Care for adults
Five Tips for Facing a Rare Cancer

By Becky Sail At age 22, I was diagnosed with a rare sarcoma called aggressive angiomyxoma – say that 10 times fast. When my parents and I got the news we asked the doctor, “Is it cancer?” He responded, “That is a complicated question.” He said he had never seen […]

August 24, 2015
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Care for adults
What Is Waldenström’s Macroglobulinemia?

Waldenström’s macroglobulinemia (Waldenström’s) is a slow-growing type of non-Hodgkin lymphoma marked by abnormal levels of an antibody called macroglobulin (IgM). Also known as lymphoplasmacytic lymphoma, Waldenström’s mostly forms in the bone marrow and can hinder the growth of normal blood cells, which can lead to anemia as well as a […]

March 20, 2015
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Cancer research , Care for adults
Doctor/patient team fight rare cancer

By Karen Lee Sobol I recently learned that the word “patient” shares a Latin root with the word “compassion.” Any one of us can become a patient, for a number of reasons. For me, hearing a diagnosis of Waldenström’s macroglobulinemia flipped a switch. I became a patient in a big way.

August 2, 2012
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