Opening of cancer center in Rwanda is “privilege beyond words”

The dirt roads in northern Rwanda now lead to a cancer center where patients can receive care for a disease that was, until now, considered a death sentence there. The Butaro Cancer Center of Excellence, which was dedicated on July 18, has allowed Dana-Farber/Brigham and Women’s Cancer Center to extend a helping hand in this tiny, densely populated country in Africa.

Teens and young adults overlook skin cancer risk

The call of the beach is hard to ignore on sunny summer days. Yet many teens and young adults do not follow protection tips when they hit the sand. They remain the most difficult age group to convince that ultraviolet (UV) rays, which come from the sun and indoor tanning venues, can cause cancer.

Why pediatric survivor programs are so important

In celebration of Living Proof week, Insight honors cancer survivors with daily posts about survivorship.  When Dana-Farber launched its David B. Perini, Jr. Quality of Life Clinic nearly 20 years ago, it was one of the nation’s first programs dedicated to helping childhood cancer survivors. From the beginning, the pediatric survivorship clinic has been guided by clinic director Lisa Diller, MD, who is recognized globally for her contributions to cancer survivorship and pediatric oncology. The Perini clinic has developed resources that help survivors address issues such as the long-term effects of treatment, the risk of second cancers, and the psychological concerns of being a cancer survivor.

Therapy dogs bring smiles to kids with cancer

With the pitter patter of small feet, Phil makes his way through the halls of Boston Children’s Hospital. He walks with a purpose, boarding the elevator that takes him to the oncology floor for his next appointment. Phil is a new face in 6 North, the oncology unit at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center. A spunky pug mix who knows a trick or two, Phil is one of nine therapy dogs who visit pediatric patients at Boston Children’s Hospital as part of the Pawprints Program. What he lacks in medical credentials and size, he easily makes up for in …

Continue reading

A new approach to old ideas about diffuse intrinsic pontine glioma

Hilary Olson had no reason to suspect that her daughter Hailey might have a brain tumor. “Her smile was starting to droop a little, and one of her eyes was a little jumpy,” says the 6-year-old’s mother. “We took her to see a neurologist, and he thought she might have pinched a nerve. “But when he sent us to Boston Children’s Hospital for an MRI,” she continues, “the radiologists sent us straight down to the emergency room.”

Two dads, one cause, and a whole lot of love

No one would choose the way Glen Jusczyk and Greg Kelly became friends: at the bedsides of their little girls with cancer. Yet these extraordinary circumstances created not just a friendship, but a desire to give back to the place providing their children’s care. On April 16, these dads, who consider themselves “out of shape,” will run the 116th Boston Marathon® as two of more than 550 runners on the Dana-Farber Marathon Challenge team to raise money for the Claudia Adams Barr Program in Innovative Basic Cancer Research at Dana-Farber. Jusczyk’s daughter, Malia, was diagnosed with neuroblastoma, a cancer that …

Continue reading

Family bonding in the Jimmy Fund Clinic

By Sara Dickison Taylor When our daughter Emily was diagnosed with leukemia at age 5, we found solace and support from other families facing pediatric cancer at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center. Our visits to Dana-Farber’s Jimmy Fund Clinic became a well-rehearsed play. If it was Friday, it was clinic day. Instead of going to kindergarten or playing with her friends like most 5-year-olds, Emily had her vital signs taken, had blood drawn through her Port-a-Cath, and received a weekly infusion of chemotherapy, platelets, and blood. It was difficult at times, but making friends with other families going …

Continue reading

Mattel announces hairless version of Barbie doll

Mattel Inc., maker of Barbie dolls, last week announced that it would create a bald version of the popular fashion doll to support people battling cancer. The announcement came a few months after Beautiful and Bald Barbie, a Facebook group that petitioned Mattel to make a hairless version of the doll, gained mass support online. Their mission was simple: We would like to see a Beautiful and Bald Barbie made to help young girls who suffer from hair loss due to cancer treatments, alopecia or trichotillomania. Also, for young girls who are having trouble coping with their mother’s hair loss …

Continue reading

Advocating for student cancer survivors

At age 7, Sophie was treated for a brain tumor at Dana-Farber/Children’s Hospital Cancer Center. As a result of her treatment, she struggled with ongoing fatigue, weakness on her right side, and chronic headaches. Sophie began her freshman year as one of 2,000 students at a large public high school. Despite support from special education teachers, she struggled with the academic demands of her classes and the overwhelming size of the school. An extremely dedicated student, she spent hours each evening on homework, but she tired easily, which made the headaches worse, and she struggled to get through each school …

Continue reading