Putting College – and Field Hockey – on Hold for a Bone Marrow Transplant

By Dana Mendes Like many high school students, I was eager to start a new chapter of my life after graduating in 2015. I had committed to play field hockey at Assumption College in Worcester, Massachusetts, that fall, and spent the summer working out alongside my new teammates – determined to prove myself on the … Read more

Tips for Celebrating the Holidays after a Stem Cell Transplant

The holidays can be a happy time of family gatherings and traditions, but the combination of extended family and friends and cold and flu season can be dangerous for patients who are immunocompromised following recent stem cell transplants to treat blood cancers including multiple myeloma, leukemia, lymphoma, and related disorders. “When transplant patients leave the … Read more

What Is a Reduced-Intensity Stem Cell Transplant?

A reduced-intensity stem cell transplant, also known as a ‘mini’ transplant, is a modified form of a procedure that replaces a patient’s blood-forming stem cells with those of a compatible donor. Mini-transplant patients receive lower doses of chemotherapy than are used in a full-intensity, or myeloablative, transplant, and, in general, receive no radiation therapy. The … Read more

Daughter Donates Stem Cells to Honor Dad’s Successful Transplant

Lauren Marsden joined DKMS/Delete Blood Cancer Registry during freshman orientation at St. Anselm’s College for the same reason she majored in nursing: She wanted to help others. What she couldn’t foresee then was how this decision would intersect with her own family’s experience. Two months after Lauren’s graduation in May 2014, her father was diagnosed … Read more

Pediatric Transplant Patients Fight Cancer as Karate Kids

Jessica Madsen wasn’t sure if her daughter, Addy, was ready for karate, until the 4-year-old got the chance to take free lessons in the most surprising place: Her hospital room. Addy and other stem cell transplant recipients at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center are offered free martial arts coaching during their inpatient recovery … Read more

Brother Donates Stem Cells to Sister Battling Leukemia

On September 24, 2015, in a sixth floor room at Boston Children’s Hospital, 5-year-old Logan Lesselroth pressed the button that started the transfer of his newly harvested blood stem cells to his 3-year-old sister, Gianna. “This,” Gianna told him, “is a gift from your body.” The path to that moment and the stem cell transplant’s … Read more

Dana-Farber Staffer Marks Five Years Post-Transplant with Run of a Lifetime

Mary Taber’s marathon training requires a singular focus. It is demanding, solitary, life-affirming – not unlike her treatment five years ago for aplastic anemia and paroxysmal nocturnal hemoglobinuria (PNH). Taber, intranet editor at Dana-Farber, will mark five years from her March 2011 bone marrow transplant by taking to the storied Boston Marathon® route on April … Read more

FDA Approval of Defibrotide Brightens Outlook for Stem Cell Transplant Patients

Patients and Dana-Farber researchers alike welcomed this week’s Food and Drug Administration (FDA) approval of a new drug for a potentially fatal side effect of stem cell transplants. The approval means patients can receive the drug, defibrotide, as standard therapy for hepatic veno-occlusive disease (VOD) of the liver, a dangerous condition that sometimes follows transplantation … Read more

Aplastic Anemia or Dyskeratosis Congenita? Unclear Diagnosis Demands a Difficult Decision

Having a child diagnosed with a life-threatening illness is heart-wrenching for all parents, but when the diagnosis itself is uncertain, parents can face excruciatingly difficult decisions. This is what Katie and Josh Stevens of Idaho confronted after their son Riley was diagnosed in October 2012 with the blood disorder aplastic anemia, in which the body’s … Read more

For College Athlete-Turned Transplant Patient, Life’s Still a Ball

The first time a stem cell transplant recipient leaves his or her quarantined hospital room marks a significant milestone. In the case of Dana Mendes, this move toward independence included an additional step: chasing a ball through the hallways with a stick. For Mendes, 18, it was a return to what she loves. She had … Read more

Despite Difficult Stem Cell Transplant, Teen Remains Active

Drew D’Auteuil is a 17-year-old animal-loving, skiing, rowing, volleyball- playing, honor roll student with braces and a shock of red hair. Although he may seem like a typical teen, D’Auteuil has survived rare, life-threatening complications of a stem cell transplant for severe aplastic anemia. “It’s eye-opening to realize how fragile life really is when you’re … Read more

How to Prepare Your Home for a Stem Cell Transplant Patient

Leaving the hospital is an important milestone for stem cell transplant patients, because it marks the first return home after what can often be an extended recovery. But this homecoming also requires a bit of advance preparation. That’s because stem cell transplants destroy and rebuild the immune system, leaving patients immunocompromised and thus more vulnerable … Read more

Stem Cell Transplant Donor, Recipient Meet for First Time at Fenway Park

After trying chemotherapy to fight acute myeloid leukemia, an aggressive blood cancer, Donnie Lewis, a 56-year-old husband and father of two from Canton, Mass., learned that his best chance to return to health would be through a stem cell transplant. Because Donnie didn’t have any siblings who were a match for this procedure, his care … Read more

Answers to Common Questions About Stem Cell Transplants

Stem cell transplantation can be a life-saving treatment option for patients with blood cancers or disorders. The procedure, sometimes called bone marrow transplantation, replaces bone marrow that doesn’t work correctly or has been damaged by disease. We spoke with Joseph Antin, MD, chief of the Stem Cell Transplantation Program at Dana-Farber/Brigham and Women’s Cancer Center, … Read more

Dentist Brings a Smile to Transplant Patients

Like many family members of cancer patients, Stephen Matarazzo, DMD, wanted a meaningful way to thank the Dana-Farber caregivers who saved his son Michael’s life. What he came up with involved offering his own professional expertise to protect the smiles of others. A dentist based in Quincy, Mass., Matarazzo provides pro bono dental exams and … Read more

Months After Transplant, Teen Hits the Soccer Field

Some 100 days after receiving a stem cell transplant to cure his severe aplastic anemia, 13-year-old Behaylu Barry still couldn’t invite friends into his home. He can’t return to school until January, when his immune system will finally be strong enough to fight the pathogens present in indoor spaces. Yet  Behaylu was doing so well … Read more

Living Life

By Jack Coates

In May 2001, I was diagnosed with medulloblastoma. I was 19 years old and had just finished my freshman year at Johnson & Wales University in Rhode Island.

Medulloblastoma is a cancer that affects the brain and the spine. I had three surgeries, 52 weeks of chemo, and six weeks of radiation. I spent a year and two months in the hospital and went from 217 pounds to 97. I was scared. I was asking God: “Why?  Why did it have to happen to me?” It was shocking. Many things went through my mind.

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