“Stay positive, I know it helps.”
“What steps would you suggest I take to support my dad through all of this?”
“I am a new member of this group.”
These conversations are occurring online, at any time of day, in a community most people would not want to join: A group of cancer patients.
By Lola Baltzell
I have been a metastatic breast cancer patient at Dana-Farber for over four years now. I have an amazing team of providers, especially my oncologist Ann Partridge, MD, MPH, and nurse practitioner Anne Kelly, MSN, NP.
Helping a loved one face cancer is never easy, but the challenge is especially daunting when the patient is your own child. Our clinicians at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center work with pediatric cancer patients and their families every day. Lisa Diller, MD, Anna Muriel, MD, and Jorge Fernandez, LCSW – offer these 9 tips for talking with your children about their illness.
It was glitter and glue when patients, visitors, and Dana-Farber staff gathered on Oct. 4 to create art on an unusual canvas – bras. Hosted by Friends’ Place and Dana-Farber’s Creative Arts Program, the “Decorate a Brassiere” art therapy event allowed attendees to creatively honor Breast Cancer Awareness Month.
By Lola Baltzell
People often ask me: How do you manage to live with metastatic breast cancer? One of the most important strategies for me has been building a support network.
My diagnosis of breast cancer that had already spread to my bones came out of the blue. I had a normal mammogram 13 months earlier, and no known risk factors. So when I heard the news in August 2008, my first impulse was to reach out for support.
When a friend is diagnosed with cancer, your first reaction may be, “How can I help?” However, answering that question may be difficult. Some friends may be public about their health, and about what they need, while others may be more private.
When we are sick, the kindness of others carries us through. Visits from those we love provide comfort and a hand to hold. But for Cindy Hale, healing meant limiting contact with family and friends. Hale underwent an allogeneic stem cell transplant in 2002, leaving her immunocompromised – with a weakened immune system. Cancer patients in … Read more
One of the easiest and most effective ways to help cancer patients is to give blood. There is a constant need for donations, but especially so in the summer when people are on vacation and unable to donate. One pint of blood can save up to two lives, and one platelet donation can save up to three.
By Karen Lee Sobol
I recently learned that the word “patient” shares a Latin root with the word “compassion.”
Any one of us can become a patient, for a number of reasons. For me, hearing a diagnosis of Waldenström’s macroglobulinemia flipped a switch. I became a patient in a big way.
If you’re diagnosed with cancer, you’ll probably get used to people asking about your health. And whether you’re fielding the concerns of well-meaning friends and family or the professional interests of your care team, you’ll gradually learn what responses to give. But many cancer patients and survivors choose to keep part of their journey private … Read more
In celebration of Living Proof week, Insight honors cancer survivors with daily posts about survivorship. When I was discharged from the hospital in 1996 after undergoing a stem cell transplant to treat leukemia, I was terrified. Yes, I’d survived cancer treatment, but now I had to deal with something even scarier: the unknown. If you’ve recently ended active treatment and are … Read more
In celebration of Living Proof week, Insight honors cancer survivors with daily posts about survivorship.
The United States today is home to an estimated 12 million cancer survivors, thanks largely to advances in cancer treatment. But the end of treatment is not the end of the cancer experience.
For many cancer survivors and caregivers, the years after cancer treatment can bring physical and psychological challenges, says Ann Partridge, MD, MPH, founder and director of Dana-Farber’s Program for Young Women with Breast Cancer and director of the Adult Survivorship Program.
For most people, a cancer diagnosis brings the daily routine of life to a grinding halt, at least temporarily. But after the initial shock wears off, many patients strive to resume their everyday activities, including vacation or travel plans. Being treated for cancer doesn’t necessarily mean cancelling your summer vacation. Many people travel during and … Read more
For people with cancer, deciding how, and what, to tell others about the diagnosis can be a challenge. How do you tell your loved ones, or your employer, that you have cancer?
For parents, there’s another degree of difficulty: What do you say to your children? How much will they understand, and what’s the best approach?
Susan Englander, LICSW, a social worker at Dana-Farber Cancer Institute who specializes in working with young adult patients — many of whom have children — offers these tips to parents with cancer on how to talk to their kids and help them through the process.
In low-income, minority communities, tight-knit social connections can lead people to eat right and be physically active — but they can also sometimes be an obstacle to a healthy lifestyle, according to new research by investigators at Dana-Farber and the Harvard School of Public Health.
The findings present a mixed picture of the benefits and potential downsides of social ties as they relate to a healthy lifestyle.
As a Dana-Farber employee planning events for the opening of Dana-Farber’s Yawkey Center for Cancer Care, I knew the building was designed with guidance from patients and families.
But I had no idea how important this was until shortly after the building opened – and, newly diagnosed with acute t-cell lymphoblastic leukemia/lymphoma, I walked through the doors as a patient myself.
If you’re supporting a friend or family member who is undergoing cancer treatment, you may not think of yourself as a “caregiver.” It’s a role that can be very rewarding, but also challenging and stressful.
You may find yourself juggling an incredible range of duties above and beyond what you regularly do at home and at work. From driving your loved one to appointments, to discussing medical issues with health care professionals, to making dinner every night, you may find that you’re taking care of nearly everything – except yourself.
But your loved one’s well-being depends on you, so it’s important that you also take care of yourself. Nancy Borstelmann, LICSW, MPH, a licensed clinical social worker who serves as Dana-Farber’s director of patient and family support and education, shares some tips that may help.
Imagine being 22 and having your two biggest fears come true: You have cancer, and your treatment may leave you unable to have children in the future.
While you’re still coming to terms with the diagnosis, you now have to make some major life decisions. Do you want to freeze your eggs? Or should you choose a sperm donor and freeze fertilized eggs instead? Don’t forget to consider your husband’s feelings — even though he isn’t even in your life yet.
Look closely at some of the steel beams that support Dana-Farber’s Yawkey Center for Cancer Care and you’ll see the names of patients spray-painted in bright colors by ironworkers during the building’s construction.
These beams frame the building, but patients and families have lent far more than their names to the facility’s creation.
Their guidance underpins almost every aspect of the Yawkey Center. From the healing garden to the layout of exam rooms to the parking garage, the imprint of our patients and families is felt across the Institute.
Here, Janet Porter, PhD, chief operating officer, recalls in her own words the benefits of working closely with patients and families.
The Super Bowl this weekend is the result of a lot of training and planning (and luck) on the part of the two competing teams. Players have to know their roles and everyone needs to work to the same game plan — and be ready to change tactics in an instant. In the same way, … Read more