For Teen With Rare Genetic Condition, Endocrine-Oncology Treatment Proves a Master Class

Felicia Walbridge has long been interested in biomedical engineering, and plans on majoring in the field during college. Until recently, the teenager’s experience in this area was limited primarily to reruns of the TV show “Grey’s Anatomy.” Then, with little warning, Walbridge became the star of her very own medical drama — complete with a … Read more

Limb-Salvage Surgery Proves Hole-in-One Decision for Pediatric Cancer Survivor

It was quite a spring for Andrew Hedberg. The rising high school sophomore made the varsity golf team and was elected class president for the upcoming school year. Most importantly, the bone cancer that once threatened his left leg and his life remained in remission. All of this validated the decision that Andrew’s family made … Read more

Athlete Getting Back on the Field After Low-Grade Glioma

This post was originally published on Thriving, Boston Children’s Hospital’s pediatric health blog. It started with muscle aches in her shoulders, almost like spasms, while she slept. The pain was awful, and nothing seemed to bring relief. But because Erin Holmberg is a varsity three-sport athlete—soccer, basketball and track—everyone assumed it was muscular pain caused … Read more

Now in Remission, Pediatric Cancer Patient is Inspiration for Her Family

Kids often rely on their parents for inspiration, but for Kevin and Becky McAvoy, it’s their five-year-old daughter Avery who provides the spark. Avery was less than a year old when she was diagnosed with metastatic neuroblastoma, the most common type of cancer in infants. Her cancer contained an anaplastic lymphoma kinase (ALK) mutation. The … Read more

Parents of Two-Year-Old Hepatoblastoma Survivor Enjoying Every Milestone

Steph and Jake Holbrook know the date of every important moment in their son’s life: William’s first steps, his first words, and even his first Boston Red Sox game. Another date they’ll forever remember: Jan. 17, 2018, when they were told that William—then 10 months old—had a rare type of liver cancer. “I couldn’t believe … Read more

After 80 Years, Genetic Causes of Diamond-Blackfan Anemia Come Into View

This post was originally published on Vector, Boston Children Hospital’s science and clinical innovation blog. In 1938, Louis K. Diamond, MD, and Kenneth Blackfan, MD, at Boston Children’s Hospital described a severe congenital anemia that they termed “hypoplastic” (literally, “underdeveloped”) because of the bone marrow’s inability to produce mature, functioning red blood cells. Eighty years … Read more

Pediatric Leukemia Survivor Having a Ball After CAR T-Cell Therapy

After undergoing a promising new treatment for acute lymphoblastic leukemia (ALL), Cole Malone is back to doing what he loves: playing on a flag football team with his twin brother, Michael. Cole and Michael Malone, who are 14, already know plenty about teamwork. Michael served as a perfect-match donor when Cole underwent a stem cell … Read more

8 Stories of Hope from 2018

We featured the stories of many inspirational Dana-Farber patients in 2018. Here are eight that embody the word “hope.” In early 2018, CAR T-cell therapy put Sandra Linberg, a 75-year-old lymphoma patient, into complete remission. Linberg had been previously treated for advanced non-Hodgkin lymphoma with standard chemotherapy, but the cancer recurred. Now, after only a month … Read more

Diagnosed as a Baby, Neuroblastoma Patient is Cancer-Free Toddler

The first year of a baby’s life is filled with milestones, but between sitting and standing up, holding his bottle, and playing peek-a-boo, there was one thing Landon Cato developed that his parents never anticipated: cancer. Landon was just shy of eight months old in July 2016 when his parents took him to the pediatrician, … Read more

How Precision Medicine Turned Jesus’ Unique Tumor into an Operable One

This post originally appeared on Thriving, Boston Children’s Hospital’s pediatric health blog. On a hot, August day in a Boston park, Jesus Apolinaris Cruz cooled off with a water squirt gun fight with his mother and sister. As he nimbly ran and dodged their aim, he twisted around to sneak shots of water back in their … Read more

Pediatric Survivors and Parents Find School Liaison Program is a Lifeline

Harry Clark has faced many academic challenges in his dozen years of brain cancer treatment, but through surgeries, radiation, and chemotherapy, one person has always been there to guide and reassure the high school junior and his family on scholastic matters. School psychologist Marybeth Morris, EdM, is one half of a dynamic duo supporting pediatric … Read more

Pediatric Patient and Social Worker Forge Bond From Clinic to College

Like many of Dana-Farber’s youngest patients, 3-year-old Hannah Packman brought a favorite plaything to each of her Jimmy Fund Clinic visits. Lulu the doll, however, was unique because of the extra attention she received from pediatric social worker Deborah Berk, LICSW. When Hannah had a blood draw, Berk arranged for Lulu to have one as … Read more