Cancer research , Care for children
What’s New in Pediatric Brain Tumor Research and Care?

Mark W. Kieran, MD, PhD, director of Pediatric Medical Neuro-Oncology at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center, spoke to pediatric patient families in a recent Facebook Live Webchat addressing pediatric brain tumor care. Kieran answered questions from audience members about the most common of the 300 brain tumor types […]

May 24, 2017
0
Care for children
Facing Fertility Issues as a Pediatric Cancer Survivor

In her research studies with young adult survivors of childhood cancers, pediatric oncologist Natasha Frederick, MD, MPH, of Dana-Farber/Boston Children’s Cancer and Blood Disorders Center, explored sexual dysfunction in survivors between the ages of 18 and 30 years old. She found that most of these young survivors reporting such problems keep their concerns from partners, […]

May 18, 2017
0
Cancer research , Care for children
How Pediatric and Canine Cancer Similarities Can Help Both Children and Pets

In March 2016, Ollie the pug, a therapy dog at Boston Children’s Hospital, paid a bedside visit to 7-year-old Carter Mock. Both dog and boy lost limbs to osteosarcoma, a cancer of the bone. Ollie’s left front leg was amputated at the shoulder. After removing the tumor in Carter’s left […]

May 2, 2017
0
Acute lymphoblastic - ALL , Care for children , Coping with Cancer , Health and wellness
He Lost His Sight to Cancer, But Not His Vision of a Full Life

When Tim Conners collected his wish from the Make-A-Wish Foundation in 2012 at the age of 18, he was blind from childhood leukemia that had spread to his optic nerve. A football player and wrestler who’d never been an outdoorsman, he asked to meet Erik Weihenmayer, the first blind person […]

April 24, 2017
1
Care for children , Coping with Cancer
Finding Strength and Beauty During Annual ‘Girls Weekend’

For seventeen girls and patients at Dana-Farber Boston Children’s Cancer and Blood Disorders Center, Dana-Farber’s annual Girls Weekend – a three-day arts, shopping, and food extravaganza – is a much-needed opportunity to relax and connect with new friends who also know what it’s like to have cancer. “Being a teenager […]

March 24, 2017
0
Care for children , Non-Hodgkin lymphoma , Patient Stories, Pediatric
Lymphoma Patient Gets Back on the Court Post-Treatment

For much of his 17 years, Spencer Riley has lived to play basketball. This winter, his favorite sport helped the teenager get back to life. Riley was diagnosed with non-Hodgkin lymphoma in 2016 and treated at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center that summer. He underwent an intensive three-month […]

March 22, 2017
0
Acute lymphoblastic - ALL , Cancer research , Care for children , Leukemias , Research
Do Childhood Leukemia Patients with Down Syndrome Need Modified Therapy?

Because of their increased susceptibility to the toxicities of chemotherapy, should ALL patients with Down syndrome receive modified treatment to minimize this risk? Or should they be given the same treatment as other children with ALL, to minimize the chance for relapse?

February 17, 2017
0
Care for children , General interest
Improving Childhood Cancer Treatment Worldwide [Infographic]

Cancer knows no borders, and pediatric patients in low- and middle-income countries often have less access to quality care. The Global Health Initiative at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center exists to change this by improving outcomes and survival rates for children with cancer and blood disorders, regardless of […]

February 15, 2017
0
Care for children , Patient Stories, Pediatric
When Your Sons Are Both Diagnosed with Cancer

By Ebony Glass One day, our 2-year-old son Javon complained about a bit of pain at daycare. It seemed harmless enough. But after a visit to the pediatrician, we ended up in the hospital for emergency surgery. There, they discovered that a mass in his body was causing the pain. “Cancer?” […]

January 11, 2017
1
Care for children , General interest , Patient Stories, Adult , Patient Stories, Pediatric
The Loss of a Child: Stories from Three Bereaved Parents

As told to Sue Morris, PsyD As director of Dana-Farber’s Bereavement Program, I regularly sit with bereaved individuals, listen to their stories, and help them navigate their lives after they have been completely turned upside down. I recently spoke with three bereaved parents who are members of Dana-Farber’s Pediatric Patient […]

