Why pediatric survivor programs are so important

In celebration of Living Proof week, Insight honors cancer survivors with daily posts about survivorship. 

When Dana-Farber launched its David B. Perini, Jr. Quality of Life Clinic nearly 20 years ago, it was one of the nation’s first programs dedicated to helping childhood cancer survivors.

From the beginning, the pediatric survivorship clinic has been guided by clinic director Lisa Diller, MD, who is recognized globally for her contributions to cancer survivorship and pediatric oncology. The Perini clinic has developed resources that help survivors address issues such as the long-term effects of treatment, the risk of second cancers, and the psychological concerns of being a cancer survivor.

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A comprehensive approach to care for cancer survivors

In celebration of Living Proof week, Insight honors cancer survivors with daily posts about survivorship. 

The United States today is home to an estimated 12 million cancer survivors, thanks largely to advances in cancer treatment. But the end of treatment is not the end of the cancer experience.

For many cancer survivors and caregivers, the years after cancer treatment can bring physical and psychological challenges, says Ann Partridge, MD, MPH, founder and director of Dana-Farber’s Program for Young Women with Breast Cancer and director of the Adult Survivorship Program.

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Meningioma: A tumor on the edge of the brain

Musician Sheryl Crow announced on June 5 that she has a benign brain tumor known as a meningioma. Below, doctors from Dana-Farber’s Center for Neuro-Oncology describe this condition. The singer-songwriter, a breast cancer survivor, visited Dana-Farber in 2006.

Meningiomas are tumors on the surface of the brain, spinal cord, and fluid spaces. They are the most common type of brain tumor, with approximately 55,000 new cases diagnosed annually in the United States.

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Therapy dogs bring smiles to kids with cancer

With the pitter patter of small feet, Phil makes his way through the halls of Boston Children’s Hospital. He walks with a purpose, boarding the elevator that takes him to the oncology floor for his next appointment.

Pawprints’ Phil even has his own calling card.

Phil is a new face in 6 North, the oncology unit at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center. A spunky pug mix who knows a trick or two, Phil is one of nine therapy dogs who visit pediatric patients at Boston Children’s Hospital as part of the Pawprints Program. What he lacks in medical credentials and size, he easily makes up for in heart.

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Five reasons to be optimistic about the future of cancer treatment

It’s not always easy to recognize that we live in a golden age. Too often we fail to appreciate the amazing things going on around us because we‘re so caught up in day-to-day activities and pressing demands that we presume that the extraordinary is rather ordinary.

So it may be with cancer treatment in 2012.  And the future looks to be even better – not necessarily easier, simpler, or cheaper, but unequivocally better.

Here are five reasons why.

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A new approach to old ideas about diffuse intrinsic pontine glioma

Hilary Olson had no reason to suspect that her daughter Hailey might have a brain tumor.

“Her smile was starting to droop a little, and one of her eyes was a little jumpy,” says the 6-year-old’s mother. “We took her to see a neurologist, and he thought she might have pinched a nerve.

“But when he sent us to Boston Children’s Hospital for an MRI,” she continues, “the radiologists sent us straight down to the emergency room.”

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How to eat ice cream and support cancer research at the same time

Jerry Greenfield and Ben Cohen are the smiling faces once found on every container of Ben & Jerry’s ice cream. The Burlington, Vt. company’s co-founders have become as famous for their charitable work as they are for Cherry Garcia and Chunky Monkey.

Here Jerry talks about his company’s support of Dana-Farber’s Jimmy Fund Scooper Bowl® presented by FedEx, the nation’s largest all-you-can-eat ice cream festival to be held this year from noon to 8 p.m. on June 5-7 at Boston’s City Hall Plaza.

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New developments in brain tumor treatment: Five questions for David Reardon, MD

More than 600,000 people in the United States are living with a primary brain tumor — one that begins and stays in the brain — and over 60,000 adults and children will be diagnosed with a brain tumor this year.

In recognition of May as Brain Tumor Awareness Month, we asked David Reardon, MD, clinical director of the Center for Neuro-Oncology at Dana-Farber/Brigham and Women’s Cancer Center, for the latest advances in brain tumor research and patient care.

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Watch and wait: When cancer treatment seems to mean doing nothing

Watch and wait. That’s often one of the new terms added to your vocabulary when you’re diagnosed with cancer. Or maybe it’s wait and watch. Or active monitoring. Whatever it’s called, sometimes it’s the term used when there’s nothing to do to treat your particular cancer but wait. That’s a hard thing to do, most doctors … Read more

How to help your kids cope with your cancer

For people with cancer, deciding how, and what, to tell others about the diagnosis can be a challenge. How do you tell your loved ones, or your employer, that you have cancer?

For parents, there’s another degree of difficulty: What do you say to your children? How much will they understand, and what’s the best approach?

Susan Englander, LICSW, a social worker at Dana-Farber Cancer Institute who specializes in working with young adult patients — many of whom have children — offers these tips to parents with cancer on how to talk to their kids and help them through the process.

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Pregnancy and breast cancer: One mother’s story

Rebecca Byrne had waited years for a doctor to tell her, “You’re pregnant.” She never imagined that just a few months after she first heard those words, she would hear four more: “You have breast cancer.”

Byrne still tears up when telling the story, but smiles when her 20-month-old daughter, Emelia, leaps into her lap. Emelia is the happy outcome of a painful period of Byrne’s life, when the joys of pending and early motherhood were shadowed by chemotherapy treatments, hair loss, radiation, and uncertainty.

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Do friends, family affect your health?

In low-income, minority communities, tight-knit social connections can lead people to eat right and be physically active — but they can also sometimes be an obstacle to a healthy lifestyle, according to new research by investigators at Dana-Farber and the Harvard School of Public Health.

The findings present a mixed picture of the benefits and potential downsides of social ties as they relate to a healthy lifestyle.

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‘Encyclopedia’ charts genetics of cancer

The Encyclopedia Britannica may have published its last print edition, but a group of Dana-Farber scientists and their colleagues recently produced one of the first encyclopedias to help researchers determine which subtypes of cancer are likely to respond to current drugs.

The freely available, online encyclopedia lists hundreds of cancer subtypes – each with a unique set of genetic abnormalities that define it – along with drugs that are known to target those defects. The data, described alongside a similar catalog developed by another team of investigators, will guide researchers in designing clinical trials – improving the chances that the drug being studied will act against the particular genetic vulnerabilities within a tumor.

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