By Lisa Diller, MD While recent research shows improvement in long-term survival rates for childhood cancer patients, challenges remain for many of the almost 400,000 survivors in the United States. Among the long-term survivors are women facing gynecological health issues from the late effects of their treatment. There are a […]
This post originally appeared on the Jimmy Fund Blog. In preparation for his first day of kindergarten, young Michael Sweetman visited his primary care physician. What they anticipated to be a routine checkup left Michael’s parents with more questions than answers. The very next day, the Sweetman’s visited Dana-Farber/Boston Children’s […]
Before Nicholas Cleary was diagnosed with stage IV neuroblastoma, his mother, Lisa, and aunt, Nicole, often talked about participating in the Boston Marathon® Jimmy Fund Walk presented by Hyundai and had contributed to other Walk teams in the past. So when Nicholas was diagnosed at 22-months old, Nicole and Lisa […]
Childhood cancers are very rare; in fact, they make up less than 1 percent of all cancers diagnosed annually. Therefore, there are not any regular screening tests, unless a child has an increased risk due to genetic predisposition. As September marks Childhood Cancer Awareness Month, we’re taking a look at […]
For kindergartners through teenagers, it’s back-to-school time. And while this annual rite of passage is often met with groans, for children undergoing cancer treatment, this can be a welcome change – provided you properly prepare. “School serves as a normalizing experience for kids with cancer, because it’s what their peer […]
At its most basic level, gene therapy is a powerful technique for correcting mistakes (called mutations) in DNA of human cells. Lately, the therapy has been gaining traction as a potentially life-saving treatment for children with an array of inherited rare blood and immune disorders, as well as certain cancers. […]
Although treatments for childhood cancer patients are improving, cancer remains the leading cause of death by disease in children. Doctors and researchers are also focused on decreasing the toxicity of these treatments, which can have side effects years after a child finishes treatment. “The war against childhood cancer is hardly […]
An atypical teratoid rhabdoid tumor (AT/RT) is a very rare and fast-growing tumor of the central nervous system. AT/RT is part of a larger group of malignant tumors called rhabdoid tumors, which are found outside the brain, in the kidneys, liver and other locations. AT/RT is most commonly found in the […]
When Phoebe Clark was 14-months old, she had little knowledge of what was happening to her brother, Harry. The 5-year-old had been diagnosed with a brain tumor and was undergoing multiple surgeries and radiation therapy at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center. But a few years later, when Phoebe […]
Growing up in the San Francisco area, Cigall Kadoch, PhD, had a passion for puzzles. The daughter of a Moroccan-born, Israeli-raised father and a mother from Michigan who together developed an interior design business, Kadoch excelled in school and pretty much everything else. Above all, she loved to solve brain-teasers. […]
This post originally appeared on the Jimmy Fund blog. By Erica Equi “People would say ‘I feel bad for her’…I’m the same person I ever was, but better, stronger,” says 14-year-old Shannon Curley, reflecting on the time she spent in isolation treatment at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center. […]
As one of the most difficult cancers to treat, childhood brain tumors are the leading cause of cancer-related deaths in children under age 10. However, researchers are making more progress than ever before. “Over the last 10 years there has been a lot of excitement about new treatments for pediatric […]
During cancer treatment, patients are often focused on just one thing: getting healthy. But for survivors, particularly of childhood cancer, it’s also important to learn about staying healthy after treatment, including prevention of new cancers that may occur later in life. We spoke with Lynda Vrooman, MD, associate medical director […]
This post originally appeared on WBUR’s Cognoscenti blog. By Joanne Wolfe, MD, MPH How is it that, in this day and age, a talented teenager treated for lymphoma emerges cured but with a life-threatening eating disorder? How is it that, in our nation’s capital, a boy dying at home from neuroblastoma experiences excruciating […]
Avery McAvoy’s last day in the hospital was a long-awaited milestone, but all the 2-year-old cared about was how it ended: with bubbles. After 12 months of treatment for neuroblastoma at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center, much of which was spent on the inpatient oncology and hematology unit […]
Although melanoma is more commonly found in adults, childhood and adolescent melanoma affects approximately 300 children in the U.S. each year. Thankfully, the incidence rate has started to decrease in recent years. While melanoma is the least common type of skin cancer in adults, skin cancer in children is almost always […]
