Leukemias, childhood , Patient Stories, Pediatric
Brother’s Stem Cells Make Remission Possible for Pediatric Leukemia Patient

Pediatric leukemia patient Emma Duffin is in remission, thanks to the stem cell transplant made possible by her brother, Alexander.

May 11, 2018
0
Acute lymphoblastic - ALL , Acute myeloid - AML , Chronic lymphocytic - CLL , Chronic myelogenous - CML , Leukemias , Leukemias, childhood
How are Adult and Pediatric Leukemia Alike and Different?

Leukemia is a blood cancer that results when stem cells in the bone marrow produce abnormal blood cells.

March 7, 2018
1
Blood disorders, childhood , Care for children , Leukemias, childhood
What Parents of Pediatric Leukemia Patients Need to Know

Leukemia is a type of cancer that starts in early forms of white blood cells. White blood cells are cells that typically fight infections.

February 22, 2018
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Childhood , Rare tumors, childhood
What is Retinoblastoma and How is it Treated?

Retinoblastoma is a rare childhood cancer of the eye. It arises from the retina, the nerve tissue in the back of the eye that is sensitive to light.

February 6, 2018
0
Childhood
From Pediatric Cancer Treatment to Capitol Hill

Washington, D.C., can be a frenzied place, especially for a college student juggling a full class load and congressional internships on Capitol Hill. Jen Fox, however, is taking it all in stride. How does she stay so calm? Well, Fox suggests, two bouts with Hodgkin lymphoma in three years, and […]

July 3, 2017
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General interest
Patrice Kelly’s Journey from Jimmy Fund Clinic Mom to Breast Cancer Patient

Charlotte Kelly hated having her chemotherapy port accessed, but her mother, Patrice, found a way to calm the toddler. Each time tears came, Patrice would rub her nose against Charlotte’s – and the pair would get past their fears together. Today the ritual continues, even though Charlotte’s last neuroblastoma checkup […]

June 28, 2017
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Care for children
College Student Reconnects with the Oncologist Who Saved Her Life

This post originally appeared on Thriving, the Boston Children’s Hospital blog. Anna Protsiou was 5 when she was diagnosed with neuroblastoma in 2002. She remembers pain, and fruit-scented anesthesia masks that led her to stop eating cherries. She also remembers hospital arts and crafts projects. What she barely remembers is […]

June 20, 2017
0
General interest , Podcasts
Voices Podcast – Season 2 Episode #4: Then and Now with Neuroblastoma Patient Emily Coughlin

Amy McHugh’s 4-year-old daughter, Emily Coughlin, was a typical kid – playful and inquisitive – until May 2009, when she started complaining of knee pain. After a visit to the pediatrician, and a misdiagnosis of Lyme disease, the family ended up at Boston Children’s Hospital, where they received a devastating […]

June 7, 2017
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Cancer research , Care for children
An Unclassified Tumor — with a Precisely Targeted Therapy

Early last year, at his home in San Juan, Puerto Rico, Jesus Apolinaris Cruz’s leg hurt so much he could barely sleep. “All day, it was constant pain,” the 13-year-old recalls. His parents took him to two local pediatricians, who examined him, drew blood, and tested his platelets. No diagnosis. […]

June 6, 2017
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Brain tumors, childhood , CAR T-cell therapy , Care for children , Childhood
What’s New in Pediatric Brain Tumor Research and Care?

Mark W. Kieran, MD, PhD, director of Pediatric Medical Neuro-Oncology at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center, spoke to pediatric patient families in a recent Facebook Live Webchat addressing pediatric brain tumor care. Kieran answered questions from audience members about the most common of the 300 brain tumor types […]

May 24, 2017
0
Childhood , Fertility Preservation , Survivorship
Facing Fertility Issues as a Pediatric Cancer Survivor

In her research studies with young adult survivors of childhood cancers, pediatric oncologist Natasha Frederick, MD, MPH, of Dana-Farber/Boston Children’s Cancer and Blood Disorders Center, explored sexual dysfunction in survivors between the ages of 18 and 30 years old. She found that most of these young survivors reporting such problems keep their concerns from partners, […]

