and happy, and his skin is clear. He looks almost nothing like the sickly baby covered in eczema who arrived in Boston from his […]

September 25, 2017
0
Lymphomas , Patient Stories, Adult , Stem cell/Bone marrow transplant
Platelet Donations Mean Sisterly Bonding for These Siblings

They grew up in the same house and still vacation together each summer, but Pam and Paula Gorgone do some of their best sisterly bonding when they’re giving platelets. Every other Thursday, with rare exceptions, the siblings sit side-by-side at the Kraft Family Blood Donor Center and donate platelets. They […]

September 4, 2017
0
Blood Cancer
How Does a Geriatrician Help When Treating Older Cancer Patients?

Geriatrician Tammy Hshieh, MD, MPH, introduces herself to patients by saying she is a specialist in aging and complexity. Almost inevitably, a cancer patient in his or her 70s, 80s, or 90s is dealing with more than a tumor – and that’s where Hshieh’s skills and experience can be an […]

August 23, 2017
0
Multiple Myeloma
Multiple Myeloma: Optimizing Quality of Life for Survivors

Thanks to major advances in treatment in recent years, patients diagnosed with multiple myeloma today have a much greater life expectancy, even though the blood cancer isn’t curable. It’s possible to think of myeloma – a malignancy affecting antibody-producing immune cells – as a chronic disease with which some individuals […]

August 21, 2017
0
General interest , Multiple Myeloma , Patient Stories, Adult , Podcasts
Voices Podcast – Season 2 Episode #6: Then and Now with Multiple Myeloma Patient Linda Solomon

When Linda Solomon, a trained medical technologist, saw the results of her routine complete blood count in 2009, she knew it wasn’t good news. Solomon, then 61, was diagnosed with stage III multiple myeloma – and given three years to survive. Several rounds of chemotherapy, two stem cell transplants, and […]

July 31, 2017
0
Blood disorders , Blood disorders, childhood , Patient Stories, Pediatric
Blood Relatives: Family Bound by Love and Rare Blood Disorder

Tracy Antonelli was four when she was diagnosed with thalassemia, a rare blood disorder that occurs often enough in Mediterranean countries like Italy that an old adage, uttered only partially in jest, warns Italian-Americans against marrying other Italian-Americans. In 2002, a grown-up Antonelli wed Patrick Mooty, whose background is mostly […]

July 19, 2017
0
Childhood
From Pediatric Cancer Treatment to Capitol Hill

Washington, D.C., can be a frenzied place, especially for a college student juggling a full class load and congressional internships on Capitol Hill. Jen Fox, however, is taking it all in stride. How does she stay so calm? Well, Fox suggests, two bouts with Hodgkin lymphoma in three years, and […]

July 3, 2017
0
General interest
Patrice Kelly’s Journey from Jimmy Fund Clinic Mom to Breast Cancer Patient

Charlotte Kelly hated having her chemotherapy port accessed, but her mother, Patrice, found a way to calm the toddler. Each time tears came, Patrice would rub her nose against Charlotte’s – and the pair would get past their fears together. Today the ritual continues, even though Charlotte’s last neuroblastoma checkup […]

June 28, 2017
0
Cancer research , Immunotherapy
In Check: Attacking Cancer from Many Fronts

As a pediatric dentist, Jay Schwab had a clear-cut enemy: dental disease in children and adolescents, and the apprehensions they faced in the dental environment. Cavities could neither hide from his drill nor fool his X-ray machine, and plaque could easily be scraped away. Generations of patients went away smiling […]

June 27, 2017
0
Care for children
College Student Reconnects with the Oncologist Who Saved Her Life

This post originally appeared on Thriving, the Boston Children’s Hospital blog. Anna Protsiou was 5 when she was diagnosed with neuroblastoma in 2002. She remembers pain, and fruit-scented anesthesia masks that led her to stop eating cherries. She also remembers hospital arts and crafts projects. What she barely remembers is […]

June 20, 2017
0
Care for adults
What Is Chronic GVHD and How Can I Manage It?

