By Christopher Lathan, MD, MS, MPH When cancer strikes someone who is already facing other hardships – for example, he or she is poor, alone, or has a language barrier – the experience is very different than it might be for someone who has more resources and support. The Cancer Care Equity Program at Dana-Farber, which is funded by the Kraft Family Foundation, helps vulnerable patients in the community obtain the cancer care they might not receive otherwise.
Each year, Dana-Farber patients join clinicians, staff, and the Boston Red Sox to share their stories of inspiration and their belief in the research advances at Dana-Farber during the WEEI/NESN Jimmy Fund Radio-Telethon at Fenway Park. This year, nearly 100 patients, including Rayquan Fregeau, who used art and resources from the Betty Ann Blum and Marjorie Blum Pediatric Resource Room to cope with his diagnosis; Debbie Whitmore, a mother of five who hopes for a cure for future generations; and Jack Robinson, who compiled a joke book to help other children during their treatment, shared their experiences battling cancer. Stephen …
By Catherine MacLean “Why is this coming up now?” “It’s been 10 years. I should be over this already.” “Why is this happening to me? All of the other survivors I know seem fine.” These thoughts preoccupied me during the transition from high school to college. It had been 10 years since my successful bone marrow transplant for aplastic anemia and my health was excellent.
By Melanie Graham During a child’s cancer therapy and recovery process, insomnia can often be viewed as only a side effect in the scope of treatment-related symptoms. However, there are many physical and psychological implications that develop when a child does not sleep well, says Eric Zhou, PhD, a clinical psychology fellow in Dana-Farber’s David B. Perini, Jr. Quality of Life Clinic. Zhou, who is also a research fellow at Harvard Medical School, has spent the last year studying treatments for insomnia in adolescent and young adult cancer survivors through Dana-Farber’s Swim Across America Fellowship.
Dana-Farber celebrates cancer survivorship in June with Living Proof, an annual series of events that includes workshops and programs as well as a keynote reception on June 20. The end of treatment is an important milestone for any cancer patient, but it can also be a time of anxiety. In fact, some new cancer survivors say leaving the routine of regular visits with their health care team can be downright scary. That’s why Dana-Farber and other leading cancer centers offer programs to help survivors transition from active treatment to living well beyond cancer.
by Saul Wisnia Like many New Englanders, Fernando Morales can’t wait for Opening Day and the start of the baseball season. And, even if his favorite Boston Red Sox aren’t doing well, this 18-year-old high school senior from Norwood, Mass., says he’ll never waver in his devotion. He has good reason for his loyalty. As a patient at Dana-Farber Cancer Institute’s Jimmy Fund Clinic since April 2011, Morales has endured chemotherapy, shots, hair loss, and more for treatment of Ewing sarcoma, a tumor of the bone and soft tissue. He’s had to quit playing soccer and running track, but he’s …
by Sara Dickison Taylor You wouldn’t be able to tell just by meeting them, but high-school student Molly Callahan and Dana-Farber/Boston Children’s Cancer and Blood Disorders Center nurse Lindsay Roache, RN, have a few things in common: They’ve survived cancer, and they’re committed to helping others.