This post was originally published on Vector, Boston Children Hospital’s science and clinical innovation blog. In 1938, Louis K. Diamond, MD, and Kenneth Blackfan, MD, at Boston Children’s Hospital described a severe congenital anemia that they termed “hypoplastic” (literally, “underdeveloped”) because of the bone marrow’s inability to produce mature, functioning red blood cells. Eighty years … Continued
Patient Stories, Pediatric
After undergoing a promising new treatment for acute lymphoblastic leukemia (ALL), Cole Malone is back to doing what he loves: playing on a flag football team with his twin brother, Michael. Cole and Michael Malone, who are 14, already know plenty about teamwork. Michael served as a perfect-match donor when Cole underwent a stem cell … Continued
We featured the stories of many inspirational Dana-Farber patients in 2018. Here are eight that embody the word “hope.” In early 2018, CAR T-cell therapy put Sandra Linberg, a 75-year-old lymphoma patient, into complete remission. Linberg had been previously treated for advanced non-Hodgkin lymphoma with standard chemotherapy, but the cancer recurred. Now, after only a month … Continued
This post originally appeared on Thriving, Boston Children Hospital’s pediatric health blog. Our daughter Sajni Chakrabarti was only 7 and a half years old when she was diagnosed with a very aggressive form of brain cancer—diffuse intrinsic pontine glioma (DIPG)—and given only nine months to live. Sajni loved life and learning. She spoke French fluently, … Continued
The first year of a baby’s life is filled with milestones, but between sitting and standing up, holding his bottle, and playing peek-a-boo, there was one thing Landon Cato developed that his parents never anticipated: cancer. Landon was just shy of eight months old in July 2016 when his parents took him to the pediatrician, … Continued
Eli Morse has had to make major changes to his active lifestyle, but one thing has stayed the same: Eli and his family will continue to fight his aplastic anemia together.
Pediatric leukemia patient Emma Duffin is in remission, thanks to the stem cell transplant made possible by her brother, Alexander.
“Amelia is an amazing and extremely bright girl who has faced her disease and treatment with tremendous courage,” says Steven DuBois, MD, MS, her oncologist at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center.
This post originally appeared on Thriving, Boston Children’s Hospital’s pediatric health blog. On a hot, August day in a Boston park, Jesus Apolinaris Cruz cooled off with a water squirt gun fight with his mother and sister. As he nimbly ran and dodged their aim, he twisted around to sneak shots of water back in their … Continued
Harry Clark has faced many academic challenges in his dozen years of brain cancer treatment, but through surgeries, radiation, and chemotherapy, one person has always been there to guide and reassure the high school junior and his family on scholastic matters. School psychologist Marybeth Morris, EdM, is one half of a dynamic duo supporting pediatric … Continued
Like many of Dana-Farber’s youngest patients, 3-year-old Hannah Packman brought a favorite plaything to each of her Jimmy Fund Clinic visits. Lulu the doll, however, was unique because of the extra attention she received from pediatric social worker Deborah Berk, LICSW. When Hannah had a blood draw, Berk arranged for Lulu to have one as … Continued
In their Brookline home-far-away-from-home, 2-year-old Duy Anh “Harry” Le plays with blocks and pop-up toys on the floor with his mother, Thao Nguyen. He is lively and happy, and his skin is clear. He looks almost nothing like the sickly baby covered in eczema who arrived in Boston from his native Vietnam in November 2016 … Continued
There is no greater pain than losing one’s child, but Jessica Horak Stout has derived something positive from her son Ryland’s passing – a teaching moment for medical experts on what it’s like to grieve through a parent’s eyes. Horak Stout co-wrote a book with her father Walter Horak that details the year that Ryland … Continued
Tracy Antonelli was four when she was diagnosed with thalassemia, a rare blood disorder that occurs often enough in Mediterranean countries like Italy that an old adage, uttered only partially in jest, warns Italian-Americans against marrying other Italian-Americans. In 2002, a grown-up Antonelli wed Patrick Mooty, whose background is mostly Irish. Their three daughters – … Continued
This story first appeared on Vector, a blog of Boston Children’s Hospital. “It’s a brutal disease; there’s just no other way to describe DIPG,” says Steve Czech. “And what’s crazy is that there aren’t many treatment options because it’s such a rare, orphan disease.” Czech’s son, Mikey, was diagnosed with a diffuse intrinsic pontine glioma … Continued
In March 2016, Ollie the pug, a therapy dog at Boston Children’s Hospital, paid a bedside visit to 7-year-old Carter Mock. Both dog and boy lost limbs to osteosarcoma, a cancer of the bone. Ollie’s left front leg was amputated at the shoulder. After removing the tumor in Carter’s left leg bone, surgeons fashioned a … Continued
For much of his 17 years, Spencer Riley has lived to play basketball. This winter, his favorite sport helped the teenager get back to life. Riley was diagnosed with non-Hodgkin lymphoma in 2016 and treated at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center that summer. He underwent an intensive three-month treatment cycle: one week of … Continued
By Ebony Glass One day, our 2-year-old son Javon complained about a bit of pain at daycare. It seemed harmless enough. But after a visit to the pediatrician, we ended up in the hospital for emergency surgery. There, they discovered that a mass in his body was causing the pain. “Cancer?” we feared, but it was … Continued
As told to Sue Morris, PsyD As director of Dana-Farber’s Bereavement Program, I regularly sit with bereaved individuals, listen to their stories, and help them navigate their lives after they have been completely turned upside down. I recently spoke with three bereaved parents who are members of Dana-Farber’s Pediatric Patient and Family Advisory Committee (PFAC), … Continued
Happy to have given birth in January 2015 to two seemingly healthy boys, Levi and Colton, after an uneventful pregnancy, Kala Looks gave little thought to the routine heel prick of newborn screening. At 23 and 24, she and her husband, Phillip, were high school sweethearts starting a family with a pair of fraternal twins. … Continued