Hilary Olson had no reason to suspect that her daughter Hailey might have a brain tumor.
“Her smile was starting to droop a little, and one of her eyes was a little jumpy,” says the 6-year-old’s mother. “We took her to see a neurologist, and he thought she might have pinched a nerve.
“But when he sent us to Boston Children’s Hospital for an MRI,” she continues, “the radiologists sent us straight down to the emergency room.”
Jerry Greenfield and Ben Cohen are the smiling faces once found on every container of Ben & Jerry’s ice cream. The Burlington, Vt. company’s co-founders have become as famous for their charitable work as they are for Cherry Garcia and Chunky Monkey.
Here Jerry talks about his company’s support of Dana-Farber’s Jimmy Fund Scooper Bowl® presented by FedEx, the nation’s largest all-you-can-eat ice cream festival to be held this year from noon to 8 p.m. on June 5-7 at Boston’s City Hall Plaza.
For most people, a cancer diagnosis brings the daily routine of life to a grinding halt, at least temporarily. But after the initial shock wears off, many patients strive to resume their everyday activities, including vacation or travel plans. Being treated for cancer doesn’t necessarily mean cancelling your summer vacation. Many people travel during and … Read more
More than 600,000 people in the United States are living with a primary brain tumor — one that begins and stays in the brain — and over 60,000 adults and children will be diagnosed with a brain tumor this year.
In recognition of May as Brain Tumor Awareness Month, we asked David Reardon, MD, clinical director of the Center for Neuro-Oncology at Dana-Farber/Brigham and Women’s Cancer Center, for the latest advances in brain tumor research and patient care.
Watch and wait. That’s often one of the new terms added to your vocabulary when you’re diagnosed with cancer. Or maybe it’s wait and watch. Or active monitoring. Whatever it’s called, sometimes it’s the term used when there’s nothing to do to treat your particular cancer but wait. That’s a hard thing to do, most doctors … Read more
For people with cancer, deciding how, and what, to tell others about the diagnosis can be a challenge. How do you tell your loved ones, or your employer, that you have cancer?
For parents, there’s another degree of difficulty: What do you say to your children? How much will they understand, and what’s the best approach?
Susan Englander, LICSW, a social worker at Dana-Farber Cancer Institute who specializes in working with young adult patients — many of whom have children — offers these tips to parents with cancer on how to talk to their kids and help them through the process.
Rebecca Byrne had waited years for a doctor to tell her, “You’re pregnant.” She never imagined that just a few months after she first heard those words, she would hear four more: “You have breast cancer.”
Byrne still tears up when telling the story, but smiles when her 20-month-old daughter, Emelia, leaps into her lap. Emelia is the happy outcome of a painful period of Byrne’s life, when the joys of pending and early motherhood were shadowed by chemotherapy treatments, hair loss, radiation, and uncertainty.
In low-income, minority communities, tight-knit social connections can lead people to eat right and be physically active — but they can also sometimes be an obstacle to a healthy lifestyle, according to new research by investigators at Dana-Farber and the Harvard School of Public Health.
The findings present a mixed picture of the benefits and potential downsides of social ties as they relate to a healthy lifestyle.
By James Bond “How long will I live?” I asked my oncologist in Ohio in 1992, when I was 44 and diagnosed with multiple myeloma. “Three years,” he answered. Instead, I enjoyed 10 more years of active living. Then my disease began to overtake me; my kidneys were failing, I was unable to eat solid … Read more
The Encyclopedia Britannica may have published its last print edition, but a group of Dana-Farber scientists and their colleagues recently produced one of the first encyclopedias to help researchers determine which subtypes of cancer are likely to respond to current drugs.
The freely available, online encyclopedia lists hundreds of cancer subtypes – each with a unique set of genetic abnormalities that define it – along with drugs that are known to target those defects. The data, described alongside a similar catalog developed by another team of investigators, will guide researchers in designing clinical trials – improving the chances that the drug being studied will act against the particular genetic vulnerabilities within a tumor.
Often caused by excessive exposure to ultraviolet (UV) rays in sunlight, melanoma accounts for only 4 to 5 percent of skin cancer cases, but is responsible for most skin cancer-related deaths. As with many forms of cancer, melanoma is often misunderstood, and myths persist. When detected and treated in its earliest stages, however, melanoma is often … Read more
As a cancer biologist, Dr. Kornelia (Nelly) Polyak pores over countless images of breast cancer cells and their surrounding tissues, data tables, and graphs – visuals that only a scientist can find beautiful.
But when she sits down to paint, Polyak fills large canvases with a riot of vivid and deeply saturated colors, with thick brushstrokes rendering landscapes like purple fields of lavender in France, red-tiled houses on the Italian coast, and lush English gardens.
