How to Prepare for Your First Visit with a Cancer Specialist

By Karen Lee Sobol

I used to think of hospitals as halls of science. But recently I learned the word “clinic” comes from the Greek, meaning “bedside art.” While we’d all rather avoid a visit to a cancer clinic, there’s a lot we can do to make the first visit a productive, positive experience.

For my first visit to Dana-Farber, my husband joined me, along with my own wild emotions—anxiety, fear, and fury among them—and four pages of questions.

I found that at that first visit, an oncologist gets to know you in two ways: clinically and personally.

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Easing the Way for Cancer Patients with Other Hardships

By Christopher Lathan, MD, MS, MPH

When cancer strikes someone who is already facing other hardships – for example, he or she is poor, alone, or has a language barrier – the experience is very different than it might be for someone who has more resources and support.

The Cancer Care Equity Program at Dana-Farber, which is funded by the Kraft Family Foundation, helps vulnerable patients in the community obtain the cancer care they might not receive otherwise.

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Video: Nearly 100 Patients Inspire Others with Stories of Hope

Each year, Dana-Farber patients join clinicians, staff, and the Boston Red Sox to share their stories of inspiration and their belief in the research advances at Dana-Farber during the WEEI/NESN Jimmy Fund Radio-Telethon at Fenway Park.

This year, nearly 100 patients, including Rayquan Fregeau, who used art and resources from the Betty Ann Blum and Marjorie Blum Pediatric Resource Room to cope with his diagnosis; Debbie Whitmore, a mother of five who hopes for a cure for future generations; and Jack Robinson, who compiled a joke book to help other children during their treatment, shared their experiences battling cancer. Stephen Hodi, MD, Ursula Matulonis, MD, and other clinicians discussed the research and treatment strides donors help make possible.

Watch this video of highlights from the 36-hour event, which raised more than $3.5 million to support adult and pediatric patient care and cancer research at Dana-Farber:

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Four Lessons from a Cancer Caregiver

In June 2001, my wife, Angela Palmer, was diagnosed with stage 2 breast cancer while we were living in Tucson, Arizona. This was a huge shock. She had annual mammograms and never had any indications of disease.

Patrick and Angela Palmer
Angela and Patrick Palmer

She had a lumpectomy and completed about 50 percent of her chemotherapy protocol before we moved to the northeast where our family was located. We arrived in Boston in December 2001, bought a house and became engaged with a tremendous Dana-Farber team including Wendy Chen, MD, MPH, medical oncologist and Jennifer Bellon, MD, radiation oncologist. Angela immediately resumed her therapy and I became her caregiver.

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How to Tell Your Children You Have Cancer

For many parents, their first concern after a cancer diagnosis is the impact it will have on their children. There’s a lot of medical information to digest and decisions to be made, including how and when to tell your children.

There are good reasons talk to your children as soon as possible after your diagnosis. No matter their age, children will realize something is wrong; they may discover the truth accidentally from someone else, and it’s better if you can present the information in an honest and hopeful manner.

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What is the Difference Between Palliative Care and Hospice?

Although the terms are often used interchangeably, palliative care and hospice care differ in several important ways for cancer patients – most notably, the stage of treatment at which they are given. Both types of care focus on relieving patients’ pain and discomfort, whether caused by the cancer itself or the side effects of treatment. … Read more

Dating and Cancer 101

SWF, Bald, Undergoing Chemo and Radiation…

Oh yeah, isn’t that the first profile you would click on if you were searching for the love of your life or even just a new ‘friend’ online? Dating in itself – or, I should say, finding someone to date – is never easy. Finding someone when you happen to be bald, going through chemo and/or making daily trips to the hospital for radiation makes it a zillion times more complicated. I know. I’ve tried it.

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Chemotherapy Related Neuropathy: Managing this Nerve Wracking Problem

While chemotherapy can kill cancer cells, certain chemotherapy drugs can also cause an uncomfortable and distressing condition that may produce numbness, tingling, and discomfort in the arms or legs. This condition, known as peripheral neuropathy (CIPN), can make it difficult for people to perform day-to-day activities.

Although there is no sure prevention for CIPN, there are ways to control the pain and minimize its effects on quality of life, says Cindy Tofthagen, PhD, ARNP, an assistant professor of nursing at the University of South Florida and post-doctoral fellow at Dana-Farber and the University of Massachusetts.

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Confronting the Mental Challenges of Cancer Treatment

by Richard Saltus

Living with cancer is a physical and emotional challenge, but people may also find it hampers their thought processes and memory. Often the deficits are temporary, but sometimes they persist or appear months or years later as delayed effects.

Cognitive difficulties, says Clare Humphreys, PhD, a neuropsychologist at Brigham and Women’s Hospital, “are caused not just by the direct effect of cancer, but also the effects of treatment, as well as factors like pain, disrupted sleep, anxiety, and depression.”

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Tips for Talking to Your Children About Genetic Test Results

There are many decisions parents face after testing for genetic cancer risk, including whether to tell their children and how to approach the conversation.

If you decide to talk to your children about the test results, allow yourself some time to process the information; you want to be calm and clear when you talk with them. Remember that you know your children best and there are no set rules for talking to kids about genetic tests.

You also may want to talk with your spouse and decide whether you would like to speak with the children together or individually. It is good to be aware that sometimes spontaneous discussion opportunities arise – such as driving a child to school or practice – when a child asks a question that can disrupt parents’ plans for informing them, but can feel like a natural way for the topic to come up and be talked about.

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What Should I Expect for my PET/CT Scan?

Patients undergo different types of scanning procedures to produce detailed images of potential cancer growth. Depending on the cancer, physicians may use MRI, mammography, CT, PET/CT or other technologies.

While some of these procedures use only x-rays or radio waves to create images, a PET/CT scan uses a combination of traditional x-rays and computer imaging. A radioactive substance similar to glucose is given to the patient, and because cancer cells tend to use more glucose than normal cells, PET/CT scans can help detect the biological activity of those cancer cells.

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Revisiting Cancer Care in Rwanda: One Year Later

By Lori Buswell, RN

I recently returned from a three-month rotation as a nurse fellow at a comprehensive cancer center at Butaro Hospital in Rwanda, a tiny African country known as the “land of a thousand hills.” The hospital, built and operated by the Ministry of Health and Partners In Health, is located in a rural, mountainous area where most residents are farmers. Because most homes do not have running water, people fill up 5-gallon jugs at the local water spigot.

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What You Should Know about Palliative Care

Palliative care is often misunderstood. People may associate it with end-of-life care or “giving up” – especially when facing a serious health challenge like cancer. But palliative care may not be what you think, and you shouldn’t be afraid to ask for it. Here’s a closer look at what palliative care is – and isn’t.

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Classes Help Survivors Move Beyond Cancer

Dana-Farber celebrates cancer survivorship in June with Living Proof, an annual series of events that includes workshops and programs as well as a keynote reception on June 20.

The end of treatment is an important milestone for any cancer patient, but it can also be a time of anxiety. In fact, some new cancer survivors say leaving the routine of regular visits with their health care team can be downright scary. That’s why Dana-Farber and other leading cancer centers offer programs to help survivors transition from active treatment to living well beyond cancer.

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Meet Boston Marathon Runner and Platelet Donor Wendy Akeson

Wendy Akeson is passionate about both running and donating platelets. Never has she felt such a strong connection between these two roles as she did this year.

Four minutes after completing her 10th consecutive Boston Marathon, Akeson heard the explosions that will forever link this year’s marathon with tragedy – and then saw people running toward her from the finish line she had just crossed.

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