How Can Palliative Care Benefit Pediatric Cancer Patients?

Joanne Wolfe, MD, MPH, founded the Pediatric Advanced Care Team (PACT) in 1997 to help ensure children who are living with life-threatening diseases like cancer, and their families, enjoy the best quality of life.  The program, a part of Dana-Farber/Boston Children’s Cancer and Blood Disorders Center and the Department of Psychosocial Oncology and Palliative Care, and Wolfe, were featured recently in The New Yorker. We spoke with her about the benefits of pain and symptom management, and palliative care for pediatric patients. Q. What is PACT? A. PACT is a group of physicians, social workers, and nurse practitioners. We provide …

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Top 10 Insight Stories from 2013

As 2013 comes to a close, we’re looking back at some of our favorite Insight posts from the last year. From inspiring patient stories to important research, here is our top 10 list:

What’s the Difference Between Donating Bone Marrow and Donating Stem Cells?

Stem cell transplantation (sometimes called bone marrow transplants) is a treatment for certain forms of cancer, such as leukemia, lymphoma, and multiple myeloma, as well as other diseases. But before a patient can receive a transplant, stem cells must be collected from a donor (an allogeneic donation) or from the patient (an autologous transplant).

Video: Nearly 100 Patients Inspire Others with Stories of Hope

Each year, Dana-Farber patients join clinicians, staff, and the Boston Red Sox to share their stories of inspiration and their belief in the research advances at Dana-Farber during the WEEI/NESN Jimmy Fund Radio-Telethon at Fenway Park. This year, nearly 100 patients, including Rayquan Fregeau, who used art and resources from the Betty Ann Blum and Marjorie Blum Pediatric Resource Room to cope with his diagnosis; Debbie Whitmore, a mother of five who hopes for a cure for future generations; and Jack Robinson, who compiled a joke book to help other children during their treatment, shared their experiences battling cancer. Stephen …

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College and Cancer: Tips from a Student Survivor

By Catherine MacLean “Why is this coming up now?” “It’s been 10 years. I should be over this already.” “Why is this happening to me? All of the other survivors I know seem fine.” These thoughts preoccupied me during the transition from high school to college. It had been 10 years since my successful bone marrow transplant for aplastic anemia and my health was excellent.

Six Important Questions About Childhood Cancer

September is Childhood Cancer Awareness Month. We asked Lisa Diller, MD, chief medical officer at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center, to answer these important questions. What signs might lead a child’s pediatrician to suspect cancer? Cancer is very diverse, and diagnosis is further complicated because many signs and symptoms—like fever, bruising and headaches—are normal in healthy children.

Making ‘Em Laugh: 12-year-old Cancer Patient Compiles Joke Book

Jack Robinson is a special kid. Diagnosed with bone cancer at the age of 11, he tackled treatment if not with a smile on his face, then with a joke on his lips… or more accurately, on paper. The Massachusetts resident compiled and edited a joke book called, “Make ‘em Laugh” to help himself, and other kids who were sick. It was drafted from hundreds of jokes, riddles, and drawings submitted by Robinson and other kids cared for in the Jimmy Fund Clinic and the inpatient oncology floors at Boston Children’s Hospital.

Teen Patient Uses Images to Document Cancer Treatment

By  Saul Wisnia Rayquan “Ray” Fregeau’s smile lights up a room, even after five days of chemotherapy. His upbeat personality infuses his poetry, but until recently the 17-year-old patient at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center had trouble putting into words what he’s gone through since his February cancer diagnosis, especially when it came to telling friends about his experience.

What is the Difference Between Palliative Care and Hospice?

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Although the terms are often used interchangeably, palliative care and hospice care differ in several important ways for cancer patients – most notably, the stage of treatment at which they are given. Both types of care focus on relieving patients’ pain and discomfort, whether caused by the cancer itself or the side effects of treatment. The goal of such care is not to cure a disease, but to improve someone’s physical, social, and emotional well-being. Palliative care can take place at any stage of a patient’s illness, often beginning shortly after diagnosis and continuing through the course of treatment. Dana-Farber …

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