December 29, 2016
0
Care for children , Childhood , Patient Stories, Pediatric , Risk and Prevention , Stem Cell/Bone Marrow Transplant
Newborn Screening Saves Baby from “Bubble Boy” Disease – Before He Ever Gets Sick

Happy to have given birth in January 2015 to two seemingly healthy boys, Levi and Colton, after an uneventful pregnancy, Kala Looks gave little thought to the routine heel prick of newborn screening. At 23 and 24, she and her husband, Phillip, were high school sweethearts starting a family with […]

December 27, 2016
0
Care for children , Myelodysplastic/Myeloproliferative Diseases , Patient Stories, Pediatric , Stem Cell/Bone Marrow Transplant
Putting College – and Field Hockey – on Hold for a Bone Marrow Transplant

By Dana Mendes Like many high school students, I was eager to start a new chapter of my life after graduating in 2015. I had committed to play field hockey at Assumption College in Worcester, Massachusetts, that fall, and spent the summer working out alongside my new teammates – determined […]

December 23, 2016
1
Brain Tumors , Care for children , Patient Stories, Pediatric , Uncategorized
Pediatric Brain Tumor Patients Find Success with Targeted Drug

  At first, early intervention specialists told Christi Powers that her young son’s gross motor delays and poor balance were likely the result of weak muscle tone, but when Danny developed severe headaches at age 4, she took him to the emergency room. Soon the suburban Boston boy was diagnosed […]

December 13, 2016
0
Care for children , Leukemias , Patient Stories, Pediatric , Treatments and Procedures
The New Frontier: Improving Safety of Outpatient Care At Home

After Lacey Martin’s leukemia didn’t respond to initial rounds of chemotherapy and after she spent 10 weeks hospitalized for a stem cell transplant, the 11-year-old New Hampshire girl went home March 2 with an external line for medications that her mother would have to flush and clean twice a day. […]

November 8, 2016
0
Care for children , Patient Stories, Pediatric
Post-Cancer, Post-Rotationplasty, Teen Athlete Continues to Excel

The ball leaps off the metal bat with an unmistakable “ping” that denotes good contact. Miles Goldberg runs to first base, from which the 13-year-old will soon contemplate – and safely execute – a steal of second. Miles is used to transitioning naturally with the seasons from football to hockey […]

October 19, 2016
1
Care for children
Tips for Sharing a Child’s Cancer Diagnosis with Others

No one is prepared to tell a loved one they have cancer. But the conversation becomes even more difficult when it’s your child who is diagnosed. How should parents and patients tell family members and friends, and who should be taking the lead? While there are some universal recommendations, much […]

October 13, 2016
1
Care for children , Patient Stories, Pediatric
How Boston and Dana-Farber Gave This Family Hope

By Ricardo Garcia On Nov. 29, 2011, cancer changed our lives. My son Richi was diagnosed in Barcelona with a high-risk medulloblastoma, one of the most aggressive brain tumors. From that day on, we did not return home. We could never imagine what awaited us. Richi endured a total of […]

October 4, 2016
0
Care for children , Neuroblastoma , Patient Stories, Pediatric
Young Actor Plays Unexpected Role for Others with Neuroblastoma

Before he was diagnosed with neuroblastoma in 2014 at the age of 11, Noah Smith was a veteran of the children’s theater stage. The suburban Boston boy had been cast in ensembles. He’d played Kurt Von Trapp in “The Sound of Music.” Little did Noah know that he would soon […]

September 30, 2016
0
Care for children , Leukemias , Patient Stories, Pediatric
Teaghan Swims through Leukemia Treatment

  Holding hands, 3-year-old Teaghan Bresnahan and her mom run the length of the lake-front dock. At the dock’s end, Teaghan lets go – and gleefully leaps into the air to land in the water with a satisfying splash. It may seem a typical summer scene. But for Teaghan, who […]

September 22, 2016
0
Care for children , Patient Stories, Pediatric
Carter Climbs to New Heights – with a Prosthetic Leg