Polyak’s chosen medium is acrylic paint applied with little water and so thick that it resembles oils. She has been inspired by the Impressionist painters, including Monet and Manet and especially Van Gogh, with his bright colors and wide brush strokes.
What age is appropriate to get screened for prostate cancer and begin treatment? Recent news surrounding Warren Buffett’s diagnosis, including a report on Boston.com, has some asking if age should factor into these decisions. Dr. Philip Kantoff, chief of the Division of Solid tumor at Dana-Farber and director of Dana-Farber’s Lank Center for Genitourinary Oncology, speaks … Read more
Bryan Reilly has a full-time job and a passion for exercise. He skis, climbs mountains, works out regularly, and runs a mile in under 8 minutes.
Any 56-year-old could be proud of being so fit. But for Reilly, it’s a special triumph: Less than two years ago he was diagnosed with an often-lethal and aggressive brain tumor.
Chinese scientists recently found a gene that encourages the growth of a form of lung cancer by switching on a circuit that includes a gene called sonic hedgehog. How do genes get their names? When a scientist discovers a new human gene, he or she submits a proposed name to the Human Gene Nomenclature Committee … Read more
No one would choose the way Glen Jusczyk and Greg Kelly became friends: at the bedsides of their little girls with cancer. Yet these extraordinary circumstances created not just a friendship, but a desire to give back to the place providing their children’s care.
On April 16, these dads, who consider themselves “out of shape,” will run the 116th Boston Marathon® as two of more than 550 runners on the Dana-Farber Marathon Challenge team to raise money for the Claudia Adams Barr Program in Innovative Basic Cancer Research at Dana-Farber.
Jusczyk’s daughter, Malia, was diagnosed with neuroblastoma, a cancer that forms in nerve tissue and mostly affects young children, when she was just 2 years old. The family moved from Orlando, Florida, to Boston shortly after the news so she could be treated in the Neuroblastoma Program at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center, which provides research and the latest treatments.
“We packed our bags as soon as we could,” recalls Jusczyk. “We have family in the Boston area and we wanted Malia to be at the best cancer center in the world for her disease.” There, Jusczyk met Kelly, whose 5-year-old daughter, Charlotte, was across the hall fighting the same type of cancer.
By Sara Dickison Taylor
When our daughter Emily was diagnosed with leukemia at age 5, we found solace and support from other families facing pediatric cancer at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center.
Our visits to Dana-Farber’s Jimmy Fund Clinic became a well-rehearsed play. If it was Friday, it was clinic day. Instead of going to kindergarten or playing with her friends like most 5-year-olds, Emily had her vital signs taken, had blood drawn through her Port-a-Cath, and received a weekly infusion of chemotherapy, platelets, and blood. It was difficult at times, but making friends with other families going through the exact same thing made it bearable.
It takes a village to help you through a child’s cancer treatment, and that includes other families as well as our clinical care team. The Jimmy Fund Clinic usually schedules appointments so that children come in on the same day each week – giving their patients and families a real sense of continuity. We forged relationships with many other “Friday families.” Seeing familiar faces lifted us up and offered a sense of comfort that was just as important for us parents as for the kids. The clinic became a small community for us – our own village.
Cancer cells have a voracious appetite for glucose, a form of sugar, and consume it in much greater amounts than normal cells do. The knowledge of cancer cells’ zest for sugar has led some people to wonder if eating less sugar would restrain tumors’ growth, and what the link between cancer and sugar is. While … Read more
The American Association for Cancer Research recently held its annual meeting in Chicago. Dr. Loren Walensky of Dana-Farber/Children’s Hospital Cancer Center talks about some of the highlights, including personalized medicine and a new grant that’s helping his team develop new technology to target cancer.
Mattel Inc., maker of Barbie dolls, last week announced that it would create a bald version of the popular fashion doll to support people battling cancer.
The announcement came a few months after Beautiful and Bald Barbie, a Facebook group that petitioned Mattel to make a hairless version of the doll, gained mass support online. Their mission was simple:
We would like to see a Beautiful and Bald Barbie made to help young girls who suffer from hair loss due to cancer treatments, alopecia or trichotillomania. Also, for young girls who are having trouble coping with their mother’s hair loss from chemo. Many children have some difficulty accepting their mother, sister, aunt, grandparent or friend going from long-haired to bald.
“A hairless doll could really present a great opportunity for families and medical providers to talk about illness and hair loss with kids facing those issues,” says Cori Liptak, PhD, a psychologist in the Division of Pediatric Psychosocial Services at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center. “It could also be an interactive way for some children to express their emotions about their own medical experience.”