As a Dana-Farber employee planning events for the opening of Dana-Farber’s Yawkey Center for Cancer Care, I knew the building was designed with guidance from patients and families.
But I had no idea how important this was until shortly after the building opened – and, newly diagnosed with acute t-cell lymphoblastic leukemia/lymphoma, I walked through the doors as a patient myself.
For most people, getting involved with a cause means thinking about what type of organization they’d like to support. But this is a story about what happens when a cause selects you – taps you on the shoulder and asks you to engage in battle.
It began in 1998 when my wife Amy, then 40, was diagnosed with late-stage ovarian cancer. Our two daughters were 5 years and 15 months old. Amy battled for 15 months, and died in 1999. Like many spouses of women who die of cancer too young, my next few years were all about balancing the family boat.
Fast forward to three years later, when I met my current wife, Ruth. We married in 2005 and Ruth adopted my daughters.
Just one year later, Ruth’s mother, Mildred Moorman, was diagnosed with late-stage ovarian cancer and was treated at Dana-Farber by Dr. Ursula Matulonis. (She died earlier this year.) I had the opportunity to share our family’s story at a meeting of the Susan F. Smith Center for Women’s Cancers Executive Council at Dana-Farber.
Always a strong supporter of cancer research, I wanted to do more; to find people like me.
For many women who enjoy a glass of wine, research showing that relatively small amounts of alcohol can raise their risk of breast cancer are disconcerting, to say the least. And confusing, too.
How much drinking is OK? Isn’t a glass of red wine a day good for your heart — and couldn’t that be more important?
In the past five or 10 years, knowledge about alcohol and breast cancer has been changing as studies produce new results and are publicized, sometimes over-dramatically, in the media. At the same time, there’s growing evidence that moderate drinking can be healthy for the heart.
Medically reviewed by Mark W. Kieran, MD, PhD, Anupama Narla, MD, and Susan N. Chi, MD Most parents treasure the big moments in a child’s life: first steps, first word, first day of school. I, on the other hand, treasure every moment with my son, Declan – the simple act of eating breakfast together, watching … Read more
If you’re over 50, have you been screened for colorectal cancer? If not, the month of March would be a great time to talk about screening with your doctor. Colorectal cancer is the third leading cause of cancer in men and women in the United States. In 2012, an estimated 141,210 people will be diagnosed … Read more
When it comes to finding better drugs for cancer, Dana-Farber oncologist Dr. David Frank is not a patient man. While new cancer science promises to bring novel, improved therapies to the bedside, it can take many years — and Frank isn’t willing to wait.
“We need to get new treatments to patients as soon as possible,” he says.
If you’re supporting a friend or family member who is undergoing cancer treatment, you may not think of yourself as a “caregiver.” It’s a role that can be very rewarding, but also challenging and stressful.
You may find yourself juggling an incredible range of duties above and beyond what you regularly do at home and at work. From driving your loved one to appointments, to discussing medical issues with health care professionals, to making dinner every night, you may find that you’re taking care of nearly everything – except yourself.
But your loved one’s well-being depends on you, so it’s important that you also take care of yourself. Nancy Borstelmann, LICSW, MPH, a licensed clinical social worker who serves as Dana-Farber’s director of patient and family support and education, shares some tips that may help.
Imagine being 22 and having your two biggest fears come true: You have cancer, and your treatment may leave you unable to have children in the future.
While you’re still coming to terms with the diagnosis, you now have to make some major life decisions. Do you want to freeze your eggs? Or should you choose a sperm donor and freeze fertilized eggs instead? Don’t forget to consider your husband’s feelings — even though he isn’t even in your life yet.
Sunscreen shouldn’t be packed away just because it’s winter. Your skin can be exposed to harmful rays all year long. So before you hit the slopes, build a snowman, or head off to a tropical beach, take time to protect yourself, say skin care specialists at Dana-Farber. According to the American Cancer Society, snow, ice, and water can all … Read more
Look closely at some of the steel beams that support Dana-Farber’s Yawkey Center for Cancer Care and you’ll see the names of patients spray-painted in bright colors by ironworkers during the building’s construction.
These beams frame the building, but patients and families have lent far more than their names to the facility’s creation.
Their guidance underpins almost every aspect of the Yawkey Center. From the healing garden to the layout of exam rooms to the parking garage, the imprint of our patients and families is felt across the Institute.
Here, Janet Porter, PhD, chief operating officer, recalls in her own words the benefits of working closely with patients and families.
On International Childhood Cancer Day, it’s important to remember that global support, research, and treatment are vital to ensuring that children in developing countries have the same chance at survival as their peers in the U.S. Physicians such as Dr. Leslie Lehmann from Dana-Farber/Boston Children’s Cancer and Blood Disorders Center travel all over the world to deliver expert, curative care to young patients with cancer. Here is her story.