  More than 50 feet above ground, a wire rope extends from one tree to another. High in the trees, seven-year-old Carter Mock fearlessly steps off a platform and places first one foot, then the other, onto the wire. Holding tight to hanging ropes for balance, he navigates across the […]

September 15, 2016
0
Brain Tumors , Care for children , Patient Stories, Pediatric
Dylan Discovers a New Sport During Cancer Treatment

Balloons of various colors are taped in a row across the wall. Twenty yards away, 8-year-old Dylan Berio announces “yellow,” pulls back the string of his bow, then releases – smiling as he hears the “pop.” His arrow successfully pierced the yellow balloon. Archery requires focus and precision – something […]

September 8, 2016
0
Care for children , Patient Stories, Pediatric
Cancer or No Cancer – Carlie Will Sing

Her voice at first sings softly, then gradually gains intensity and rises to a crescendo as she belts out the refrain of a tune she and her dad co-wrote: “You’re not standing alone!” 15-year-old Carlie Gonzalez has been singing and making music for as long as she can remember. But […]

September 1, 2016
0
Care for children , Ewing Sarcoma
What Is Ewing Sarcoma?

Ewing sarcoma is a cancer that grows in the bones and soft tissues, usually in the thigh or pelvis. It is most common in children and young adults between the ages of 5 and 20, and more common in boys than girls. Although most patients are teenagers, Ewing sarcoma can […]

August 31, 2016
0
Care for children , Neuroblastoma
What Is Neuroblastoma?

Neuroblastoma is a cancerous tumor found in young children and infants, most commonly in children under age 5 and rarely in those older than 10. Approximately 650 children in the United States are diagnosed with neuroblastoma each year. What causes neuroblastoma? The cause of neuroblastoma is not certain, but researchers […]

August 24, 2016
1
Care for children , Neuroblastoma , Patient Stories, Pediatric , Treatments and Procedures
New Treatment Protocol Boosts Survival in Pediatric Neuroblastoma Patients

When Emily Coughlin complained of a sore knee in May 2009, doctors initially suspected Lyme disease. After antibiotics failed to relieve the pain, the girl, who was just shy of her fourth birthday, was diagnosed with neuroblastoma, a cancer that begins in nerve cells outside the brain and usually affects […]

August 9, 2016
2
Care for children , Leukemias , Patient Stories, Pediatric
The Power of Patient and Family Centered Care: One Mom’s Journey

By Sara Dickison Taylor On June 2, 2008, my then 5 ½-year-old daughter was diagnosed with Acute Lymphoblastic Leukemia (ALL). My world would never be the same. My husband and I had an eerie sense that something was very wrong. Emily’s high fevers were not resolving, even after countless days […]

July 1, 2016
0
Care for children , Health and Wellness , Stem Cell/Bone Marrow Transplant
Pediatric Transplant Patients Fight Cancer as Karate Kids

Jessica Madsen wasn’t sure if her daughter, Addy, was ready for karate, until the 4-year-old got the chance to take free lessons in the most surprising place: Her hospital room. Addy and other stem cell transplant recipients at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center are offered free martial arts […]

June 22, 2016
1
Care for children , Childhood , Coping with Cancer
Managing Behavior When Your Child Has Cancer

When you learn your child has cancer, the natural response is to do anything possible to make them happy. However, it is important to balance this desire to comfort with an understanding of what is in your son or daughter’s best interest. This is especially true when your child with […]

June 16, 2016
0
Brain Tumors , Podcasts , Research , Treatments and Procedures
Cancer Conversations Podcast – Episode #11: Advances in Pediatric Brain Tumor Treatment

Perhaps more than any other childhood cancer, pediatric brain tumor treatment is incredibly complex and takes a team effort to care for a patient. Doctors and researchers are working to not only improve medicines and treatment methods, they are also striving to improve quality of life and long-term side effects […]

June 10, 2016
0
Care for children , General interest
Red Sox All-Star Treats Young Patient to a Special Fenway Park Tour

By Sam Ogden It’s a few hours before game time and I’m walking backwards across Fenway Park’s outfield trying to keep ahead of Red Sox all-star Brock Holt. Like most photographers, I am used to this. Sometimes, walking backwards and shooting is the only way to get your shot. Today, […]