May 18, 2017
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Blood disorders, childhood , Cancer research , Patient Stories, Pediatric
How Pediatric and Canine Cancer Similarities Can Help Both Children and Pets

In March 2016, Ollie the pug, a therapy dog at Boston Children’s Hospital, paid a bedside visit to 7-year-old Carter Mock. Both dog and boy lost limbs to osteosarcoma, a cancer of the bone. Ollie’s left front leg was amputated at the shoulder. After removing the tumor in Carter’s left […]

May 2, 2017
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Acute lymphoblastic - ALL , Coping with Cancer , Health Topics , Patient Stories, Adult , Stem cell/Bone marrow transplant
He Lost His Sight to Cancer, But Not His Vision of a Full Life

When Tim Conners collected his wish from the Make-A-Wish Foundation in 2012 at the age of 18, he was blind from childhood leukemia that had spread to his optic nerve. A football player and wrestler who’d never been an outdoorsman, he asked to meet Erik Weihenmayer, the first blind person […]

April 24, 2017
1
Care for children , Coping with Cancer
Finding Strength and Beauty During Annual ‘Girls Weekend’

For seventeen girls and patients at Dana-Farber Boston Children’s Cancer and Blood Disorders Center, Dana-Farber’s annual Girls Weekend – a three-day arts, shopping, and food extravaganza – is a much-needed opportunity to relax and connect with new friends who also know what it’s like to have cancer. “Being a teenager […]

March 24, 2017
0
Care for children , Non-Hodgkin lymphoma , Patient Stories, Pediatric
Lymphoma Patient Gets Back on the Court Post-Treatment

For much of his 17 years, Spencer Riley has lived to play basketball. This winter, his favorite sport helped the teenager get back to life. Riley was diagnosed with non-Hodgkin lymphoma in 2016 and treated at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center that summer. He underwent an intensive three-month […]

March 22, 2017
0
Acute lymphoblastic - ALL , Cancer research , Care for children , Leukemias , Research
Do Childhood Leukemia Patients with Down Syndrome Need Modified Therapy?

Because of their increased susceptibility to the toxicities of chemotherapy, should ALL patients with Down syndrome receive modified treatment to minimize this risk? Or should they be given the same treatment as other children with ALL, to minimize the chance for relapse?

February 17, 2017
0
Care for children , General interest
Improving Childhood Cancer Treatment Worldwide [Infographic]

Cancer knows no borders, and pediatric patients in low- and middle-income countries often have less access to quality care. The Global Health Initiative at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center exists to change this by improving outcomes and survival rates for children with cancer and blood disorders, regardless of […]

February 15, 2017
0
Care for children , Patient Stories, Pediatric
When Your Sons Are Both Diagnosed with Cancer

By Ebony Glass One day, our 2-year-old son Javon complained about a bit of pain at daycare. It seemed harmless enough. But after a visit to the pediatrician, we ended up in the hospital for emergency surgery. There, they discovered that a mass in his body was causing the pain. “Cancer?” […]

January 11, 2017
1
Care for children , General interest , Patient Stories, Adult , Patient Stories, Pediatric , Psychosocial Oncology
The Loss of a Child: Stories from Three Bereaved Parents

As told to Sue Morris, PsyD As director of Dana-Farber’s Bereavement Program, I regularly sit with bereaved individuals, listen to their stories, and help them navigate their lives after they have been completely turned upside down. I recently spoke with three bereaved parents who are members of Dana-Farber’s Pediatric Patient […]

December 29, 2016
0
Care for children , Childhood , Patient Stories, Pediatric , Risk and Prevention , Stem cell/Bone marrow transplant
Newborn Screening Saves Baby from “Bubble Boy” Disease – Before He Ever Gets Sick

Happy to have given birth in January 2015 to two seemingly healthy boys, Levi and Colton, after an uneventful pregnancy, Kala Looks gave little thought to the routine heel prick of newborn screening. At 23 and 24, she and her husband, Phillip, were high school sweethearts starting a family with […]

December 27, 2016
0

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Patient and Family Blogs

Patients and families of patients at Dana-Farber often chronicle their own experiences with cancer.

Here are some blogs that you can follow.