Chronic graft-versus-host disease (GVHD) is a common and potentially life-threatening complication of stem cell transplants that use donor cells. It arises when the donor’s immune system cells treat the recipient’s body as foreign and raise an attack on certain organs and tissues, most often the skin, mouth, and eyes. The […]

June 15, 2017
0
Care for adults
Young Dancer Back on the Stage after Lymphoma Treatment

When Lauren Leonard bounces across the stage, she is in perfect harmony with the rhythm of the music. Amongst a group of other dancers, she stands out, moving with tangible energy. Dancing has been an important part of Leonard’s life since childhood. She started taking ballet lessons when she was […]

June 13, 2017
0
General interest , Podcasts
Voices Podcast – Season 2 Episode #4: Then and Now with Neuroblastoma Patient Emily Coughlin

Amy McHugh’s 4-year-old daughter, Emily Coughlin, was a typical kid – playful and inquisitive – until May 2009, when she started complaining of knee pain. After a visit to the pediatrician, and a misdiagnosis of Lyme disease, the family ended up at Boston Children’s Hospital, where they received a devastating […]

June 7, 2017
0
Acute lymphoblastic - ALL , Coping with Cancer , Health Topics , Patient Stories, Adult , Stem cell/Bone marrow transplant
He Lost His Sight to Cancer, But Not His Vision of a Full Life

When Tim Conners collected his wish from the Make-A-Wish Foundation in 2012 at the age of 18, he was blind from childhood leukemia that had spread to his optic nerve. A football player and wrestler who’d never been an outdoorsman, he asked to meet Erik Weihenmayer, the first blind person […]

April 24, 2017
1
Blood Cancer , Cancer research , Leukemias , Lymphomas , Multiple Myeloma , Research , Stem cell/Bone marrow transplant
The Latest Advances Against Hematologic Cancers

Treatment of blood-related, or hematologic, cancers is seizing on insights into the basic genetic wiring of cancer cells and the body’s system for finding and attacking those cells. Research presentations at the annual American Society of Hematology (ASH) meeting in December gave evidence of how broad, and rapid, the progress […]

April 21, 2017
2
Acute myeloid - AML , Blood Cancer , Coping with Cancer , General interest
Doctor and Nurse Team Up for Blood Cancers Support Group

By Ronni Gordon When my year of isolation ended after a stem cell transplant at Dana-Farber/Brigham and Women’s Cancer Center in 2003, I looked for a blood cancer support group near my home in western Massachusetts. I found support groups for just about everyone except patients like me with acute […]

April 18, 2017
0
Care for adults , Coping with Cancer , General interest , Myelodysplastic/Myeloproliferative diseases , Patient Stories, Adult
Making the Best of Things In The Hospital

By Rich Rothman In 2013, I was facing a lengthy hospital stay after being diagnosed with a life-threatening blood cancer known as myelodysplastic syndromes (”MDS”). I had decided to proceed with a bone marrow transplant, which was thought to be the only potential cure. After being admitted to the hospital, […]

January 18, 2017
0
General interest
What is an Oncology Hospitalist?

Managing the care of cancer patients who need hospitalization calls for specialized resources and expertise, including familiarity with an array of cancer medications and their potential side effects. When an adult cancer patient is admitted to Dana-Farber’s Inpatient Hospital, located within Brigham and Women’s Hospital, his or her care is […]

January 13, 2017
0
Care for children , Childhood , Patient Stories, Pediatric , Risk and Prevention , Stem cell/Bone marrow transplant
Newborn Screening Saves Baby from “Bubble Boy” Disease – Before He Ever Gets Sick

Happy to have given birth in January 2015 to two seemingly healthy boys, Levi and Colton, after an uneventful pregnancy, Kala Looks gave little thought to the routine heel prick of newborn screening. At 23 and 24, she and her husband, Phillip, were high school sweethearts starting a family with […]