June 1, 2016
2
Brain Tumors , Care for children , Coping with Cancer
Coping with a Pediatric Brain Tumor Diagnosis: Tips for Families

Childhood cancer is never easy for a family, and pediatric brain tumors can present a particularly difficult set of medical, cognitive, and physical challenges. Patients may face hearing and vision loss, seizures, learning disabilities, and more. Long after the disease is gone, these issues – and related emotional and social […]

May 25, 2016
2
Care for children , Childhood , Jimmy Fund Clinic
How One Special ‘Play Lady’ Brings Joy to Kids with Cancer

“Play Lady” is not a major you’ll find at any college, and it’s not a requirement listed in any job description. But it’s the role that Lisa Scherber was born to fulfill. For more than 23 years, Scherber, officially the director of patient and family programs, and her small staff […]

May 12, 2016
1
Care for children , Leukemias , Stem Cell/Bone Marrow Transplant
Brother Donates Stem Cells to Sister Battling Leukemia

On September 24, 2015, in a sixth floor room at Boston Children’s Hospital, 5-year-old Logan Lesselroth pressed the button that started the transfer of his newly harvested blood stem cells to his 3-year-old sister, Gianna. “This,” Gianna told him, “is a gift from your body.” The path to that moment […]

April 25, 2016
1
Childhood , Podcasts , Treatments and Procedures
Cancer Conversations Podcast – Episode #7: Life After Childhood Cancer Treatment

While the end of active cancer treatment may bring some relief, it can also bring many questions and anxieties for young patients and their families. In this Cancer Conversations podcast episode, Lisa Diller, MD, chief medical officer of the Dana-Farber/Boston Children’s Cancer and Blood Disorders Center, discusses topics around fertility, […]

April 8, 2016
0
Care for children , Jimmy Fund Clinic
Think Pink: Annual ‘Pig Day’ Brings Smiles to Jimmy Fund Clinic

Bigger and pinker each year, the Dana-Farber/Boston Children’s Cancer and Blood Disorders Center’s annual Pig Party was held on March 4, marking the seventh celebration of a beloved tradition on National Pig Day. “The Pig Party was started by a patient more than eight years go, which is what makes […]

March 24, 2016
0
Care for children , Fertility Preservation
Cancer Treatment and Fertility: Acting Now to Have Children Later

This post originally appeared on Notes, Boston Children’s Hospital’s Clinical Health Blog. With over 75 percent of children diagnosed with cancer surviving into adulthood, more and more parents ask questions about the quality of life survivors can expect in the future, including: Will my child be able to have children down […]

March 16, 2016
0
Care for children , Neuroblastoma , Patient Stories, Pediatric
Young Neuroblastoma Patient and Family Make New Home at Dana-Farber/Boston Children’s

Bridgette West sparkled last fall in the “Fight Song” music video created by patients at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center. But before the 2-year-old became a social media standout with her dancing, she and her family faced challenges that went far beyond a cancer diagnosis. In the summer […]

March 11, 2016
0
Cancer Genetics , Care for children , Patient Stories, Pediatric
How Genetics Can Help Predict — and Sometimes Stop — Childhood Cancers

Amy Kindstedt hates cancer, but the 9-year-old is very thankful for one thing: Because genetic testing on her baby brother Hunter revealed he had the same genetic mutation she did, his cancer was caught much earlier –  possibly sparing him the same level of intense treatment she endured. The mapping […]

February 26, 2016
0
Care for adults , Care for children
From Massachusetts to Myanmar, Making Cancer Care a Global Effort

Each February 4, people everywhere are encouraged to take steps toward improving cancer awareness, prevention, and care on World Cancer Day. But for Dana-Farber staff working with colleagues in dozens of under-resourced countries, every day provides opportunities to help cancer patients worldwide. The Global Health Initiative at Dana-Farber/Boston Children’s Cancer […]

February 4, 2016
0
Cancer research , Care for children , Patient Stories, Pediatric , Precision Cancer Medicine
In Precision Medicine, Pioneering Young Patient Teaches Veteran Doctor