Brain tumors are relatively rare for people of any age, but they can occur in both children and adults. In fact, tumors of the spinal cord and brain are the second most common types of cancer in children, after leukemia. But there are some key differences between brain tumors that […]
The artist Henri Matisse once said, “creativity takes courage.” So does facing cancer as a child. Cancer, creativity and courage merged at a recent exhibit of art by patients of Dana-Farber/Boston Children’s Cancer and Blood Disorders Center. The artwork was created during the FACES (Feeling Accepted, Confident, Empowered and Strong) […]
Physicians tend to move quickly when a child is diagnosed with cancer. That’s because some of the most common types of childhood cancers (such as acute lymphoblastic leukemia (ALL), neuroblastoma, and brain tumors) can appear in a matter of days or weeks and progress rapidly. In such cases, prompt medical […]
This post originally appeared on The Jimmy Fund Blog. By Erica Equi Seven years ago, Martha Young, program manager of Patient and Family Education at Dana-Farber’s Jimmy Fund Clinic, met a young patient who shared her same unique love for pigs. Together, they discovered the seldom-celebrated holiday, National Pig Day, and […]
Completing cancer treatment can bring a range of emotions for pediatric patients and their families. While they may be relieved to finish chemotherapy or radiation, there is often anxiety about relapse, returning to “normal life,” or how to handle side effects that occur years down the road. “Finishing treatment can […]
Although childhood cancer is relatively rare in the United States, around 200,000 children and adolescents are diagnosed with cancer worldwide each year. Of those cases, approximately 80 percent occur in low- and middle-income countries, which average a 20 percent survival rate. The remaining 20 percent of diagnoses are in high-income […]
Until a few years ago, there were only a handful of known survivors of atypical teratoid rhabdoid tumor (AT/RT), a rare cancer that affects the brain and central nervous system. When researchers at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center studied how these few survivors were treated, they found three […]
For any parent, having a child with cancer is devastating. For the parents of Carrick Stafford Wood, it was even more so. Carrick was born with cancer, specifically acute myeloid leukemia (or AML). He spent the first six months of his life in the hospital before finally going home on […]
For 24 young girls, a recent getaway weekend replaced exam rooms with dressing rooms, hospital bracelets with stylish bangles, and MRI images with professional photographs. Every year, teenagers and young women ages 13-23, who are being treated at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center, go on a “Girls Weekend” […]
In the treatment of blood cancers and disorders, doctors and researchers are focusing their sights on the immune system and how to bolster its ability to fight off diseases like leukemia, lymphoma and multiple myeloma. “Understanding how you control the immune system is a big theme in treatment for these […]
As a girl, Paula Kaufman loved playing with the buttons that her grandmother, a seamstress, had in abundance. Later, while in treatment for stage III colorectal cancer at Dana-Farber Cancer Institute, Kaufman – then a mother of three in her late 30s – gained strength from a jar of buttons […]
By Valerie Graf When our daughter, Ruby, was diagnosed with acute lymphoblastic leukemia (ALL) at one and a half years old, my husband and I were immediately transformed from working parents with two young children, to parental caregivers for a child with cancer. Between hospital stays, medications and appointments, there […]
Gabriel Solis is a typical 3-year-old. He likes puzzles and swimming and singing. He shakes off colds like other children. Gabriel, however, is not like other children. He has a functioning immune system thanks to an international gene therapy trial for “bubble boy” disease whose early success was reported recently […]
Ana Karen Ventura may be a long way from home, but it sure doesn’t feel like it. Ventura, 11, is an inpatient at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center, but her hospital room at Boston Children’s Hospital looks more like the bedroom of any tween girl. There are posters […]
Adam LaReau has seen courage. The 34-year-old Navy SEAL combat veteran spent 11 years serving his country, and has seen courage in the actions of his fellow SEALS and through the children of fallen comrades who must learn to grow up without their fathers. Now living in Boston, LaReau has […]
Hearing the words “you have cancer” can be hard enough, but what is it like to hear them echoed for a loved one? Having two cancer patients in one family calls for extra strength from everyone involved. Karen Perry was undergoing treatment for ovarian cancer when she and her husband […]
