Care for adults

How to help your kids cope with your cancer

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For people with cancer, deciding how, and what, to tell others about the diagnosis can be a challenge. How do you tell your loved ones, or your employer, that you have cancer?

For parents, there’s another degree of difficulty: What do you say to your children? How much will they understand, and what’s the best approach?

Susan Englander, LICSW, a social worker at Dana-Farber Cancer Institute who specializes in working with young adult patients — many of whom have children — offers these tips to parents with cancer on how to talk to their kids and help them through the process.

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Pregnancy and breast cancer: One mother’s story

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Rebecca Byrne had waited years for a doctor to tell her, “You’re pregnant.” She never imagined that just a few months after she first heard those words, she would hear four more: “You have breast cancer.”

Byrne still tears up when telling the story, but smiles when her 20-month-old daughter, Emelia, leaps into her lap. Emelia is the happy outcome of a painful period of Byrne’s life, when the joys of pending and early motherhood were shadowed by chemotherapy treatments, hair loss, radiation, and uncertainty.

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‘Designed by patients like me’: A patient’s perspective on the Yawkey Center

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As a Dana-Farber employee planning events for the opening of Dana-Farber’s Yawkey Center for Cancer Care, I knew the building was designed with guidance from patients and families.

But I had no idea how important this was until shortly after the building opened – and, newly diagnosed with acute t-cell lymphoblastic leukemia/lymphoma, I walked through the doors as a patient myself.

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Men unite to cure women’s cancers

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For most people, getting involved with a cause means thinking about what type of organization they’d like to support. But this is a story about what happens when a cause selects you – taps you on the shoulder and asks you to engage in battle.

It began in 1998 when my wife Amy, then 40, was diagnosed with late-stage ovarian cancer. Our two daughters were 5 years and 15 months old. Amy battled for 15 months, and died in 1999. Like many spouses of women who die of cancer too young, my next few years were all about balancing the family boat.

Fast forward to three years later, when I met my current wife, Ruth. We married in 2005 and Ruth adopted my daughters.

Just one year later, Ruth’s mother, Mildred Moorman, was diagnosed with late-stage ovarian cancer and was treated at Dana-Farber by Dr. Ursula Matulonis. (She died earlier this year.) I had the opportunity to share our family’s story at a meeting of the Susan F. Smith Center for Women’s Cancers Executive Council at Dana-Farber.

Always a strong supporter of cancer research, I wanted to do more; to find people like me.

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Five tips for cancer caregivers

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If you’re supporting a friend or family member who is undergoing cancer treatment, you may not think of yourself as a “caregiver.” It’s a role that can be very rewarding, but also challenging and stressful.

You may find yourself juggling an incredible range of duties above and beyond what you regularly do at home and at work. From driving your loved one to appointments, to discussing medical issues with health care professionals, to making dinner every night, you may find that you’re taking care of nearly everything – except yourself.

But your loved one’s well-being depends on you, so it’s important that you also take care of yourself. Nancy Borstelmann, LICSW, MPH, a licensed clinical social worker who serves as Dana-Farber’s director of patient and family support and education, shares some tips that may help.

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How our patients help create a healing environment

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Look closely at some of the steel beams that support Dana-Farber’s Yawkey Center for Cancer Care and you’ll see the names of patients spray-painted in bright colors by ironworkers during the building’s construction.

These beams frame the building, but patients and families have lent far more than their names to the facility’s creation.

Their guidance underpins almost every aspect of the Yawkey Center. From the healing garden to the layout of exam rooms to the parking garage, the imprint of our patients and families is felt across the Institute.

Here, Janet Porter, PhD, chief operating officer, recalls in her own words the benefits of working closely with patients and families.

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What do you say when a friend has cancer?

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A year ago today, I went to see my doctor about a lump that was growing scarily fast inside my mouth. Twelve days later, I was in a hospital bed with a cocktail of chemo drugs moving through an IV in my arm.

Over the next few weeks, I adjusted to the fact that I had squamous cell carcinoma; that it was most likely curable; and that I had a long road of chemotherapy and radiation ahead.

But one thing I couldn’t get used to was telling people I had cancer.

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HPV linked to head and neck cancer

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Traditionally, patients with oral cancers tended to be older individuals with a long history of smoking and heavy alcohol use. In the past decade, however, that picture has changed dramatically.

Today, infection with the human papillomavirus (HPV) is the leading cause of oropharyngeal cancer in the U.S. and Western Europe. Oropharyngeal cancers affect the back of the throat (i.e. the tonsils and base of the tongue). HPV is the same virus that causes most cases of cervical cancer in women.

Patients with HPV-related head and neck cancers are often relatively young, not heavy drinkers or smokers, and come from all segments of society.

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Breast cancer specialist discusses treatment advances

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Harold J. Burstein, MD, PhD, a Dana-Farber breast cancer specialist, discusses some of the important studies presented at the 2011 CTRC-AACR San Antonio Breast Cancer Symposium. The five-day meeting includes more than 1,000 scientific presentations, seminars, and posters, with a focus on emerging treatments in hard-to-treat populations, patients with metastatic breast cancer, and breast cancer … Read more

Breast cancer patient honors her compassionate doctor

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Ann Partridge, MD, MPH, was instrumental in the founding of Dana-Farber’s Program for Young Women with Breast Cancer, part of the Susan F. Smith Center for Women’s Cancers. The program, which focuses on the unique needs of breast cancer patients under 40, helps patients access fertility, genetic screening, and counseling services. Dr. Partridge was recently … Read more