Making a party out of cancer

Every Sunday, the Cutter family holds a Chemofeast. The door to their home is open to any and all who wish to attend. It’s a day full of food, beverages, and a lot of laughter, and 15-year-old Blake Cutter gets to choose the menu. Then on Monday, his mother, Lois, drives him to chemotherapy at Dana-Farber.

Meet Henry: a cancer survivor who was diagnosed before he was born

Henry Fenollosa’s problems began before he was born, when he was diagnosed with neuroblastoma. His infancy was was spent largely at Dana-Farber’s Jimmy Fund Clinic, where he received treatment for his disease with his family looking on. Today, Henry’s an active seven-year-old, who loves to show off his lacrosse stickhandling abilities and his skill on a bicycle. Meet the amazing seven-year-old in this video. Tune into WEEI or NESN to hear Henry live on the WEEI/NESN Jimmy Fund Radio Telethon on August 22, 2012. Henry is scheduled to be on WEEI during the 11 a.m. hour on Wednesday.  

Why pediatric survivor programs are so important

In celebration of Living Proof week, Insight honors cancer survivors with daily posts about survivorship.  When Dana-Farber launched its David B. Perini, Jr. Quality of Life Clinic nearly 20 years ago, it was one of the nation’s first programs dedicated to helping childhood cancer survivors. From the beginning, the pediatric survivorship clinic has been guided by clinic director Lisa Diller, MD, who is recognized globally for her contributions to cancer survivorship and pediatric oncology. The Perini clinic has developed resources that help survivors address issues such as the long-term effects of treatment, the risk of second cancers, and the psychological concerns of being a cancer survivor.

Therapy dogs bring smiles to kids with cancer

With the pitter patter of small feet, Phil makes his way through the halls of Boston Children’s Hospital. He walks with a purpose, boarding the elevator that takes him to the oncology floor for his next appointment. Phil is a new face in 6 North, the oncology unit at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center. A spunky pug mix who knows a trick or two, Phil is one of nine therapy dogs who visit pediatric patients at Boston Children’s Hospital as part of the Pawprints Program. What he lacks in medical credentials and size, he easily makes up for in …

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A new approach to old ideas about diffuse intrinsic pontine glioma

Hilary Olson had no reason to suspect that her daughter Hailey might have a brain tumor. “Her smile was starting to droop a little, and one of her eyes was a little jumpy,” says the 6-year-old’s mother. “We took her to see a neurologist, and he thought she might have pinched a nerve. “But when he sent us to Boston Children’s Hospital for an MRI,” she continues, “the radiologists sent us straight down to the emergency room.”

Two dads, one cause, and a whole lot of love

No one would choose the way Glen Jusczyk and Greg Kelly became friends: at the bedsides of their little girls with cancer. Yet these extraordinary circumstances created not just a friendship, but a desire to give back to the place providing their children’s care. On April 16, these dads, who consider themselves “out of shape,” will run the 116th Boston Marathon® as two of more than 550 runners on the Dana-Farber Marathon Challenge team to raise money for the Claudia Adams Barr Program in Innovative Basic Cancer Research at Dana-Farber. Jusczyk’s daughter, Malia, was diagnosed with neuroblastoma, a cancer that …

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Family bonding in the Jimmy Fund Clinic

By Sara Dickison Taylor When our daughter Emily was diagnosed with leukemia at age 5, we found solace and support from other families facing pediatric cancer at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center. Our visits to Dana-Farber’s Jimmy Fund Clinic became a well-rehearsed play. If it was Friday, it was clinic day. Instead of going to kindergarten or playing with her friends like most 5-year-olds, Emily had her vital signs taken, had blood drawn through her Port-a-Cath, and received a weekly infusion of chemotherapy, platelets, and blood. It was difficult at times, but making friends with other families going …

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Mattel announces hairless version of Barbie doll

Mattel Inc., maker of Barbie dolls, last week announced that it would create a bald version of the popular fashion doll to support people battling cancer. The announcement came a few months after Beautiful and Bald Barbie, a Facebook group that petitioned Mattel to make a hairless version of the doll, gained mass support online. Their mission was simple: We would like to see a Beautiful and Bald Barbie made to help young girls who suffer from hair loss due to cancer treatments, alopecia or trichotillomania. Also, for young girls who are having trouble coping with their mother’s hair loss …

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