Dana-Farber

How to Tell Your Children You Have Cancer

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For many parents, their first concern after a cancer diagnosis is the impact it will have on their children. There’s a lot of medical information to digest and decisions to be made, including how and when to tell your children.

There are good reasons talk to your children as soon as possible after your diagnosis. No matter their age, children will realize something is wrong; they may discover the truth accidentally from someone else, and it’s better if you can present the information in an honest and hopeful manner.

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One Year After My Stem Cell Transplant — What I’ve Learned

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by Martha Laperle

When my son Ryan ran the Boston Marathon this year, I watched him with a special level of pride. Not only had he completed his first-ever marathon in four hours, but he was running, in large part, because of me.

Just over a year earlier, at the age of 57, I had been diagnosed with an aggressive form of acute myeloid leukemia (AML), a diagnosis that turned my life upside down and led to weeks of chemotherapy and a stem cell transplant at Dana-Farber/Brigham and Women’s Cancer Center (DF/BWCC). Ryan was running to raise funds for the Leukemia & Lymphoma Society and had received nearly $11,000 in pledges.

Barely a minute after Ryan crossed the finish line, the area shook with explosions.

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Six Important Questions About Childhood Cancer

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September is Childhood Cancer Awareness Month. We asked Lisa Diller, MD, chief medical officer at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center, to answer these important questions.

What signs might lead a child’s pediatrician to suspect cancer?

Cancer is very diverse, and diagnosis is further complicated because many signs and symptoms—like fever, bruising and headaches—are normal in healthy children.

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Making ‘Em Laugh: 12-year-old Cancer Patient Compiles Joke Book

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Jack Robinson is a special kid.

Diagnosed with bone cancer at the age of 11, he tackled treatment if not with a smile on his face, then with a joke on his lips… or more accurately, on paper. The Massachusetts resident compiled and edited a joke book called, “Make ‘em Laugh” to help himself, and other kids who were sick. It was drafted from hundreds of jokes, riddles, and drawings submitted by Robinson and other kids cared for in the Jimmy Fund Clinic and the inpatient oncology floors at Boston Children’s Hospital.

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Dating and Cancer 101

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SWF, Bald, Undergoing Chemo and Radiation…

Oh yeah, isn’t that the first profile you would click on if you were searching for the love of your life or even just a new ‘friend’ online? Dating in itself – or, I should say, finding someone to date – is never easy. Finding someone when you happen to be bald, going through chemo and/or making daily trips to the hospital for radiation makes it a zillion times more complicated. I know. I’ve tried it.

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Confronting the Mental Challenges of Cancer Treatment

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by Richard Saltus

Living with cancer is a physical and emotional challenge, but people may also find it hampers their thought processes and memory. Often the deficits are temporary, but sometimes they persist or appear months or years later as delayed effects.

Cognitive difficulties, says Clare Humphreys, PhD, a neuropsychologist at Brigham and Women’s Hospital, “are caused not just by the direct effect of cancer, but also the effects of treatment, as well as factors like pain, disrupted sleep, anxiety, and depression.”

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Tips for Talking to Your Children About Genetic Test Results

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There are many decisions parents face after testing for genetic cancer risk, including whether to tell their children and how to approach the conversation.

If you decide to talk to your children about the test results, allow yourself some time to process the information; you want to be calm and clear when you talk with them. Remember that you know your children best and there are no set rules for talking to kids about genetic tests.

You also may want to talk with your spouse and decide whether you would like to speak with the children together or individually. It is good to be aware that sometimes spontaneous discussion opportunities arise – such as driving a child to school or practice – when a child asks a question that can disrupt parents’ plans for informing them, but can feel like a natural way for the topic to come up and be talked about.

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Making Fertility Decisions Post-Diagnosis

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Liz Moroney celebrated her 23rd birthday in an unusual place — at a fertility clinic. Liz, a recent college graduate, wanted to plan for having children before it was too late.

Diagnosed with Hodgkin’s lymphoma in June 2010, she spent 4 months in chemotherapy treatment in New York. Afterward, she and her reproductive endocrinologist watched her fertility numbers dwindle over a year of visits. Her endocrinologist was skeptical of the effectiveness of fertility treatment; So, too, was Liz.

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Avastin Helps Patients with Glioblastomas, Doctors Say

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The drug Avastin, when added to initial therapy for glioblastoma, can give patients a few extra months’ reprieve before their brain tumors start growing again, but does it make their quality of life better – or worse?

That’s a matter of heated debate for doctors – and confusion for patients – after two large clinical trials reported conflicting results at the annual American Society of Clinical Oncology (ASCO) conference in June. Some experts contend that Avastin lacked sufficient benefit for use as an “upfront” treatment for glioblastomas – the most common and aggressive brain tumors.

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Should Boys and Girls Be Vaccinated Against HPV?

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By Robert Haddad, MD

Human papillomavirus, or HPV, vaccinations were originally advised only for girls. The Centers for Disease Control and Prevention (CDC) and the American College of Pediatrics now recommend that both girls and boys be vaccinated. The recommendations are well founded: HPV infection is the number one cause of oropharyngeal cancer, which occurs in the middle part of the throat and is diagnosed in about 14,000 Americans each year. Men are three times more likely than women to develop oropharyngeal cancers linked to HPV.

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Facing First-Time Parenthood… and Cancer

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The first year of your baby’s life is special. They come home to you this eating, pooping, screaming machine and twelve months later they are their own walking and babbling little person. It is a year to truly cherish because you realize what parents mean when they say, “they grow up so fast.”  Well, my baby’s year is going by incredibly fast. He is a crawling, smiling, happy boy. Meanwhile, I feel I have hardly moved at all. A shocking diagnosis interfered with what was supposed to be the happiest time in my life.

What do you do when you are a new parent and you have cancer? I know the answer firsthand.

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Meet Boston Marathon Runner and Platelet Donor Wendy Akeson

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Wendy Akeson is passionate about both running and donating platelets. Never has she felt such a strong connection between these two roles as she did this year.

Four minutes after completing her 10th consecutive Boston Marathon, Akeson heard the explosions that will forever link this year’s marathon with tragedy – and then saw people running toward her from the finish line she had just crossed.

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Genetic Testing, Cancer Risk, and Angelina Jolie’s Choice

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Actress Angelina Jolie is no stranger to the headlines, but she stunned the world with her Op-Ed in The New York Times, in which she shared her very private decision to have a preventive double mastectomy after testing positive for the BRCA1 gene mutation. “I hope that other women can benefit from my experience,” wrote Jolie. … Read more

Expecting a Baby—Not Cancer

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Editor’s Note: This is the second in our series of stories celebrating Moms this Mother’s Day weekend. Yesterday, Michelle Maloney shared her story. Today, it’s Allison Bellevue’s turn.

By Christine Triantos

In one whirlwind year, Allison Bellevue moved to Boston, started a new job, met her future husband, and discovered she was pregnant. Compared to what followed, that year was a breeze.

When Bellevue, now 31, went for her first fetal ultrasound, doctors noticed a small mass on her right ovary. They told her it was likely a cyst, and they would keep an eye on it over time.

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Mom, cancer survivor has ‘a lot to celebrate’ this Mother’s Day

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Editor’s Note: This weekend we celebrate Mother’s Day with two inspiring stories of Moms whose cancer diagnoses came while they were pregnant. Today, Michelle Maloney shares her story.

On a cold October evening, Michelle Maloney braced herself against the night chill. As she hugged herself in bed, she felt a lump in her right breast. The next morning, Maloney scheduled an appointment with her primary care physician, who asked if she could be pregnant.

“Anything is possible,” said Maloney.

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