When our five-year-old daughter was diagnosed with leukemia (ALL) last summer, our world was turned upside down. Extended hospital stays, twice weekly clinic visits, the side effects of chemo and the constant possibility of unexpected hospital admissions mean stress and exhaustion for all of us — and looming in the background of it all is … Read more
Getting cancer can be particularly difficult for young adults – classified by the National Cancer Institute as ages 15 to 39. Because the disease is relatively rare in this age group, these younger patients may find themselves isolated – too old to fit easily into childhood cancer programs, and too young to find peers in adult clinics (most people diagnosed with cancer are 55 or older).
But the outlook is getting brighter.
A cancer diagnosis can put even the most organized person into a state of disarray. That’s not surprising, because it’s normal to feel overwhelmed and out of control in the face of such stress. But there are steps you can take to ensure you’re best prepared for the road ahead. Don’t forget to: Slow down … Read more
by Richard Saltus
Cells are like young children – they need a lot of guidance on how to behave. Your body’s cells are constantly getting that help – in the form of hormones, growth factors, and other chemicals telling them when to rest, grow, duplicate their DNA, divide, or even self-destruct.
These commands are relayed from the cell’s surface to its nucleus by molecular pathways, also called signaling pathways, which are a series of interacting proteins that relay cellular messages, much as cell phone towers relay phone calls. When the commands reach the cell nucleus, they activate or turn off genes to determine how the cell responds.
By Jim Donovan
In 2002 my good friend died of cancer. He and I were at MIT together as undergraduates, where we shared a lot of great memories and developed a long-lasting friendship. Like most of us who walk with a loved one through a life-threatening disease, I experienced feelings of anger, sadness, and fear. I don’t have a medical background, and honestly didn’t understand some of the terminology that doctors used during the diagnosis and the treatment. This made me feel helpless. But I wanted to help. So I discovered other ways I could support my friend.
First and foremost, I tried to keep him positive and make him as comfortable as possible. I brought him the food he liked, watched movies with him, and stayed up late talking with him when he was sad and discouraged. I also tried to bring humor to his day because, as everyone knows, laughter is powerful medicine. I spent as much time with him as I could, depending on his needs and those of his family, and made sure to plan things for the future that he could look forward to. I reassured his wife that I would do anything to help her so his most important source of strength and comfort felt supported, too. And, so he would feel as informed as possible, I researched other patients in similar positions with the same cancer, and shared what I learned about their experiences.
Following the sudden shock and abruptness of a cancer diagnosis, a person’s initial instinct may be to begin treatment right away. However, in some instances, it can be beneficial to get a second opinion first. These secondary consultations — which usually happen with an oncologist (or cancer doctor) at a different hospital than the one … Read more
By Melissa Cochran, MS, NP
For my cancer patients, a stem cell transplant is a life-changing event. They cannot work outside the home for a full year; visits to Dana-Farber are about the only excursions allowed. No more trips to the grocery store or dinners at a favorite restaurant.
In our clinic, we have a solid team in place – physicians, nurses, social workers, and nurse practitioners like myself – working together to support and anticipate each cancer patient’s needs along the way. As you can imagine, significant physical and emotional issues can arise for our patients.
By Michael Buller Whenever I’ve met people with cancer, I’ve been at a loss for what to say and which questions to ask. Now, as a cancer patient, I realize the irony. Looking back, whatever I said ranged from ignorant to unhelpful. Or, I would just say nothing. I would talk about anything and everything else, … Read more
Not long ago, doctors were often skeptical when cancer patients who had undergone chemotherapy complained that they were mentally foggy; unable to plan a week’s worth of meals or organize their finances as they could before. Patients called this side effect “chemobrain” and were frustrated by the lack of recognition – or suggested remedies – from their physicians.
Bob Hurkett doesn’t know what became of the little girl he first heard of in 1998, but he thinks about her often. She was 5 years old and needed a bone marrow transplant. Hurkett and his wife, Jane, attended a donor drive hosted by the girl’s family where their blood was drawn and tested as a possible match.
Neither was a match but Hurkett felt compelled to help. When he learned about the need for platelets – which are vitally important for cancer patients as a means of replacing their own depleted supplies, as well as for trauma victims and other critically ill adults and children –he volunteered to donate.
When Gov. Deval Patrick signed an oral chemotherapy parity bill into law on January 5, Massachusetts joined more than 20 states requiring health plans to cover oral cancer pills at a rate no less favorable than standard intravenous (IV) chemotherapy. The new law tells insurers that they cannot require higher patient costs for oral chemotherapy, and it helps ensure that all forms of chemotherapy are accessible and affordable to Massachusetts cancer patients.
“How soon can I start exercising after I start cancer treatment?” It’s a question I hear often from patients who visit me for a fitness consult or class at Dana-Farber.
My answer? “As soon as possible.”
While it may seem counterintuitive, exercise offers key benefits for cancer patients – even those undergoing difficult treatments. In fact, it’s one of the best ways to give yourself an extra boost during and after cancer treatment.
Grapefruits are a good source of fiber, vitamin C, potassium, and other phytonutrients, but if you’re taking certain prescription or over-the-counter (OTC) medications, you may need to choose other fruits.
by Anne Tonachel
In 1997, when our children were all grown up, my husband Dick and I moved from the suburbs to Cambridge, right near many Boston hospitals. We bought a condo with an extra bedroom, and we shortly thereafter read about Hospitality Homes in the paper. Getting involved with them seemed like a great way to do something useful with the space.
We’ve been hosting people for more than 15 years now, and every individual and family is different. We’ve celebrated with some, cried with others, but it’s always meaningful. We love having people from all over the world stay at our home. One couple from Italy stayed with us while their baby was being treated at Boston Children’s Hospital. When we traveled to Italy on vacation they returned the favor. It felt like we were visiting old friends.
If someone you love has recently died, thinking about the holidays may understandably bring you sadness and anguish. You may even wish that this year, you could skip the holidays all together. Sue Morris, PsyD, director of Bereavement Services at Dana-Farber, provides bereavement support to the loved ones of patients through individual counseling and peer … Read more
What would happen if you were accidentally knocked unconscious and had to be taken to the emergency room? Would doctors know who to go to with questions about your care?
A health care proxy form is a legal document that names a trusted person who can make medical decisions for you if you are unable to speak for yourself.
“Stay positive, I know it helps.”
“What steps would you suggest I take to support my dad through all of this?”
“I am a new member of this group.”
These conversations are occurring online, at any time of day, in a community most people would not want to join: A group of cancer patients.
By Lola Baltzell
I have been a metastatic breast cancer patient at Dana-Farber for over four years now. I have an amazing team of providers, especially my oncologist Ann Partridge, MD, MPH, and nurse practitioner Anne Kelly, MSN, NP.
Helping a loved one face cancer is never easy, but the challenge is especially daunting when the patient is your own child. Our clinicians at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center work with pediatric cancer patients and their families every day. Lisa Diller, MD, Anna Muriel, MD, and Jorge Fernandez, LCSW – offer these 9 tips for talking with your children about their illness.
It was glitter and glue when patients, visitors, and Dana-Farber staff gathered on Oct. 4 to create art on an unusual canvas – bras. Hosted by Friends’ Place and Dana-Farber’s Creative Arts Program, the “Decorate a Brassiere” art therapy event allowed attendees to creatively honor Breast Cancer Awareness Month.