December 27, 2016
0
Care for adults , Care for children , Treatments and Procedures
Tips for Preparing for Photopheresis

Photopheresis is a unique medical therapy that involves temporarily removing blood from a patient, mixing the blood with a medication, exposing the blood to ultraviolet (UV) light to activate the drug, and then reinfusing the blood into the patient. The technique is used to treat graft-versus-host disease (GVHD), a common […]

December 26, 2016
0
Care for adults , Coping with Cancer , Patient Stories, Adult
Coming to Grips with the News that You’ve Got Cancer

By Rich Rothman I was rolling along in the summer of 2012. Having turned 60, I was working more than 50 hours a week as a litigation partner of a global law firm, playing tennis, fishing (not necessarily catching) on the rare occasions I could get away, and purporting to […]

November 18, 2016
1
Care for children , Leukemias, childhood , Patient Stories, Pediatric , Treatments and Procedures
The New Frontier: Improving Safety of Outpatient Care At Home

After Lacey Martin’s leukemia didn’t respond to initial rounds of chemotherapy and after she spent 10 weeks hospitalized for a stem cell transplant, the 11-year-old New Hampshire girl went home March 2 with an external line for medications that her mother would have to flush and clean twice a day. […]

November 8, 2016
0
Care for adults , Leukemias , Risk and Prevention
What Are the Symptoms of Leukemia?

While leukemia, a cancer of the blood cells, is one of the more common cancers in children, it occurs most frequently in older adults. More than 60,000 new cases of adult leukemia are estimated in the United States for 2016. These cancers are classified as either acute, which means the […]

October 19, 2016
0
Care for children , Neuroblastoma, childhood , Patient Stories, Pediatric
Young Actor Plays Unexpected Role for Others with Neuroblastoma

Before he was diagnosed with neuroblastoma in 2014 at the age of 11, Noah Smith was a veteran of the children’s theater stage. The suburban Boston boy had been cast in ensembles. He’d played Kurt Von Trapp in “The Sound of Music.” Little did Noah know that he would soon […]

September 30, 2016
0
Blood Cancer , Care for adults
What Are the Most Common Blood Cancers in Adults?

Someone in the United States is diagnosed with a blood cancer every three minutes. The most commonly diagnosed blood cancers are non-Hodgkin lymphoma, chronic lymphocytic leukemia, acute myeloid leukemia, acute lymphoblastic leukemia, and multiple myeloma.   Non-Hodgkin Lymphoma   Non-Hodgkin lymphoma (NHL) is a type of cancer that forms in […]

September 19, 2016
0
Care for children , Neuroblastoma, childhood
What Is Neuroblastoma?

Neuroblastoma is a cancerous tumor found in young children and infants, most commonly in children under age 5 and rarely in those older than 10. Approximately 650 children in the United States are diagnosed with neuroblastoma each year. What causes neuroblastoma? The cause of neuroblastoma is not certain, but researchers […]

August 24, 2016
1
Care for adults , Leukemias , Patient Stories, Adult
Leukemia Survivor Embraces Change

For Anna Heard, the fall of 2002 was a season of change. Set to move to Boston in September to begin a master’s program at Harvard T. H. Chan School of Public Health, Heard, then 29, had a routine physical in Washington, D.C., before starting the academic year. Although her […]

August 23, 2016
0
Care for children , Neuroblastoma, childhood , Patient Stories, Pediatric , Treatments and Procedures
New Treatment Protocol Boosts Survival in Pediatric Neuroblastoma Patients

When Emily Coughlin complained of a sore knee in May 2009, doctors initially suspected Lyme disease. After antibiotics failed to relieve the pain, the girl, who was just shy of her fourth birthday, was diagnosed with neuroblastoma, a cancer that begins in nerve cells outside the brain and usually affects […]

August 9, 2016
2
Care for adults , Chronic lymphocytic - CLL , Chronic myelogenous - CML , Leukemias
What Are the Differences Between Lymphocytic and Myelogenous Leukemia?

