After Wilms Tumor Treatment, First Grade is First Rate for Pediatric Cancer Survivor

The last two school years will be remembered for the tremendous challenges they presented students due to COVID-19, but rising second-grader Caroline McMahan and her family were ready for the pandemic’s limitations after what they had already endured. By the time the pandemic began, Caroline, 7, was already adept at washing up, masking up, and … Read more

Innovative Gene Editing Could Cure Severe Congenital Neutropenia

Fionn Mulrooney, a cheerful 11-month-old, in Plymouth, Massachusetts, has no idea he has a life-threatening genetic disease. Nor does he seem fazed by the daily subcutaneous injections his parents have learned how to give him. And little does he know that cells from his bone marrow are helping scientists develop an innovative gene-editing approach that … Read more

‘They’re Always There’: Emotional Support for Childhood Cancer Patients and Parents at Dana-Farber

When Samantha Price’s four-year-old daughter, Shelby, was diagnosed with acute lymphoblastic leukemia (T-ALL) in October 2019, Price had so many questions about what the future held for both of them. What would the highs and lows of treatment look and feel like for Shelby, and how could she best care for her daughter throughout the … Read more

Neuroblastoma Patient Exudes Untold Strength

Call it mother’s intuition, but leading up to her daughter’s cancer diagnosis, Erica Jensen knew something wasn’t right. At just 10 months, Charlee had started walking, and since taking her first steps the excited toddler was constantly exploring the world around her. Then, at around 15 months, something changed. It wasn’t obvious at first — … Read more

For Teen With Rare Genetic Condition, Endocrine-Oncology Treatment Proves a Master Class

Felicia Walbridge has long been interested in biomedical engineering, and plans on majoring in the field during college. Until recently, the teenager’s experience in this area was limited primarily to reruns of the TV show “Grey’s Anatomy.” Then, with little warning, Walbridge became the star of her very own medical drama — complete with a … Read more

Limb-Salvage Surgery Proves Hole-in-One Decision for Pediatric Cancer Survivor

It was quite a spring for Andrew Hedberg. The rising high school sophomore made the varsity golf team and was elected class president for the upcoming school year. Most importantly, the bone cancer that once threatened his left leg and his life remained in remission. All of this validated the decision that Andrew’s family made … Read more

Athlete Getting Back on the Field After Low-Grade Glioma

This post was originally published on Thriving, Boston Children’s Hospital’s pediatric health blog. It started with muscle aches in her shoulders, almost like spasms, while she slept. The pain was awful, and nothing seemed to bring relief. But because Erin Holmberg is a varsity three-sport athlete—soccer, basketball and track—everyone assumed it was muscular pain caused … Read more

Now in Remission, Pediatric Cancer Patient is Inspiration for Her Family

Kids often rely on their parents for inspiration, but for Kevin and Becky McAvoy, it’s their five-year-old daughter Avery who provides the spark. Avery was less than a year old when she was diagnosed with metastatic neuroblastoma, the most common type of cancer in infants. Her cancer contained an anaplastic lymphoma kinase (ALK) mutation. The … Read more

Parents of Two-Year-Old Hepatoblastoma Survivor Enjoying Every Milestone

Steph and Jake Holbrook know the date of every important moment in their son’s life: William’s first steps, his first words, and even his first Boston Red Sox game. Another date they’ll forever remember: Jan. 17, 2018, when they were told that William—then 10 months old—had a rare type of liver cancer. “I couldn’t believe … Read more

After 80 Years, Genetic Causes of Diamond-Blackfan Anemia Come Into View

This post was originally published on Vector, Boston Children Hospital’s science and clinical innovation blog. In 1938, Louis K. Diamond, MD, and Kenneth Blackfan, MD, at Boston Children’s Hospital described a severe congenital anemia that they termed “hypoplastic” (literally, “underdeveloped”) because of the bone marrow’s inability to produce mature, functioning red blood cells. Eighty years … Read more

Pediatric Leukemia Survivor Having a Ball After CAR T-Cell Therapy

After undergoing a promising new treatment for acute lymphoblastic leukemia (ALL), Cole Malone is back to doing what he loves: playing on a flag football team with his twin brother, Michael. Cole and Michael Malone, who are 14, already know plenty about teamwork. Michael served as a perfect-match donor when Cole underwent a stem cell … Read more