Kate Franklin was 3½-years old in August 2000, when her mother brought her to the Boston Children’s Hospital emergency room because she was bruising easily and couldn’t seem to shake a strep throat. Loren Walensky, MD, PhD, had just started his fellowship in pediatric hematology/oncology in July, and that night […]
When Lisa Robert is interviewed at Fenway Park for the WEEI/NESN Jimmy Fund Radio-Telethon presented by Arbella Insurance Foundation (Aug 19-20), her mind will no doubt drift back to 1976, when she was a 7-year-old leukemia patient at Dana-Farber and had the thrill of her life. She threw out the […]
In the midst of a serious illness, there are glimpses of a childhood intact: painting a ceramic ladybug, reading “Froggy Learns to Swim” before bed with siblings Drew, 10, Meghan, 8, and Daniel, 2, and joining friends in the outfield for a summer staple – a baseball game. These are […]
Relapse is a word any cancer patient dreads, but for parents of children with cancer, fear of the cancer coming back can be acute. Yet, “a cure is possible for many patients whose cancer returns,” says Barbara Degar, MD. “We approach the second experience with the same rigor we brought […]
By Dr. Soad Fuentes Alabi Soad Fuentes Alabi, MD, visited Dana-Farber/Boston Children’s Cancer and Blood Disorders Center as part of the Global Health Initiative. She shares her experience with Insight readers. In El Salvador, where I come from, in a population of more than 5 million, there are almost 1.1 million […]
Boston Mayor Marty Walsh recently gave the keynote address at Dana-Farber’s Living Proof: Celebrating Survivorship event. He shared his experience as a child being treated for Burkitt’s lymphoma at Dana-Farber and Boston Children’s Hospital. Below are some excerpts from his speech: I was diagnosed with cancer at age 7. I went through treatment […]
The below interview with patient Fernando Morales was featured in the 2014 Spring/Summer issue of Dana-Farber’s Paths of Progress, now available as a free app for iPad. My cancer diagnosis came right smack in the middle of high school. I was diagnosed with Ewing sarcoma in March 2011, my sophomore year. I […]
Jessica Tierney never thought she’d experience a harder moment than learning she had cancer at age 15 – until her 7-year-old daughter, Emma, was diagnosed with acute lymphocytic leukemia (ALL) last October. Emma is undergoing treatment at Boston Children’s Hospital and Dana-Farber’s Jimmy Fund Clinic, just as Jessica did […]
When Dana-Farber Cancer Institute was founded as the Children’s Cancer Research Foundation in 1947, childhood cancer was almost universally fatal. In the years since, as Dana-Farber’s researchers and clinicians have helped dramatically raise survival rates for many pediatric and adult cancers, its campus in Boston’s Longwood Medical Area has grown […]
Every year, about 4,700 children in the United States are diagnosed with brain cancer – making it the most common solid tumor in children. It is also one of the most difficult cancers to treat. Brain tumors are the leading cause of cancer-related deaths in children under age 10 and […]
A group of influential theater owners known as the Variety Club of New England were touring Boston Children’s Hospital in 1947 when they happened upon a tiny basement laboratory. Here, Sidney Farber, MD, was conducting research that would lead to the first remissions in pediatric leukemia. The men were so impressed […]
When 15-year-old Karina Moreira sat down with Brazilian model Gisele Bundchen in December 2013, the two traded beauty tips, talked fashion, and took turns applying makeup. They spoke in their native Portuguese and laughed with family and friends. The experience, Moreira says, one that she will remember for the rest […]
One of the most difficult aspects of having cancer is deciding who to tell and when. For young adults who may be attending college, maintaining an active social life, or starting a family, these questions are especially critical. Karen Fasciano, PsyD, and her colleagues in the Young Adult Program at […]
By Tom Ulrich One of the hot trends in drug discovery could be called drug re-discovery: finding new uses for drugs that have already received FDA approval for a different indication. It’s an approach that allows researchers and clinicians to rapidly test potential treatments for rare or difficult-to-treat conditions. Because […]
By Tom Ulrich Last month, the American Cancer Society (ACS) released “Cancer Statistics, 2014,” their annual estimate of new cancers diagnoses and deaths for the year ahead. The report was heavily focused on adult malignancies—not surprisingly, given that the number of adult cancer patients in the nation is orders of magnitudes greater […]
Joanne Wolfe, MD, MPH, founded the Pediatric Advanced Care Team (PACT) in 1997 to help ensure children who are living with life-threatening diseases like cancer, and their families, enjoy the best quality of life. The program, a part of Dana-Farber/Boston Children’s Cancer and Blood Disorders Center and the Department of […]
By Jordan Leandre I don’t remember a lot about my treatment process – after all, I was only about 2 1/2. Here is some stuff that I do remember.