Rwanda is a tiny country in central Africa with much beauty but few resources. The genocide in 1994 that killed nearly a million people also devastated the health care system. Many people do not receive basic health care services and cancer care was nonexistent. It was impossible to even tell how common cancer was – people would die from a mass, or from bleeding, or infection without ever having a diagnosis.
The country has over 11 million people with not a single physician trained in caring for people with cancer. It’s a very sad situation.
This is beginning to change a bit. Through the Partners in Health (PIH) organization, I became part of a U.S.– Rwandan team led by Sara Stulac, PIH’s director of pediatrics, assembled at the Rwinkwavu hospital with the goal of providing consistent quality care to children with cancer. Sara had lived in Rwanda working at this rural PIH-sponsored hospital for six years. I went to Rwanda with Kathleen Houlahan, a pediatric oncology nurse and nurse director of the Jimmy Fund Clinic at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center, and Dr. Larry Shulman, medical oncologist and chief medical officer of Dana-Farber, who is Senior Oncology Adviser for PIH and leads Dana-Farber/Brigham and Women’s Cancer Center efforts in Rwanda.
By Lawrence Shulman, MD
Dana-Farber, with our partners Brigham and Women’s Hospital and Boston Children’s Hospital, offers patients highly advanced treatments in modern facilities. Our patients also benefit from an excellent staff, clinical research, and extensive resources, and many of them survive cancer to live long and healthy lives.
Is it fair, then, that cancer remains a death sentence elsewhere in the world? In Rwanda, for example, a country of 10 million people, cancer care has been completely unavailable to almost all patients. They die of cancers that could have been cured in Boston.
As we recognize World Cancer Day today, it’s important to remember that one-third of cancer deaths worldwide are tied to lifestyle and diet, making them largely preventable. Dr. Judy Garber, director of Dana-Farber’s Center for Cancer Genetics and Prevention, provides some perspective, and highlights some of the steps individuals can take to reduce their cancer … Read more
The Super Bowl this weekend is the result of a lot of training and planning (and luck) on the part of the two competing teams. Players have to know their roles and everyone needs to work to the same game plan — and be ready to change tactics in an instant. In the same way, … Read more
The complicated meaty machine that is the human body can break down in a remarkable variety of ways. The 9th edition of the International Classification of Diseases (ICD-9) includes more than 16,000 afflictions – everything from the bite of a venomous tropical millipede to injury by falling spacecraft debris. With all of these dangers, it is … Read more
If your son or daughter has been diagnosed with a type of sarcoma – a tumor in connective tissue like muscles or bones – there are many questions: Will my child make a full recovery? What are the immediate and long-term side effects of treatment?
Most parents don’t consider whether their child will face a second cancer later in life.
However, a link between sarcomas and Li-Fraumeni syndrome, a rare condition that raises a person’s risk of developing one or more cancers to as high as 85 percent, has led genetic specialists at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center to recommend that all child sarcoma patients be offered genetic counseling for Li-Fraumeni syndrome.
Part of dealing with a new cancer diagnosis involves deciding how to let those around you know what’s happening. While you’ll probably want your loved ones to know about your diagnosis and treatment, deciding whether to tell your employer can be a more challenging process. Here are some tips if you’re weighing the decision to … Read more
There are a lot of good reasons not to gain too much weight, but you might not be aware of this one: Growing evidence links obesity to a higher risk of developing cancer, and being overweight may worsen a cancer patient’s outlook.
Although more and more studies are finding this connection, scientists haven’t uncovered the biological mechanisms by which excess pounds make normal cells more likely to turn cancerous. But they are pursuing a large number of leads, some of which may uncover new ways of fighting cancer – including losing weight.
A year ago today, I went to see my doctor about a lump that was growing scarily fast inside my mouth. Twelve days later, I was in a hospital bed with a cocktail of chemo drugs moving through an IV in my arm.
Over the next few weeks, I adjusted to the fact that I had squamous cell carcinoma; that it was most likely curable; and that I had a long road of chemotherapy and radiation ahead.
But one thing I couldn’t get used to was telling people I had cancer.
Traditionally, patients with oral cancers tended to be older individuals with a long history of smoking and heavy alcohol use. In the past decade, however, that picture has changed dramatically.
Today, infection with the human papillomavirus (HPV) is the leading cause of oropharyngeal cancer in the U.S. and Western Europe. Oropharyngeal cancers affect the back of the throat (i.e. the tonsils and base of the tongue). HPV is the same virus that causes most cases of cervical cancer in women.
Patients with HPV-related head and neck cancers are often relatively young, not heavy drinkers or smokers, and come from all segments of society.