This post originally appeared on Notes, Boston Children’s Hospital’s Clinical Health Blog. With over 75 percent of children diagnosed with cancer surviving into adulthood, more and more parents ask questions about the quality of life survivors can expect in the future, including: Will my child be able to have children down the road? They’re right to … Read more
Each February 4, people everywhere are encouraged to take steps toward improving cancer awareness, prevention, and care on World Cancer Day. But for Dana-Farber staff working with colleagues in dozens of under-resourced countries, every day provides opportunities to help cancer patients worldwide. The Global Health Initiative at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center has … Read more
A year ago, Aimee Fellows couldn’t imagine being back at Boston Children’s Hospital, awaiting the start of another violin concert featuring her daughter. Sophie, now 10 years old, is dressed this time in a frilly white blouse, black skirt and black dress shoes, her first pair of heels, albeit little more than an inch higher … Read more
By Chelsea Smith Don’t take life for granted. Each day you wake up is an amazing gift. Even though I’ve felt a lot of pain in my life, it’s made me stronger. I’ve always been hopeful for tomorrow, and sometimes that hope pays off. My roller coaster started when I was 15 months old and … Read more
The holidays bring heartwarming scenes of homecoming and family gatherings, but such plans can be sidetracked by treatment for cancer and related diseases. If you or a loved one need to spend all or part of the holidays in the hospital, consider these tips for brightening the season. Learn what’s allowed. Before you get your … Read more
The past two years have seen a surge of new treatments for blood cancers, such as lymphoma, leukemia and multiple myeloma. Research on the genetic flaws underlying specific cancer types has led to new precision drugs such as ibrutinib and idelalisib and new immunotherapy agents that are improving outcomes in many patients with difficult-to-treat forms … Read more
Before Nicholas Cleary was diagnosed with stage IV neuroblastoma, his mother, Lisa, and aunt, Nicole, often talked about participating in the Boston Marathon® Jimmy Fund Walk presented by Hyundai and had contributed to other Walk teams in the past. So when Nicholas was diagnosed at 22-months old, Nicole and Lisa knew right away they would … Read more
At its most basic level, gene therapy is a powerful technique for correcting mistakes (called mutations) in DNA of human cells. Lately, the therapy has been gaining traction as a potentially life-saving treatment for children with an array of inherited rare blood and immune disorders, as well as certain cancers. Gene therapies are being carefully … Read more
An atypical teratoid rhabdoid tumor (AT/RT) is a very rare and fast-growing tumor of the central nervous system. AT/RT is part of a larger group of malignant tumors called rhabdoid tumors, which are found outside the brain, in the kidneys, liver and other locations. AT/RT is most commonly found in the cerebellum and brain stem, which … Read more
Any treatment that uses elements of the body’s immune system to fight cancer is considered cancer immunotherapy. In recent years, as research has revealed many of the basic workings of the immune system and how the immune system interacts with tumor cells, scientists have developed, tested, and demonstrated the effectiveness of an array of immunotherapy … Read more
Avery McAvoy’s last day in the hospital was a long-awaited milestone, but all the 2-year-old cared about was how it ended: with bubbles. After 12 months of treatment for neuroblastoma at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center, much of which was spent on the inpatient oncology and hematology unit at Boston Children’s Hospital, Avery … Read more
The artist Henri Matisse once said, “creativity takes courage.” So does facing cancer as a child. Cancer, creativity and courage merged at a recent exhibit of art by patients of Dana-Farber/Boston Children’s Cancer and Blood Disorders Center. The artwork was created during the FACES (Feeling Accepted, Confident, Empowered and Strong) and FLASHES (Filming Life and … Read more
Physicians tend to move quickly when a child is diagnosed with cancer. That’s because some of the most common types of childhood cancers (such as acute lymphoblastic leukemia (ALL), neuroblastoma, and brain tumors) can appear in a matter of days or weeks and progress rapidly. In such cases, prompt medical attention and aggressive therapy are … Read more
Gabriel Solis is a typical 3-year-old. He likes puzzles and swimming and singing. He shakes off colds like other children. Gabriel, however, is not like other children. He has a functioning immune system thanks to an international gene therapy trial for “bubble boy” disease whose early success was reported recently in the New England Journal … Read more
A cancer diagnosis brings more than physical challenges. Patients and loved ones must also manage the emotional toll that can come with it. Storytelling, through word, pictures or other creative expression, can be an effective way to deal with these emotions and help with the healing process. Some people look to painting or writing, while … Read more
As 2013 comes to a close, we’re looking back at some of our favorite Insight posts from the last year. From inspiring patient stories to important research, here is our top 10 list:
By Caroline Rider For many families with children, summer is a time for vacations, outings, and fun. However, a summer vacation when your child has cancer can seem out of the question. But sometimes, a summer getaway is just what the doctor ordered.
By Melissa Cochran, MS, NP For my cancer patients, a stem cell transplant is a life-changing event. They cannot work outside the home for a full year; visits to Dana-Farber are about the only excursions allowed. No more trips to the grocery store or dinners at a favorite restaurant. In our clinic, we have a solid team … Read more
Bob Hurkett doesn’t know what became of the little girl he first heard of in 1998, but he thinks about her often. She was 5 years old and needed a bone marrow transplant. Hurkett and his wife, Jane, attended a donor drive hosted by the girl’s family where their blood was drawn and tested as … Read more
One of the easiest and most effective ways to help cancer patients is to give blood. There is a constant need for donations, but especially so in the summer when people are on vacation and unable to donate. One pint of blood can save up to two lives, and one platelet donation can save up … Read more