As 2013 comes to a close, we’re looking back at some of our favorite Insight posts from the last year. From inspiring patient stories to important research, here is our top 10 list:
By Julia Pettengill Our daughter Sophie was diagnosed with leukemia at age 2½, and received two years of care at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center. While I felt tremendous joy and relief when she completed treatment, I also found the experience traumatic.
This Thanksgiving, as we continue to look for better ways to care for our patients today, and in the future, we also look back and give thanks to the foresight of our founder, Sidney Farber, MD.
September is Childhood Cancer Awareness Month. We asked Lisa Diller, MD, chief medical officer at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center, to answer these important questions. What signs might lead a child’s pediatrician to suspect cancer? Cancer is very diverse, and diagnosis is further complicated because many signs and symptoms—like fever, […]
Jack Robinson is a special kid. Diagnosed with bone cancer at the age of 11, he tackled treatment if not with a smile on his face, then with a joke on his lips… or more accurately, on paper. The Massachusetts resident compiled and edited a joke book called, “Make ‘em […]
By Saul Wisnia Rayquan “Ray” Fregeau’s smile lights up a room, even after five days of chemotherapy. His upbeat personality infuses his poetry, but until recently the 17-year-old patient at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center had trouble putting into words what he’s gone through since his February cancer diagnosis, […]
By Saul Wisnia As the baseball world gathers at Citi Field in New York City for tonight’s All-Star Game, here’s a look back at 60 years of all-star partnership between the Boston Red Sox and the Jimmy Fund – which supports cancer research and care at Boston’s Dana-Farber Cancer Institute.
By Melanie Graham During a child’s cancer therapy and recovery process, insomnia can often be viewed as only a side effect in the scope of treatment-related symptoms. However, there are many physical and psychological implications that develop when a child does not sleep well, says Eric Zhou, PhD, a clinical […]
By Caroline Rider For many families with children, summer is a time for vacations, outings, and fun. However, a summer vacation when your child has cancer can seem out of the question. But sometimes, a summer getaway is just what the doctor ordered.
By Stephen Sallan, MD Today, three quarters or more of all childhood cancer patients will be cured of their disease, a higher percentage than ever before. And the numbers will only get better as we learn more about the biology of childhood cancers and develop new ways of treating them.
by Naomi Funkhouser April 2011 was an auspicious month for Hilary Hall. The start of spring marked 15 years of her being cancer-free, as well as the anniversary of her bone marrow transplant in April 1996 at age 12 for acute myelogenous leukemia. It also marked the first time Hall […]
by Saul Wisnia Like many New Englanders, Fernando Morales can’t wait for Opening Day and the start of the baseball season. And, even if his favorite Boston Red Sox aren’t doing well, this 18-year-old high school senior from Norwood, Mass., says he’ll never waver in his devotion. He has good […]
Having cancer as a teen or young adult can throw your life off track. Just when you’re learning to drive, planning your prom, or playing your favorite sport, you find yourself sick, bald, and in the hospital. And you worry about your appearance – especially if you’re a girl.