Leukemia arises from malfunctions in stem cells within the bone marrow that cause abnormal white blood cells to flood into the bloodstream. Leukemias are classified as either myelogenous (also called myeloid) or lymphocytic depending on which types of white blood cells are affected. If the abnormal cells are primarily granulocytes […]

July 19, 2016
0
Cancer research , Care for adults , Patient Stories, Adult
Individualized Clinical Trial Gives Patient with Rare Cancer Time to Celebrate

Kerri Antonuccio marked her 40th birthday this spring with a fresh lease on life. For the first time since 2012, she didn’t feel too sick from cancer treatment to enjoy her big day. She was also able to travel to Mexico and serve as matron of honor at her sister’s […]

June 20, 2016
2
Care for children , General interest
Red Sox All-Star Treats Young Patient to a Special Fenway Park Tour

By Sam Ogden It’s a few hours before game time and I’m walking backwards across Fenway Park’s outfield trying to keep ahead of Red Sox all-star Brock Holt. Like most photographers, I am used to this. Sometimes, walking backwards and shooting is the only way to get your shot. Today, […]

June 1, 2016
2
Blood disorders, childhood , Bone marrow failure, childhood , Patient Stories, Pediatric , Stem cell/Bone marrow transplant , Uncategorized
Aplastic Anemia or Dyskeratosis Congenita? Unclear Diagnosis Demands a Difficult Decision

Having a child diagnosed with a life-threatening illness is heart-wrenching for all parents, but when the diagnosis itself is uncertain, parents can face excruciatingly difficult decisions. This is what Katie and Josh Stevens of Idaho confronted after their son Riley was diagnosed in October 2012 with the blood disorder aplastic […]

March 28, 2016
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Care for adults , Care for children , Coping with Cancer
How Can Social Workers Help Cancer Patients?

A cancer diagnosis affects every area of a person’s life. The journey is both challenging and costly, and many experiencing it for the first time feel lost about how they should handle the changes cancer brings. That’s where social workers step in. “Our role is to help patients think through […]

March 25, 2016
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Care for adults , Care for children
From Massachusetts to Myanmar, Making Cancer Care a Global Effort

Each February 4, people everywhere are encouraged to take steps toward improving cancer awareness, prevention, and care on World Cancer Day. But for Dana-Farber staff working with colleagues in dozens of under-resourced countries, every day provides opportunities to help cancer patients worldwide. The Global Health Initiative at Dana-Farber/Boston Children’s Cancer […]

February 4, 2016
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Care for adults , Leukemias , Patient Stories, Adult
Leukemia Patient Soars to Recovery

Chris Potter was not a fan of flying, until a group of pilots he had never met transported him to his life-saving care team. Potter, then 42, was struggling through a relapse of acute lymphocytic leukemia in 2011. His cancer was not responding to treatment, and he required at least […]

February 1, 2016
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Cancer research , Care for adults , Chronic lymphocytic - CLL , Treatments and Procedures
A New Cancer Drug — in the Nick of Time

When Roy Jann was diagnosed with cancer in 2013, it never crossed his mind that he would be a model for the life-saving potential of venetoclax, a new type of cancer drug that had recently entered human testing. The first inkling that something was amiss had come a few weeks […]

January 15, 2016
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Brain tumors, childhood , Care for children , Patient Stories, Pediatric
One Year After Brain Tumor Surgery, 10-Year-Old Celebrates with Holiday Concert

A year ago, Aimee Fellows couldn’t imagine being back at Boston Children’s Hospital, awaiting the start of another violin concert featuring her daughter. Sophie, now 10 years old, is dressed this time in a frilly white blouse, black skirt and black dress shoes, her first pair of heels, albeit little […]

December 16, 2015
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