Allison Schablein seems an unlikely candidate to teach medicine to Mark Kieran. She’s an 8–year-old New Hampshire second grader who loves basketball, hip hop, acrobatic dancing and jewelry. He’s a pediatric neuro-oncologist with a PhD in molecular biology, not to mention decades of clinical and research experience. But teach Kieran, […]

January 28, 2016
0
Care for adults , Care for children , Coping with Cancer
New Friendships Form During Annual ‘Girls Weekend’

During Dana-Farber’s annual Girls Weekend, 25 girls ages 13-25 relaxed with a few days of shopping, makeovers and fun with new friends who understand what it’s like to have cancer as a young girl. The girls, who are all patients at Dana-Farber Boston Children’s Cancer and Blood Disorders Center, spent […]

January 27, 2016
0
Care for children , Treatments and Procedures
How Can We Make Personalized Therapy for Childhood Cancer a Reality?

This blog post originally appeared on Vector, Boston Children’s Hospital’s science and clinical innovation blog. By Tom Ulrich For some pediatric cancers, such as acute lymphoblastic leukemia, older forms of therapy — and older ways of defining who receives which therapy — have served well over the last few decades. But […]

January 7, 2016
0
Brain Tumors , Care for children , Patient Stories, Pediatric
One Year After Brain Tumor Surgery, 10-Year-Old Celebrates with Holiday Concert

A year ago, Aimee Fellows couldn’t imagine being back at Boston Children’s Hospital, awaiting the start of another violin concert featuring her daughter. Sophie, now 10 years old, is dressed this time in a frilly white blouse, black skirt and black dress shoes, her first pair of heels, albeit little […]

December 16, 2015
2
Care for adults , Care for children , Survivorship
Five Things Female Childhood Cancer Survivors Should Know

By Lisa Diller, MD While recent research shows improvement in long-term survival rates for childhood cancer patients, challenges remain for many of the almost 400,000 survivors in the United States. Among the long-term survivors are women facing gynecological health issues from the late effects of their treatment. There are a […]

November 10, 2015
0
Care for children , Patient Stories, Pediatric
Young Cancer Survivors Develop Lifelong Friendship

This post originally appeared on the Jimmy Fund Blog. In preparation for his first day of kindergarten, young Michael Sweetman visited his primary care physician. What they anticipated to be a routine checkup left Michael’s parents with more questions than answers. The very next day, the Sweetman’s visited Dana-Farber/Boston Children’s […]

October 22, 2015
0
Care for children , Jimmy Fund Clinic , Neuroblastoma , Patient Stories, Pediatric
Walking to Give ‘Hope for Nicholas’

Before Nicholas Cleary was diagnosed with stage IV neuroblastoma, his mother, Lisa, and aunt, Nicole, often talked about participating in the Boston Marathon® Jimmy Fund Walk presented by Hyundai and had contributed to other Walk teams in the past. So when Nicholas was diagnosed at 22-months old, Nicole and Lisa […]

September 24, 2015
0
Care for children , Childhood , Risk and Prevention
What Are the Most Common Symptoms of Childhood Cancer?

Childhood cancers are very rare; in fact, they make up less than 1 percent of all cancers diagnosed annually. Therefore, there are not any regular screening tests, unless a child has an increased risk due to genetic predisposition. As September marks Childhood Cancer Awareness Month, we’re taking a look at […]

September 7, 2015
0
Care for children , Caregiving , Childhood
How to Help Your Child Stay in School During Cancer Treatment

For kindergartners through teenagers, it’s back-to-school time. And while this annual rite of passage is often met with groans, for children undergoing cancer treatment, this can be a welcome change – provided you properly prepare. “School serves as a normalizing experience for kids with cancer, because it’s what their peer […]

September 2, 2015
0
Cancer research , Care for children , Childhood , Treatments and Procedures
Childhood Cancer and the Promise of Gene Therapy

At its most basic level, gene therapy is a powerful technique for correcting mistakes (called mutations) in DNA of human cells. Lately, the therapy has been gaining traction as a potentially life-saving treatment for children with an array of inherited rare blood and immune disorders, as well as certain cancers. […]

August 21, 2015
0
Cancer research , Care for children , Leukemias
Progress in the Treatment of Childhood Leukemia

Although treatments for childhood cancer patients are improving, cancer remains the leading cause of death by disease in children. Doctors and researchers are also focused on decreasing the toxicity of these treatments, which can have side effects years after a child finishes treatment. “The war against childhood cancer is hardly […]

August 13, 2015
1
Care for children , Rare Tumors
What Is AT/RT Cancer?

