After Lacey Martin’s leukemia didn’t respond to initial rounds of chemotherapy and after she spent 10 weeks hospitalized for a stem cell transplant, the 11-year-old New Hampshire girl went home March 2 with an external line for medications that her mother would have to flush and clean twice a day. Lacey’s immune system and infection-fighting … Read more
The ball leaps off the metal bat with an unmistakable “ping” that denotes good contact. Miles Goldberg runs to first base, from which the 13-year-old will soon contemplate – and safely execute – a steal of second. Miles is used to transitioning naturally with the seasons from football to hockey to baseball. This year, however, has … Read more
No one is prepared to tell a loved one they have cancer. But the conversation becomes even more difficult when it’s your child who is diagnosed. How should parents and patients tell family members and friends, and who should be taking the lead? While there are some universal recommendations, much depends on the child’s age … Read more
By Ricardo Garcia On Nov. 29, 2011, cancer changed our lives. My son Richi was diagnosed in Barcelona with a high-risk medulloblastoma, one of the most aggressive brain tumors. From that day on, we did not return home. We could never imagine what awaited us. Richi endured a total of eight operations. He entered the … Read more
Before he was diagnosed with neuroblastoma in 2014 at the age of 11, Noah Smith was a veteran of the children’s theater stage. The suburban Boston boy had been cast in ensembles. He’d played Kurt Von Trapp in “The Sound of Music.” Little did Noah know that he would soon star in a video designed … Read more
More than 50 feet above ground, a wire rope extends from one tree to another. High in the trees, seven-year-old Carter Mock fearlessly steps off a platform and places first one foot, then the other, onto the wire. Holding tight to hanging ropes for balance, he navigates across the wire to the next tree. It’s … Read more
Balloons of various colors are taped in a row across the wall. Twenty yards away, 8-year-old Dylan Berio announces “yellow,” pulls back the string of his bow, then releases – smiling as he hears the “pop.” His arrow successfully pierced the yellow balloon. Archery requires focus and precision – something Dylan has in ample quantities. … Read more
Her voice at first sings softly, then gradually gains intensity and rises to a crescendo as she belts out the refrain of a tune she and her dad co-wrote: “You’re not standing alone!” 15-year-old Carlie Gonzalez has been singing and making music for as long as she can remember. But these days singing has new … Read more
Ewing sarcoma is a cancer that grows in the bones and soft tissues, usually in the thigh or pelvis. It is most common in children and young adults between the ages of 5 and 20, and more common in boys than girls. Although most patients are teenagers, Ewing sarcoma can sometimes occur in older adults … Read more
Neuroblastoma is a cancerous tumor found in young children and infants, most commonly in children under age 5 and rarely in those older than 10. Approximately 650 children in the United States are diagnosed with neuroblastoma each year. What causes neuroblastoma? The cause of neuroblastoma is not certain, but researchers believe it forms from neuroblasts, … Read more
When Emily Coughlin complained of a sore knee in May 2009, doctors initially suspected Lyme disease. After antibiotics failed to relieve the pain, the girl, who was just shy of her fourth birthday, was diagnosed with neuroblastoma, a cancer that begins in nerve cells outside the brain and usually affects children under 6. Though rare … Read more
When cancer patients face stress, fatigue, or nausea, they may turn to integrative therapies such as reflexology to help ease symptoms. Although each patient responds individually, reflexology can support relaxation and comfort during cancer treatment and offers an alternative to traditional massage. What is Reflexology? Reflexology uses pressure and touch on the feet, hands, and … Read more
By Sara Dickison Taylor On June 2, 2008, my then 5 ½-year-old daughter was diagnosed with Acute Lymphoblastic Leukemia (ALL). My world would never be the same. My husband and I had an eerie sense that something was very wrong. Emily’s high fevers were not resolving, even after countless days of ibuprofen doses, and her … Read more
Jessica Madsen wasn’t sure if her daughter, Addy, was ready for karate, until the 4-year-old got the chance to take free lessons in the most surprising place: Her hospital room. Addy and other stem cell transplant recipients at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center are offered free martial arts coaching during their inpatient recovery … Read more
When you learn your child has cancer, the natural response is to do anything possible to make them happy. However, it is important to balance this desire to comfort with an understanding of what is in your son or daughter’s best interest. This is especially true when your child with cancer exhibits difficult behaviors. “Even … Read more
The first semester of senior year is usually challenging for high school students, but Jake DeCarolis faced an additional hurdle in September 2015 when what he thought was a headache turned out to be a brain tumor. For the next six months, DeCarolis juggled homework and college applications around surgery and chemotherapy at Dana-Farber/Boston Children’s … Read more
By Sam Ogden It’s a few hours before game time and I’m walking backwards across Fenway Park’s outfield trying to keep ahead of Red Sox all-star Brock Holt. Like most photographers, I am used to this. Sometimes, walking backwards and shooting is the only way to get your shot. Today, the shot is of Brock … Read more
Childhood cancer is never easy for a family, and pediatric brain tumors can present a particularly difficult set of medical, cognitive, and physical challenges. Patients may face hearing and vision loss, seizures, learning disabilities, and more. Long after the disease is gone, these issues – and related emotional and social struggles – often remain. It … Read more
They arrived at their profession – and to Dana-Farber – on different paths, but nurses Jade Callender, RN, BSN; Jane Goldie, RN; Kaitlen Reyes, DNP, FNP; and Courtney Shea, RN, BSN, share a passion for oncology nursing. In honor of National Nurses Week May 6-12, the four share what they enjoy most about their roles. … Read more
On September 24, 2015, in a sixth floor room at Boston Children’s Hospital, 5-year-old Logan Lesselroth pressed the button that started the transfer of his newly harvested blood stem cells to his 3-year-old sister, Gianna. “This,” Gianna told him, “is a gift from your body.” The path to that moment and the stem cell transplant’s … Read more