Wendy Akeson is passionate about both running and donating platelets. Never has she felt such a strong connection between these two roles as she did this year.
Four minutes after completing her 10th consecutive Boston Marathon, Akeson heard the explosions that will forever link this year’s marathon with tragedy – and then saw people running toward her from the finish line she had just crossed.
By Eric Schuller
If you recently learned you have cancer, donating a sample of your cancer tissue to science is probably the last thing on your mind. But it’s a topic that you might discuss with someone on your health care team, because cancer researchers often rely on donated tissue samples to help them better understand what causes cancer and which treatments are most effective.
Having cancer can be isolating. Even if you’re surrounded by friends and loved ones, you may feel that no one understands what you’re going through. That’s why it can be helpful to join a support group attended by people who face a similar diagnosis, or are in your peer group. Here are some of the … Read more
For many cancer patients, the Internet serves as a vital tool used to stay in touch with loved ones during treatment, find comfort and advice from other patients and caregivers, or even research clinical trials. But using the Web to learn more about a cancer diagnosis or potential treatments requires a healthy dose of caution. For all of its many benefits, the Internet used unwisely can lead to scams and misinformation, as well.
So what’s the best way to separate fact from fiction on the Web? We asked experts in Dana-Farber’s Eleanor and Maxwell Blum Patient and Family Resource Center, for some tips to consider when researching cancer information online.
Just as Dana-Farber tailors treatment and support to children and young adults, the Older Adult Leukemia Program ̶ a specialized, clinical service ̶ addresses the other end of the spectrum: adults who are 65 and older, and have blood cancer such as leukemia or other bone marrow disorders.
Like many New Englanders, Fernando Morales can’t wait for Opening Day and the start of the baseball season. And, even if his favorite Boston Red Sox aren’t doing well, this 18-year-old high school senior from Norwood, Mass., says he’ll never waver in his devotion.
He has good reason for his loyalty. As a patient at Dana-Farber Cancer Institute’s Jimmy Fund Clinic since April 2011, Morales has endured chemotherapy, shots, hair loss, and more for treatment of Ewing sarcoma, a tumor of the bone and soft tissue. He’s had to quit playing soccer and running track, but he’s still getting his baseball fix thanks to the relationship between the Red Sox and the Jimmy Fund of Dana-Farber.
Having cancer as a teen or young adult can throw your life off track. Just when you’re learning to drive, planning your prom, or playing your favorite sport, you find yourself sick, bald, and in the hospital. And you worry about your appearance – especially if you’re a girl.
When our five-year-old daughter was diagnosed with leukemia (ALL) last summer, our world was turned upside down. Extended hospital stays, twice weekly clinic visits, the side effects of chemo and the constant possibility of unexpected hospital admissions mean stress and exhaustion for all of us — and looming in the background of it all is … Read more
Getting cancer can be particularly difficult for young adults – classified by the National Cancer Institute as ages 15 to 39. Because the disease is relatively rare in this age group, these younger patients may find themselves isolated – too old to fit easily into childhood cancer programs, and too young to find peers in adult clinics (most people diagnosed with cancer are 55 or older).
But the outlook is getting brighter.
A cancer diagnosis can put even the most organized person into a state of disarray. That’s not surprising, because it’s normal to feel overwhelmed and out of control in the face of such stress. But there are steps you can take to ensure you’re best prepared for the road ahead. Don’t forget to: Slow down … Read more
by Richard Saltus
Cells are like young children – they need a lot of guidance on how to behave. Your body’s cells are constantly getting that help – in the form of hormones, growth factors, and other chemicals telling them when to rest, grow, duplicate their DNA, divide, or even self-destruct.
These commands are relayed from the cell’s surface to its nucleus by molecular pathways, also called signaling pathways, which are a series of interacting proteins that relay cellular messages, much as cell phone towers relay phone calls. When the commands reach the cell nucleus, they activate or turn off genes to determine how the cell responds.
By Jim Donovan
In 2002 my good friend died of cancer. He and I were at MIT together as undergraduates, where we shared a lot of great memories and developed a long-lasting friendship. Like most of us who walk with a loved one through a life-threatening disease, I experienced feelings of anger, sadness, and fear. I don’t have a medical background, and honestly didn’t understand some of the terminology that doctors used during the diagnosis and the treatment. This made me feel helpless. But I wanted to help. So I discovered other ways I could support my friend.
First and foremost, I tried to keep him positive and make him as comfortable as possible. I brought him the food he liked, watched movies with him, and stayed up late talking with him when he was sad and discouraged. I also tried to bring humor to his day because, as everyone knows, laughter is powerful medicine. I spent as much time with him as I could, depending on his needs and those of his family, and made sure to plan things for the future that he could look forward to. I reassured his wife that I would do anything to help her so his most important source of strength and comfort felt supported, too. And, so he would feel as informed as possible, I researched other patients in similar positions with the same cancer, and shared what I learned about their experiences.
Following the sudden shock and abruptness of a cancer diagnosis, a person’s initial instinct may be to begin treatment right away. However, in some instances, it can be beneficial to get a second opinion first. These secondary consultations — which usually happen with an oncologist (or cancer doctor) at a different hospital than the one … Read more
By Melissa Cochran, MS, NP
For my cancer patients, a stem cell transplant is a life-changing event. They cannot work outside the home for a full year; visits to Dana-Farber are about the only excursions allowed. No more trips to the grocery store or dinners at a favorite restaurant.
In our clinic, we have a solid team in place – physicians, nurses, social workers, and nurse practitioners like myself – working together to support and anticipate each cancer patient’s needs along the way. As you can imagine, significant physical and emotional issues can arise for our patients.
By Michael Buller Whenever I’ve met people with cancer, I’ve been at a loss for what to say and which questions to ask. Now, as a cancer patient, I realize the irony. Looking back, whatever I said ranged from ignorant to unhelpful. Or, I would just say nothing. I would talk about anything and everything else, … Read more
Not long ago, doctors were often skeptical when cancer patients who had undergone chemotherapy complained that they were mentally foggy; unable to plan a week’s worth of meals or organize their finances as they could before. Patients called this side effect “chemobrain” and were frustrated by the lack of recognition – or suggested remedies – from their physicians.
Bob Hurkett doesn’t know what became of the little girl he first heard of in 1998, but he thinks about her often. She was 5 years old and needed a bone marrow transplant. Hurkett and his wife, Jane, attended a donor drive hosted by the girl’s family where their blood was drawn and tested as a possible match.
Neither was a match but Hurkett felt compelled to help. When he learned about the need for platelets – which are vitally important for cancer patients as a means of replacing their own depleted supplies, as well as for trauma victims and other critically ill adults and children –he volunteered to donate.
When Gov. Deval Patrick signed an oral chemotherapy parity bill into law on January 5, Massachusetts joined more than 20 states requiring health plans to cover oral cancer pills at a rate no less favorable than standard intravenous (IV) chemotherapy. The new law tells insurers that they cannot require higher patient costs for oral chemotherapy, and it helps ensure that all forms of chemotherapy are accessible and affordable to Massachusetts cancer patients.
“How soon can I start exercising after I start cancer treatment?” It’s a question I hear often from patients who visit me for a fitness consult or class at Dana-Farber.
My answer? “As soon as possible.”
While it may seem counterintuitive, exercise offers key benefits for cancer patients – even those undergoing difficult treatments. In fact, it’s one of the best ways to give yourself an extra boost during and after cancer treatment.
Grapefruits are a good source of fiber, vitamin C, potassium, and other phytonutrients, but if you’re taking certain prescription or over-the-counter (OTC) medications, you may need to choose other fruits.