An atypical teratoid rhabdoid tumor (AT/RT) is a very rare and fast-growing tumor of the central nervous system. AT/RT is part of a larger group of malignant tumors called rhabdoid tumors, which are found outside the brain, in the kidneys, liver and other locations. AT/RT is most commonly found in the […]

August 6, 2015
0
Care for children , Patient Stories, Pediatric
You Are Not Alone: Supporting Siblings of Childhood Cancer Patients

When Phoebe Clark was 14-months old, she had little knowledge of what was happening to her brother, Harry. The 5-year-old had been diagnosed with a brain tumor and was undergoing multiple surgeries and radiation therapy at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center. But a few years later, when Phoebe […]

July 31, 2015
1
Cancer research
Solving Puzzles with Cigall Kadoch

Growing up in the San Francisco area, Cigall Kadoch, PhD, had a passion for puzzles. The daughter of a Moroccan-born, Israeli-raised father and a mother from Michigan who together developed an interior design business, Kadoch excelled in school and pretty much everything else. Above all, she loved to solve brain-teasers. […]

July 23, 2015
1
Care for children , Patient Stories, Pediatric
Isolation Patients Bond During Treatment

This post originally appeared on the Jimmy Fund blog. By Erica Equi “People would say ‘I feel bad for her’…I’m the same person I ever was, but better, stronger,” says 14-year-old Shannon Curley, reflecting on the time she spent in isolation treatment at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center. […]

July 22, 2015
0
Brain Tumors , Cancer research , Care for children , Treatments and Procedures
What’s New in Pediatric Brain Tumor Treatment?

As one of the most difficult cancers to treat, childhood brain tumors are the leading cause of cancer-related deaths in children under age 10. However, researchers are making more progress than ever before. “Over the last 10 years there has been a lot of excitement about new treatments for pediatric […]

July 2, 2015
3
Care for children , Childhood , Risk and Prevention
Do Childhood Cancer Survivors Have a Higher Risk of Developing Cancer Later in Life?

During cancer treatment, patients are often focused on just one thing: getting healthy. But for survivors, particularly of childhood cancer, it’s also important to learn about staying healthy after treatment, including prevention of new cancers that may occur later in life. We spoke with Lynda Vrooman, MD, associate medical director […]

June 24, 2015
0
Care for children , Caregiving
A Better Way to Care for Seriously Ill Children and Their Families

This post originally appeared on WBUR’s Cognoscenti blog.  By Joanne Wolfe, MD, MPH How is it that, in this day and age, a talented teenager treated for lymphoma emerges cured but with a life-threatening eating disorder? How is it that, in our nation’s capital, a boy dying at home from neuroblastoma experiences excruciating […]

June 17, 2015
0
Care for children , Patient Stories, Pediatric
Childhood Cancer Patients Mark Hospital Departure with Bubbles

Avery McAvoy’s last day in the hospital was a long-awaited milestone, but all the 2-year-old cared about was how it ended: with bubbles. After 12 months of treatment for neuroblastoma at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center, much of which was spent on the inpatient oncology and hematology unit […]

June 12, 2015
1
Care for children , Childhood , Melanoma , Risk and Prevention
Can Kids Get Melanoma? What Parents Need to Know

Although melanoma is more commonly found in adults, childhood and adolescent melanoma affects approximately 300 children in the U.S. each year. Thankfully, the incidence rate has started to decrease in recent years. While melanoma is the least common type of skin cancer in adults, skin cancer in children is almost always […]

May 27, 2015
0
Brain Tumors , Brain Tumors , Care for adults , Care for children
What Are the Differences Between Adult and Childhood Brain Tumors?

