By Jordan Leandre
I don’t remember a lot about my treatment process – after all, I was only about 2 1/2. Here is some stuff that I do remember.
ChildhoodCancer
Top 10 Insight Stories from 2013
As 2013 comes to a close, we’re looking back at some of our favorite Insight posts from the last year. From inspiring patient stories to important research, here is our top 10 list:
Questions to Ask When Your Child Finishes Cancer Treatment
By Julia Pettengill
Our daughter Sophie was diagnosed with leukemia at age 2½, and received two years of care at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center. While I felt tremendous joy and relief when she completed treatment, I also found the experience traumatic.
Photo History: The Legacy of Dr. Sidney Farber
This Thanksgiving, as we continue to look for better ways to care for our patients today, and in the future, we also look back and give thanks to the foresight of our founder, Sidney Farber, MD.
Six Important Questions About Childhood Cancer
September is Childhood Cancer Awareness Month. We asked Lisa Diller, MD, chief medical officer at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center, to answer these important questions.
What signs might lead a child’s pediatrician to suspect cancer?
Cancer is very diverse, and diagnosis is further complicated because many signs and symptoms—like fever, bruising and headaches—are normal in healthy children.
Making ‘Em Laugh: 12-year-old Cancer Patient Compiles Joke Book
Jack Robinson is a special kid.
Diagnosed with bone cancer at the age of 11, he tackled treatment if not with a smile on his face, then with a joke on his lips… or more accurately, on paper. The Massachusetts resident compiled and edited a joke book called, “Make ‘em Laugh” to help himself, and other kids who were sick. It was drafted from hundreds of jokes, riddles, and drawings submitted by Robinson and other kids cared for in the Jimmy Fund Clinic and the inpatient oncology floors at Boston Children’s Hospital.
Teen Patient Uses Images to Document Cancer Treatment
Rayquan “Ray” Fregeau’s smile lights up a room, even after five days of chemotherapy. His upbeat personality infuses his poetry, but until recently the 17-year-old patient at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center had trouble putting into words what he’s gone through since his February cancer diagnosis, especially when it came to telling friends about his experience.
The Red Sox and the Jimmy Fund: An All-Star Team
As the baseball world gathers at Citi Field in New York City for tonight’s All-Star Game, here’s a look back at 60 years of all-star partnership between the Boston Red Sox and the Jimmy Fund – which supports cancer research and care at Boston’s Dana-Farber Cancer Institute.
Swim Across America Events Help Fund Research for Young Cancer Survivors
During a child’s cancer therapy and recovery process, insomnia can often be viewed as only a side effect in the scope of treatment-related symptoms.
However, there are many physical and psychological implications that develop when a child does not sleep well, says Eric Zhou, PhD, a clinical psychology fellow in Dana-Farber’s David B. Perini, Jr. Quality of Life Clinic.
Zhou, who is also a research fellow at Harvard Medical School, has spent the last year studying treatments for insomnia in adolescent and young adult cancer survivors through Dana-Farber’s Swim Across America Fellowship.
Summer Fun for Kids with Cancer
By Caroline Rider
For many families with children, summer is a time for vacations, outings, and fun. However, a summer vacation when your child has cancer can seem out of the question. But sometimes, a summer getaway is just what the doctor ordered.
Five Reasons for Optimism about Pediatric Cancer Care and Research
Today, three quarters or more of all childhood cancer patients will be cured of their disease, a higher percentage than ever before. And the numbers will only get better as we learn more about the biology of childhood cancers and develop new ways of treating them.
A Cancer Survivor Runs for Her Miracle Children
April 2011 was an auspicious month for Hilary Hall. The start of spring marked 15 years of her being cancer-free, as well as the anniversary of her bone marrow transplant in April 1996 at age 12 for acute myelogenous leukemia. It also marked the first time Hall would lace up her running shoes for the Boston Marathon.
“When I heard about the marathon in October 2010, I instantly knew that this was how I would celebrate,” she says.
The Red Sox and the Jimmy Fund: A Winning Team for 60 Years
Like many New Englanders, Fernando Morales can’t wait for Opening Day and the start of the baseball season. And, even if his favorite Boston Red Sox aren’t doing well, this 18-year-old high school senior from Norwood, Mass., says he’ll never waver in his devotion.
He has good reason for his loyalty. As a patient at Dana-Farber Cancer Institute’s Jimmy Fund Clinic since April 2011, Morales has endured chemotherapy, shots, hair loss, and more for treatment of Ewing sarcoma, a tumor of the bone and soft tissue. He’s had to quit playing soccer and running track, but he’s still getting his baseball fix thanks to the relationship between the Red Sox and the Jimmy Fund of Dana-Farber.
You Have Cancer. You Are Beautiful.
Having cancer as a teen or young adult can throw your life off track. Just when you’re learning to drive, planning your prom, or playing your favorite sport, you find yourself sick, bald, and in the hospital. And you worry about your appearance – especially if you’re a girl.
Five Ways to Support Families Dealing with Childhood Cancer
When our five-year-old daughter was diagnosed with leukemia (ALL) last summer, our world was turned upside down. Extended hospital stays, twice weekly clinic visits, the side effects of chemo and the constant possibility of unexpected hospital admissions mean stress and exhaustion for all of us — and looming in the background of it all is … Read more
Pediatrics and Gene Therapy: A Conversation with David Williams
For David Williams, MD, the field of pediatrics offers two great attractions.
“It is wonderful because of the kinds of patients you take care of,” he says. “But also because of the personalities of pediatricians – in pediatrics you find very compassionate and caring people.” Williams embodies that compassion and combines it with a drive to solve the medical problems of young patients, often with the use of cutting-edge technology.
Best of Insight: Our 10 Favorite Posts from 2012
Asking an editor to pick his or her favorite story is like asking a kid to pick out just one piece of candy. It’s a tough task. Luckily, we’re not bound by the one-piece rule. So here are a few stories that you might have missed, or might want to view again.
Full Circle: The Journey from Patient to Caregiver
You wouldn’t be able to tell just by meeting them, but high-school student Molly Callahan and Dana-Farber/Boston Children’s Cancer and Blood Disorders Center nurse Lindsay Roache, RN, have a few things in common: They’ve survived cancer, and they’re committed to helping others.
Nine Tips for Talking To Kids About Cancer
Helping a loved one face cancer is never easy, but the challenge is especially daunting when the patient is your own child. Our clinicians at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center work with pediatric cancer patients and their families every day. Lisa Diller, MD, Anna Muriel, MD, and Jorge Fernandez, LCSW – offer these 9 tips for talking with your children about their illness.
Faces of Childhood Cancer: Steven Clifford
Steven Clifford is an 18-year-old osteosarcoma survivor. A Boston native, he starts college at the University of California, San Diego this month. This is his story.
Life is made up of many difficult decisions. However, imagine my surprise when I had to make a tough and potentially life changing decision at the young age of 11. Up until then, I just was an average child who couldn’t wait to get out of school to play any sport imaginable with his friends.