Cancer Won’t Stop Me, And Neither Will COVID-19

By Ben Lepper

Most people my age look at COVID-19 as a burden on their everyday lives of seeing friends, hanging out, and going to college. I see it differently.   

As an active cancer patient being treated for T-cell acute lymphoblastic leukemia (ALL), I am immunocompromised. This puts me at especially high risk for contracting COVID-19, and my family must be even more careful than others about where we go and what we bring into our home.

The only time any of us really leaves the house is for my appointments at the Jimmy Fund Clinic, the oncology clinic of Dana-Farber/Boston Children’s Cancer and Blood Disorders Center. That’s okay. After all I’ve been through the last year, I’m not letting COVID-19 keep me from feeling optimistic about my future.

Ben Lepper with Lara Wahlster, MD, PhD, in the Jimmy Fund Clinic, April 2020.

How it all started

I started having chest pains in the winter of 2019, when I was finishing up my senior year of high school. It wasn’t too bad at first, but one night I woke up with terrible pain in my lymph nodes as well. My parents took me to the doctor, and then to the hospital. That same day, March 15, I was diagnosed with T-cell ALL.

For nearly a month, I lived at Boston Children’s Hospital at the start of my two-year treatment protocol. I made it home in time for prom and graduation and was accepted at the College of the Holy Cross for the fall. But because the first year of my cancer treatment required me to be at the clinic at least once every two weeks, my family talked with my oncologist, Kimberly Davies, MD, and made a decision: I’d take a gap year, get through the hardest part of treatment, and then start at Holy Cross in Fall 2020.

The next nine months were tough. My treatment days at the Jimmy Fund Clinic were Fridays, so I felt lousy every weekend ­and a lot of other days, too. Because my friends were away at college, there was nobody to hang out with, and I didn’t feel strong enough to go out anyway. It wasn’t until this January that I finally started wanting to see people again.

Then came the pandemic.

Ben (right) with friends at prom in 2019.

Playing the waiting game

Early on, I was like most kids my age, and didn’t really worry about COVID-19. There were so few recorded cases in the U.S., and my first big event since graduation was coming up: a trip to Florida and Boston Red Sox spring training with other teen cancer patients from Dana-Farber/Boston Children’s. It was only when the trip was canceled, and my younger sister’s school closed, that I started realizing things were more serious than we originally thought.

These days, when I see photos on Instagram and stories on Snapchat of couples going on dates, groups gathering, or people protesting the stay-at-home orders, it makes me furious. They are not just endangering my life, but also the lives of everybody else treated at Dana-Farber — along with the elderly and others with pre-existing health conditions.

And yet, even though I am mad whenever I see people refusing to socially distance, I also get a bit jealous. If I wasn’t going through treatment right now, I still wouldn’t be seeing people. But it would be nice to have the option, no matter how ill-advised.

At least there’s texting and Zoom so I can keep in touch with my friends and extended family. And more than anything, I’m looking forward to starting at Holy Cross in the fall — whether on campus or online. Everyone I know there had a great freshman year before it ended prematurely, and I want to experience that myself however it’s possible.

I’m optimistic that the worst of the COVID-19 pandemic will end soon, and the second it is safe to do, I’m going to go out and see as many people as humanly possible — but not a minute before.

12 thoughts on “Cancer Won’t Stop Me, And Neither Will COVID-19”

  1. Continue to battle, be safe and be well! And good luck at HC! AML patient and parent of 2017 Holy Cross grad…congrats on a great choice and good luck with freshman year!!!

  2. You are an inspiration to many, and your name will be on billboards before you know it. You have been fighting for so long, and through it all, I’ve seen someone so strong, someone who won’t back down, someone who does NOT give up so easily.

    You got this, Ben.

  3. Wishing you continued success on your road to recovery. I know you will love it at Holy Cross. I’m the mom of a senior who’s year was cut short. She absolutely treasured the time she had on Mt. Saint James.

    I was diagnosed with Hodgkin’s Lymphoma my senior year at Boston College. I was treated by the very capable and caring doctors at BWH and Dana-Farber. Thirty-one years later I’m still enjoying every moment of this precious life. I hope that for you too.

  4. Just wanted to wish you well as you battle your disease and as you plan to enter Holy Cross in the fall. I have been under the care of the physicians at Dana Farber since being diagnosed with multiple myeloma almost four years ago. I am also an alum of Holy Cross (Class of 1968) and the parent of three graduates. I speak from experience when I say that your time at the Cross will be the best four years of your life!

  5. Hi Ben,
    So sorry for the tough curve ball, but it sounds like you have wisdom and strength to get you through. Someday all of this will be in the rear view mirror! In the meantime, I wish you a calm spirit , determination, and love.
    Enjoy Holy Cross in the fall!

  6. What a great attitude and self discipline. I am self isolating even though I in remission. My thoughts and prayers are with you and your family ??

  7. Hang in there Ben. I am so impressed by your determination, discipline, and optimism. You are an incredible example and light of hope for so many.
    Wishing you all the best with your cancer battle and your exciting beginning to college in the fall (whether in person or online). God bless you and your family as you all go through this journey together.

Comments are closed.