By Jane Roper When our five-year-old daughter was diagnosed with leukemia (ALL) last summer, our world was turned upside down. Extended hospital stays, twice weekly clinic visits, the side effects of chemo and the constant possibility of unexpected hospital admissions mean stress and exhaustion for all of us. And looming […]
For David Williams, MD, the field of pediatrics offers two great attractions. “It is wonderful because of the kinds of patients you take care of,” he says. “But also because of the personalities of pediatricians – in pediatrics you find very compassionate and caring people.” Williams embodies that compassion and […]
Asking an editor to pick his or her favorite story is like asking a kid to pick out just one piece of candy. It’s a tough task. Luckily, we’re not bound by the one-piece rule. So here are a few stories that you might have missed, or might want to […]
by Sara Dickison Taylor You wouldn’t be able to tell just by meeting them, but high-school student Molly Callahan and Dana-Farber/Boston Children’s Cancer and Blood Disorders Center nurse Lindsay Roache, RN, have a few things in common: They’ve survived cancer, and they’re committed to helping others.
Helping a loved one face cancer is never easy, but the challenge is especially daunting when the patient is your own child. Our clinicians at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center work with pediatric cancer patients and their families every day. Lisa Diller, MD, Anna Muriel, MD, and Jorge […]
By Mark Kieran, MD, PhD In 2006, a group of Egyptian doctors arrived at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center to seek our help. Could we teach them how to care for the rising numbers of children with cancer, in their own country?
Steven Clifford is an 18-year-old osteosarcoma survivor. A Boston native, he starts college at the University of California, San Diego this month. This is his story. Life is made up of many difficult decisions. However, imagine my surprise when I had to make a tough and potentially life changing decision […]
For years, researchers have sought an avenue to deliver chemotherapy directly to retinoblastoma tumors – cancers of the retina of the eye, which primarily affect children under age 5. It turns out that the body itself offers just such a route.
As a cancer researcher, Kimberly Stegmaier, MD, says her chosen profession offers “the mystery and excitement of discovery.” And she says the same is true of her passion outside the laboratory: dance. “It’s a huge hook for me,” she says. Both in scientific research and in working on a dance […]
Although swollen lymph nodes (also known as swollen glands) are usually a sign of an infection or inflammation, they can, very infrequently, be a sign of cancer or a rare disorder. Rachael Grace, MD, and Christopher Weldon, MD, PhD, co-directors of Dana-Farber/Boston Children’s Cancer and Blood Disorders Center’s Node Assessment […]
Every Sunday, the Cutter family holds a Chemofeast. The door to their home is open to any and all who wish to attend. It’s a day full of food, beverages, and a lot of laughter, and 15-year-old Blake Cutter gets to choose the menu. Then on Monday, his mother, Lois, […]
Maddie Dillon, 17, did not really understand what cancer was when she was diagnosed at age 8. With the help of Dana-Farber’s Jimmy Fund Clinic, she beat her leukemia, but only briefly. Six months later it came back, and she went through more treatment.
Henry Fenollosa’s problems began before he was born, when he was diagnosed with neuroblastoma. His infancy was was spent largely at Dana-Farber’s Jimmy Fund Clinic, where he received treatment for his disease with his family looking on. Today, Henry’s an active seven-year-old, who loves to show off his lacrosse stickhandling […]
In celebration of Living Proof week, Insight honors cancer survivors with daily posts about survivorship. To look at 9-year-old baseball player and Lego champion Charlie Rider, you’d never guess he’d had cancer for nearly half his life.
In celebration of Living Proof week, Insight honors cancer survivors with daily posts about survivorship. When Dana-Farber launched its David B. Perini, Jr. Quality of Life Clinic nearly 20 years ago, it was one of the nation’s first programs dedicated to helping childhood cancer survivors. From the beginning, the pediatric survivorship clinic has been guided […]
With the pitter patter of small feet, Phil makes his way through the halls of Boston Children’s Hospital. He walks with a purpose, boarding the elevator that takes him to the oncology floor for his next appointment. Phil is a new face in 6 North, the oncology unit at Dana-Farber/Boston […]
Hilary Olson had no reason to suspect that her daughter Hailey might have a brain tumor. “Her smile was starting to droop a little, and one of her eyes was a little jumpy,” says the 6-year-old’s mother. “We took her to see a neurologist, and he thought she might have […]
No one would choose the way Glen Jusczyk and Greg Kelly became friends: at the bedsides of their little girls with cancer. Yet these extraordinary circumstances created not just a friendship, but a desire to give back to the place providing their children’s care. On April 16, these dads, who […]