Brain tumors are relatively rare for people of any age, but they can occur in both children and adults. In fact, tumors of the spinal cord and brain are the second most common types of cancer in children, after leukemia. But there are some key differences between brain tumors that […]

May 22, 2015
2
General interest , Patient Stories, Pediatric
Young Patients’ Artwork Shows Creativity and Courage

The artist Henri Matisse once said, “creativity takes courage.” So does facing cancer as a child. Cancer, creativity and courage merged at a recent exhibit of art by patients of Dana-Farber/Boston Children’s Cancer and Blood Disorders Center. The artwork was created during the FACES (Feeling Accepted, Confident, Empowered and Strong) […]

May 14, 2015
2
Care for children , Childhood , Coping with Cancer
What Specialists Does a Child See When Diagnosed with Cancer?

Physicians tend to move quickly when a child is diagnosed with cancer. That’s because some of the most common types of childhood cancers (such as acute lymphoblastic leukemia (ALL), neuroblastoma, and brain tumors) can appear in a matter of days or weeks and progress rapidly. In such cases, prompt medical […]

April 3, 2015
0
Care for children , Jimmy Fund Clinic
Patients Celebrate Pig Day: A Jimmy Fund Clinic Tradition

This post originally appeared on The Jimmy Fund Blog.  By Erica Equi Seven years ago, Martha Young, program manager of Patient and Family Education at Dana-Farber’s Jimmy Fund Clinic, met a young patient who shared her same unique love for pigs. Together, they discovered the seldom-celebrated holiday, National Pig Day, and […]

March 10, 2015
0
Care for children , Survivorship
What You Need to Know for Life After Childhood Cancer Treatment

Completing cancer treatment can bring a range of emotions for pediatric patients and their families. While they may be relieved to finish chemotherapy or radiation, there is often anxiety about relapse, returning to “normal life,” or how to handle side effects that occur years down the road. “Finishing treatment can […]

February 26, 2015
0
Care for children , Coping with Cancer
Young Patients Create Global Artwork

Although childhood cancer is relatively rare in the United States, around 200,000 children and adolescents are diagnosed with cancer worldwide each year. Of those cases, approximately 80 percent occur in low- and middle-income countries, which average a 20 percent survival rate. The remaining 20 percent of diagnoses are in high-income […]

February 13, 2015
0
Brain Tumors , Cancer research , Treatments and Procedures
Discovering New Ways to Approach the Treatment of Rare Brain Tumors

Until a few years ago, there were only a handful of known survivors of atypical teratoid rhabdoid tumor (AT/RT), a rare cancer that affects the brain and central nervous system. When researchers at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center studied how these few survivors were treated, they found three […]

February 9, 2015
0
Care for children
Can Babies Be Born with Cancer?

For any parent, having a child with cancer is devastating. For the parents of Carrick Stafford Wood, it was even more so. Carrick was born with cancer, specifically acute myeloid leukemia (or AML). He spent the first six months of his life in the hospital before finally going home on […]

February 6, 2015
7
Coping with Cancer , General interest
Girls Fight Cancer with Glitz and Glamour

For 24 young girls, a recent getaway weekend replaced exam rooms with dressing rooms, hospital bracelets with stylish bangles, and MRI images with professional photographs. Every year, teenagers and young women ages 13-23, who are being treated at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center, go on a “Girls Weekend” […]

January 2, 2015
0
Blood Cancer , Cancer research , Research , Treatments and Procedures
The Latest Research and Treatment for Blood Cancers and Disorders

In the treatment of blood cancers and disorders, doctors and researchers are focusing their sights on the immune system and how to bolster its ability to fight off diseases like leukemia, lymphoma and multiple myeloma. “Understanding how you control the immune system is a big theme in treatment for these […]

December 26, 2014
0
Care for adults , Care for children , Integrative Therapies
Survivor Uses Reiki and ‘Button Therapy’ to Help Others Facing Cancer

As a girl, Paula Kaufman loved playing with the buttons that her grandmother, a seamstress, had in abundance. Later, while in treatment for stage III colorectal cancer at Dana-Farber Cancer Institute, Kaufman – then a mother of three in her late 30s – gained strength from a jar of buttons […]

