Gene Therapy Halts Progression of Cerebral Adrenoleukodystrophy in Clinical Trial

This originally appeared on Vector, Boston Children’s Hospital’s blog. Adrenoleukodystrophy — depicted in the 1992 movie “Lorenzo’s Oil” — is a genetic disease that most severely affects boys. Caused by a defective gene on the X chromosome, it triggers a build-up of fatty acids that damage the protective myelin sheaths of the brain’s neurons, leading to cognitive … Read more

College Student Reconnects with the Oncologist Who Saved Her Life

This post originally appeared on Thriving, the Boston Children’s Hospital blog. Anna Protsiou was 5 when she was diagnosed with neuroblastoma in 2002. She remembers pain, and fruit-scented anesthesia masks that led her to stop eating cherries. She also remembers hospital arts and crafts projects. What she barely remembers is the pediatric oncologist who saved … Read more

What’s New in Pediatric Brain Tumor Research and Care?

Mark W. Kieran, MD, PhD, director of Pediatric Medical Neuro-Oncology at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center, spoke to pediatric patient families in a recent Facebook Live Webchat addressing pediatric brain tumor care. Kieran answered questions from audience members about the most common of the 300 brain tumor types that occur in children, including … Read more

7 Ways Integrative Therapies Help Cancer Patients

Research has shown that integrative therapies can help ease cancer-related symptoms and improve overall quality of life. These therapies range from individual treatments, such as acupuncture, massage, and Reiki, to group programs for movement, meditation, and creative arts. View the slideshow below to learn more about how integrative therapies can help cancer patients.   Visit … Read more

Lymphoma Patient Gets Back on the Court Post-Treatment

For much of his 17 years, Spencer Riley has lived to play basketball. This winter, his favorite sport helped the teenager get back to life. Riley was diagnosed with non-Hodgkin lymphoma in 2016 and treated at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center that summer. He underwent an intensive three-month treatment cycle: one week of … Read more

The Loss of a Child: Stories from Three Bereaved Parents

As told to Sue Morris, PsyD As director of Dana-Farber’s Bereavement Program, I regularly sit with bereaved individuals, listen to their stories, and help them navigate their lives after they have been completely turned upside down. I recently spoke with three bereaved parents who are members of Dana-Farber’s Pediatric Patient and Family Advisory Committee (PFAC), … Read more

Newborn Screening Saves Baby from “Bubble Boy” Disease – Before He Ever Gets Sick

Happy to have given birth in January 2015 to two seemingly healthy boys, Levi and Colton, after an uneventful pregnancy, Kala Looks gave little thought to the routine heel prick of newborn screening. At 23 and 24, she and her husband, Phillip, were high school sweethearts starting a family with a pair of fraternal twins. … Read more

Putting College – and Field Hockey – on Hold for a Bone Marrow Transplant

By Dana Mendes Like many high school students, I was eager to start a new chapter of my life after graduating in 2015. I had committed to play field hockey at Assumption College in Worcester, Massachusetts, that fall, and spent the summer working out alongside my new teammates – determined to prove myself on the … Read more