Aplastic Anemia or Dyskeratosis Congenita? Unclear Diagnosis Demands a Difficult Decision

Having a child diagnosed with a life-threatening illness is heart-wrenching for all parents, but when the diagnosis itself is uncertain, parents can face excruciatingly difficult decisions. This is what Katie and Josh Stevens of Idaho confronted after their son Riley was diagnosed in October 2012 with the blood disorder aplastic anemia, in which the body’s … Read more

How Precision Cancer Care Saved a Life

Ronaldo de Oliveira was close to death. The 33-year-old father of two young children had been diagnosed with myeloid sarcoma, a rare form of leukemia that worsened despite treatment with six different chemotherapy regimens. His wife pleaded with his oncologist, Richard Stone, MD, director of the Adult Leukemia Program at Dana-Farber, to find something else … Read more

Cancer Treatment and Fertility: Acting Now to Have Children Later

This post originally appeared on Notes, Boston Children’s Hospital’s Clinical Health Blog. With over 75 percent of children diagnosed with cancer surviving into adulthood, more and more parents ask questions about the quality of life survivors can expect in the future, including: Will my child be able to have children down the road? They’re right to … Read more

Young Neuroblastoma Patient and Family Make New Home at Dana-Farber/Boston Children’s

Bridgette West sparkled last fall in the “Fight Song” music video created by patients at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center. But before the 2-year-old became a social media standout with her dancing, she and her family faced challenges that went far beyond a cancer diagnosis. In the summer of 2015, after struggling for … Read more

How Genetics Can Help Predict — and Sometimes Stop — Childhood Cancers

Amy Kindstedt hates cancer, but the 9-year-old is very thankful for one thing: Because genetic testing on her baby brother Hunter revealed he had the same genetic mutation she did, his cancer was caught much earlier –  possibly sparing him the same level of intense treatment she endured. The mapping of the human genome has … Read more

For College Athlete-Turned Transplant Patient, Life’s Still a Ball

The first time a stem cell transplant recipient leaves his or her quarantined hospital room marks a significant milestone. In the case of Dana Mendes, this move toward independence included an additional step: chasing a ball through the hallways with a stick. For Mendes, 18, it was a return to what she loves. She had … Read more

Nine-Year-Old Honors Dad’s Cancer Journey by Supporting Other Patients

Peter Silveira took to calling his daughter, Hannah, a good luck charm during his treatment for gray-zone lymphoma in 2014-15. Now, with her dad’s cancer in remission, the grade-schooler – who accompanied him to several of his treatments at Dana-Farber/Brigham and Women’s Cancer Center (DF/BWCC) – has taken it upon herself to pass some of … Read more

Empowering Patients with Music

Whether it’s creating a work of art, taking time to meditate, or chronicling their experience through a blog, cancer patients find many creative ways to cope with their diagnosis and treatment. In many cases, music can also help patients express their physical and emotional challenges, and a new mobile recording studio at Dana-Farber is bringing … Read more

In Precision Medicine, Pioneering Young Patient Teaches Veteran Doctor

Allison Schablein seems an unlikely candidate to teach medicine to Mark Kieran. She’s an 8–year-old New Hampshire second grader who loves basketball, hip hop, acrobatic dancing and jewelry. He’s a pediatric neuro-oncologist with a PhD in molecular biology, not to mention decades of clinical and research experience. But teach Kieran, Allison does. In December 2012, … Read more

Cancer Conversations Podcast – Episode #1: Integrative Therapies for Cancer

While the medical treatments for cancer can help fight off deadly disease, these life-saving therapies can also cause physical and emotional side effects. For some patients, the use of integrative therapies can help ease or eliminate treatment-related symptoms. In this Cancer Conversations podcast episode – the first of the series – David Rosenthal, MD, former … Read more

One Year After Brain Tumor Surgery, 10-Year-Old Celebrates with Holiday Concert

A year ago, Aimee Fellows couldn’t imagine being back at Boston Children’s Hospital, awaiting the start of another violin concert featuring her daughter. Sophie, now 10 years old, is dressed this time in a frilly white blouse, black skirt and black dress shoes, her first pair of heels, albeit little more than an inch higher … Read more

Despite Difficult Stem Cell Transplant, Teen Remains Active

Drew D’Auteuil is a 17-year-old animal-loving, skiing, rowing, volleyball- playing, honor roll student with braces and a shock of red hair. Although he may seem like a typical teen, D’Auteuil has survived rare, life-threatening complications of a stem cell transplant for severe aplastic anemia. “It’s eye-opening to realize how fragile life really is when you’re … Read more