Living Life

By Jack Coates In May 2001, I was diagnosed with medullablastoma. I was 19 years old and had just finished my freshman year at Johnson & Wales University in Rhode Island. Medullablastoma is a cancer that affects the brain and the spine. I had three surgeries, 52 weeks of chemo, and six weeks of radiation. I spent a year and two months in the hospital and went from 217 pounds to 97. I was scared. I was asking God: “Why?  Why did it have to happen to me?” It was shocking. Many things went through my mind.

How to Prevent and Manage Lymphedema

Following radiation treatment or surgery to remove lymph nodes (lymphadenectomy), patients can develop lymphedema, a condition that involves abnormal swelling, usually in the arms or the legs, due to an accumulation of lymphatic fluids. This fluid buildup is caused by blockage or removal of lymph nodes or lymph vessels. Lymphedema is often associated with breast cancer patients, but can result from treatment of other cancers, such as melanoma, prostate, or advanced gynecological cancer. In addition to discomfort, lymphedema can also lead to infection, as the fluid buildup can increase bacteria growth. Pay attention to signs of infection, including pain, heat, …

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New Study: Nuts Linked to Reduced Risk of Pancreatic and Other Cancers

An analysis of data from the decades-long Nurses’ Health Study revealed that women who ate a one-ounce serving of nuts – any kind of nuts – two or more times a week had a 35 percent lower risk of pancreatic cancer than women who abstained from them. That’s a significant and encouraging piece of news for a field that has had far too little.

Questions to Ask When Your Child Finishes Cancer Treatment

By Julia Pettengill Our daughter Sophie was diagnosed with leukemia at age 2½, and received two years of care at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center. While I felt tremendous joy and relief when she completed treatment, I also found the experience traumatic.

Easing the Way for Cancer Patients with Other Hardships

By Christopher Lathan, MD, MS, MPH When cancer strikes someone who is already facing other hardships – for example, he or she is poor, alone, or has a language barrier – the experience is very different than it might be for someone who has more resources and support. The Cancer Care Equity Program at Dana-Farber, which is funded by the Kraft Family Foundation, helps vulnerable patients in the community obtain the cancer care they might not receive otherwise.

Video: Nearly 100 Patients Inspire Others with Stories of Hope

Each year, Dana-Farber patients join clinicians, staff, and the Boston Red Sox to share their stories of inspiration and their belief in the research advances at Dana-Farber during the WEEI/NESN Jimmy Fund Radio-Telethon at Fenway Park. This year, nearly 100 patients, including Rayquan Fregeau, who used art and resources from the Betty Ann Blum and Marjorie Blum Pediatric Resource Room to cope with his diagnosis; Debbie Whitmore, a mother of five who hopes for a cure for future generations; and Jack Robinson, who compiled a joke book to help other children during their treatment, shared their experiences battling cancer. Stephen …

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College and Cancer: Tips from a Student Survivor

By Catherine MacLean “Why is this coming up now?” “It’s been 10 years. I should be over this already.” “Why is this happening to me? All of the other survivors I know seem fine.” These thoughts preoccupied me during the transition from high school to college. It had been 10 years since my successful bone marrow transplant for aplastic anemia and my health was excellent.

Swim Across America Events Help Fund Research for Young Cancer Survivors

By Melanie Graham During a child’s cancer therapy and recovery process, insomnia can often be viewed as only a side effect in the scope of treatment-related symptoms. However, there are many physical and psychological implications that develop when a child does not sleep well, says Eric Zhou, PhD, a clinical psychology fellow in Dana-Farber’s David B. Perini, Jr. Quality of Life Clinic. Zhou, who is also a research fellow at Harvard Medical School, has spent the last year studying treatments for insomnia in adolescent and young adult cancer survivors through Dana-Farber’s Swim Across America Fellowship.

Classes Help Survivors Move Beyond Cancer

Dana-Farber celebrates cancer survivorship in June with Living Proof, an annual series of events that includes workshops and programs as well as a keynote reception on June 20. The end of treatment is an important milestone for any cancer patient, but it can also be a time of anxiety. In fact, some new cancer survivors say leaving the routine of regular visits with their health care team can be downright scary. That’s why Dana-Farber and other leading cancer centers offer programs to help survivors transition from active treatment to living well beyond cancer.