December 19, 2014
1
Care for children , Coping with Cancer
How to Manage Family Life When Your Child Has Cancer

By Valerie Graf When our daughter, Ruby, was diagnosed with acute lymphoblastic leukemia (ALL) at one and a half years old, my husband and I were immediately transformed from working parents with two young children, to parental caregivers for a child with cancer. Between hospital stays, medications and appointments, there […]

December 15, 2014
1
Care for children , Patient Stories, Pediatric , Treatments and Procedures
New Therapy for ‘Bubble Boy’ Disease Gives Chilean Boy a Chance for a Healthy Life

Gabriel Solis is a typical 3-year-old. He likes puzzles and swimming and singing. He shakes off colds like other children. Gabriel, however, is not like other children. He has a functioning immune system thanks to an international gene therapy trial for “bubble boy” disease whose early success was reported recently […]

December 3, 2014
2
Care for children , Coping with Cancer
Room Makeovers Help Young Patients Feel at Home

Ana Karen Ventura may be a long way from home, but it sure doesn’t feel like it. Ventura, 11, is an inpatient at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center, but her hospital room at Boston Children’s Hospital looks more like the bedroom of any tween girl. There are posters […]

December 1, 2014
0
Care for children , General interest
How a Navy SEAL Veteran Helps Kids with Cancer

Adam LaReau has seen courage. The 34-year-old Navy SEAL combat veteran spent 11 years serving his country, and has seen courage in the actions of his fellow SEALS and through the children of fallen comrades who must learn to grow up without their fathers. Now living in Boston, LaReau has […]

November 11, 2014
3
Care for adults , Care for children , Patient Stories, Adult , Patient Stories, Pediatric
Advice from Mother and Son on Facing Cancer Together

Hearing the words “you have cancer” can be hard enough, but what is it like to hear them echoed for a loved one? Having two cancer patients in one family calls for extra strength from everyone involved. Karen Perry was undergoing treatment for ovarian cancer when she and her husband […]

September 15, 2014
0
Care for children , Patient Stories, Pediatric
Patient and Doctor Come Full Circle

Kate Franklin was 3½-years old in August 2000, when her mother brought her to the Boston Children’s Hospital emergency room because she was bruising easily and couldn’t seem to shake a strep throat. Loren Walensky, MD, PhD, had just started his fellowship in pediatric hematology/oncology in July, and that night […]

August 22, 2014
1
Care for adults , Care for children , Patient Stories, Adult
Mother and Son, Both Cancer Survivors, Share Their Story on Radio-Telethon

When Lisa Robert is interviewed at Fenway Park  for the WEEI/NESN Jimmy Fund Radio-Telethon presented by Arbella Insurance Foundation (Aug 19-20), her mind will no doubt drift back to 1976, when she was a 7-year-old leukemia patient at Dana-Farber and had the thrill of her life. She threw out the […]

August 20, 2014
0
Care for children
Documenting Illness: Images of Hope

In the midst of a serious illness, there are glimpses of a childhood intact: painting a ceramic ladybug, reading “Froggy Learns to Swim” before bed with siblings Drew, 10, Meghan, 8, and Daniel, 2, and joining friends in the outfield for a summer staple – a baseball game. These are […]

August 6, 2014
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Care for children , Coping with Cancer
What to Do if Your Child Relapses

Relapse is a word any cancer patient dreads, but for parents of children with cancer, fear of the cancer coming back can be acute. Yet, “a cure is possible for many patients whose cancer returns,” says Barbara Degar, MD.  “We approach the second experience with the same rigor we brought […]

July 25, 2014
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Care for children
Salvadoran Doctor Sets Sights on Changing Pediatric Oncology in Her Country

By Dr. Soad Fuentes Alabi Soad Fuentes Alabi, MD, visited Dana-Farber/Boston Children’s Cancer and Blood Disorders Center as part of the Global Health Initiative. She shares her experience with Insight readers. In El Salvador, where I come from, in a population of more than 5 million, there are almost 1.1 million […]

July 14, 2014
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